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Boje’s "True Storytelling" episodes Podcast https://apple.co/3p1ZbbK

Boje’s “Quantum Storytelling” Podcast https://apple.co/3oIZxUK

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Wonder Woman's Organizes Possible 'Cure' for Boje's Stage 4 Prostate Cancer
by David Michael Boje, Ph.D.
  Posting updated Saturday April 9, 2022


  I am an [en]thinker, a member of the Enthinkment Circle (https://enthinkment.com). Hundreds of millions of cancer cells live in my body. My body protects the cancer cells. I am a spiritual being and would like to extract the trickster cancer tells. I am a sexual being with cancer cells alive in me. After  stage 4 prostate cancer (PC) arrives, the treatments result in loss of sexual function.  However with modern medicine there are pills that are quite helpful. I feel terrific as long as I don't  ruminate on the past, or worry about how many months or years science says I have to live. My life is not a statistic.  Fortunately, I married Wonder Woman, and she stitched together a team of specialist doctors willing to try to 'cure' me of Stage 4, high risk, highly aggressive Gleason score 10, and already metastasized prostate cancer!

https://www.youtube.com/watch?v=Q_j8FdfmubA

Enthinkment Circle David Boje On Cancer and Complex Systems



On Thursday April 7, 2022, the head of Medical Oncology signed me up for a new clinical trial, in which an actual cure for Stage 4 prostate cancer is being tested. It is set of meds and other treatments, that have worked here and there in UK and US, but is not on the government’s approved list of so called ‘standard of care’ practices. Wonder Woman has found someone willing to try to ‘cure’ me. It’s impossible! It’s a miracle! It is ‘surrenders to spirit’ in action. I'm in gratitude.



Wonder Woman I want to start by saying I feel better today than I have in 20 years. I owe it all to Wonder Woman. I have the most amazing care giver, Grace Ann Rosile. She got me into treatment within days of the initial diagnosis Stage 2B, that was upgraded a month later to Stage 4. She is the real Wonder Woman. It takes Wonder Woman to patiently build an interdisciplinary team of doctors with many different specialties, each with their own unique answer to what is cancer, what to do in my case.  Then she has to get them to be an ensemble storytelling conversation with one another. Locally or at MD Anderson Cancer Clinic, doctors don't make their own appointments. Grace Ann has to stitch the specialist doctors together, persist again and again with bureaucratic roadblocks. Each doctor has a scheduler, and nurses and assistants to keep the patient away from the doctor's schedule. Without Wonder Woman, an expert in ensemble organizing, I would not have a well functioning teams. Without Wonder Woman who 25 years ago got me on a vegetarian diet, I would not be here now. 

It takes months for Wonder Woman and I (being of little help) to sort out an ensemble, a treatment team, then to make an informed and intelligent decision about a plan. April 7th we met the leading Medical Oncologist for the first time, who will likely quarterback the ensemble of doctors of varying specialties.  He actually used the word 'cure.'  No other doctor in New Mexico or here in Texas had uttered such a word.



GENERAL UPDATE:

I have stage 4 cancer and am getting best of care at best cancer clinic in the world. Since I learned of this in early January, I have been tested retested, and finally am on a treatment path that has lowered my PSA score for prostate to less than decidable (< 0.1) and in a couple weeks daily radiation will hopefully eradicate the cancer nest in my prostate, depriving the colony in the lymph nodes of support, they are already shrinking away, which leaves a slow growth in left kidney that is cancer of a different sort, and its a watch and see (no big deal variety). All said, I am now at 155 pounds weight (best in 40 years), eat vegetarian, get lots of exercise, meditate, and relax, so my blood pressure is down from 165 to the 120s and 130s on most days. I am in a special clinical trial, which means a wonder drug is being tested on me, and its working and I am healthy, happy, and terrific day-by-day.

What follows is the diary of events in my road to recovery and the discovery that I can have joy in each moment of my life.



DIARY (some entries for August and after are on the podcasts).

Boje’s "True Storytelling" episodes Podcast https://apple.co/3p1ZbbK

Boje’s “Quantum Storytelling” Podcast https://apple.co/3oIZxUK


August 29, 2022 Monday - The 15th of 28 Radiation sessions.

I have posted some events in above podcast links. Short story is I am half way through radiation treatments, then I will go home to New Mexico, and return for a monthly visit to Houston Texas to get the meds not yet on the market and to have blood tests done to make sure the PSA does not rise again. This continues for a year, then hopefully, I am cured and no relapse will occur.


What I am learning is radiation itself is not painful. What's stressful, even painful, is that for prostate cancer treatment, men must hold a specific target of water in their bladder for about an hour to an hour and a half (my target is 216 milliliters).


Before radiation events, there is the Simulation.
Simulation occurs the workday before the first radiation event. It is done on a different machine, in a different wing of first floor of Mays Clinic. The evening before simulation day, there is one kind of enema and the morning of the simulation a different enema. the instructions are to drink a whole bottle of water (64 ounces) at home and another upon arrival, as you wait for the time of the simulation appointment. I kept having to restart, being unable to hold that much water in my bladder. There are ways around this outcome, which I will get to. During simulation, there is a somewhat different machine used, to figure out the way to tile your pelvis, and several tattoos are made to belly and abdomen. That doesn't hurt much. I was quite shaken by the Simulation experience. The machine showed I had gas, and to relieve it, so measurements were accurate, a catheter was used to push air in and take gas out. It was done by a man who could have been a starter on a professional basketball team. He had a good bedside manner, with lots of good joking around to soften the mood. When it was over, I ran to the bathroom, and put my pack that contained cell phone, books I was reading, and wallet, in the sink. Big mistake! When I finished urinating, I noticed the water overflowing the sink. It was one of those automated water faucets. My stuff, and the floors was a mess. I had to ask the many who led the Simulation procedure to help me. He actually was quite gracious about it. Sometime you meet people that don't embarrass you when you screw up.


Each day of radiation, you check in, answer 'No' to the six Covid questions, get a new mask, and check in again to show your radiation card with its bar code, and get an wrist ban. Then you walk down along hall to another check in booth (encased in glass, with or without one or two people there), and use an automated check in, a machine to scan your card. Drinking water takes place.


What it's like? On one side of the room are women waiting to go to their treatment rooms for radiation. The door opens and you can hear laughter and jovial conversation. On the other side of the waiting room, men sit with legs crossed in the waiting room. It is much more solemn. A few have penile clamps. As I said, I tried it, and it hurts like hell. One fellow, call him Tex, uses it, and told me how agonizing it is (beyond painful), but it's better than death. Each of us tries our best to time how long it takes for the water to travel from mouth to bladder. That is what the hour wait time is all about. Some days I have to restart the process several times (empty the bladder and try again). This makes it very difficult to not over-shoot the target, and have 400 to 500 milliliters in the bladder, and for me, it's impossible to hold it.


When you think you are ready and the room is about ready for you, a therapist calls your name out, and you go to a room, show your card, repeat your name and date of birth, as they check that data on your wrist ban, and the name on the card. Then you lay on a table and place a towel over your private parts, slip you pants and underwear down, and an ultrasound is done to measure the amount of water in the bladder 500 milliliters is about two cups. Doesn't sound like a lot, but the physiology process is more water keeps moving into the bladder as the body hydrates, and it's easy to overshoot your target. Best case, you can sense when bladder is over full, you have to go, and the restroom is available to go. Worst case you have to go, and the bathrooms are occupied.


The incident. Once, I could not find these conditions, so the drain in the drinking fountain had to do. How embarrassing is that? It was that or the carpet. A nurse caught me in the act, and I was sent to the head doctor who explained that I could not do that again. I was given my very own plastic urinal. I was also asked if I would put a clamp on my penis (called a penile clamp). I had tried it, and put it on when I was full of urine and had to go. It did not work. I applied the clamp, cinching it down, click by click, then the pee tried to escape the urethra, and it was like a dam ready to burst, and the pain was excruciating. We negotiated. I had been given an initial target beyond my physical capability, so at end if first week of daily radiation struggles, the doctor lowered the target by 20%. The doctor explained something I wish I had known much earlier. The bladder has a lot of nerve endings that sense when it's time to go, and alerts the brain. This whole procedure of trying to hold a specific target amount of water, past that point of nerves sending signals, goes against your physiology. It takes two or three weeks to get past that. If not, then the penile clamp is an option, of to call it a day, and not do radiation.


Other factors, is once a week, it seems there is an IT issue with the machine, or the radiation therapists are attending other patients and my window of opportunity (to hold my water long enough for the procedure) goes away. This is because , its darn hard for each of us to stay on the assigned schedule, without the restarts. I have been given a plastic urinal to carry around, in case I have to go, and all the bathrooms are occupied. There are two single-person bathrooms in the radiation area for men. And down a long hallway, near the building entrance, two more.


Another delay, is sometimes, the therapists have to re-tape the targets needed for aligning the body to the radiation machine. This taping is on top of the tattoo dots received during an event called the 'simulation.'


Some days I could time everything perfectly. I also got good advice from other patients. Don't drink water at home then travel to Mays Clinic. Better strategy is to arrive 90 minutes early, and drink the water in the waiting room. Some days, the hospital's bottled water supplier does not deliver water, so bring your own. At least bring an empty bottle and use the drinking fountain near the entrance of the building.


Another delay, is if your regular radiation machine is down for repair (mine is room 6) then getting the procedure done in a another room requires setting that machine, often by the therapists assigned to that room, and it can double the time you have to hold it. Other times, there are x-rays being done to check that bowel is not tilted into the bladder, blocking the machine's path to its target (gold chips embedded in prostate).


There are differences in the care displayed by the radiation therapists. My usual team of therapists are quite amazing: caring and competent. However, going to another room, I am not their usual patient, so the competence is there, but you can be treated like a 'thing' a non-person.


On the bad days, I manage after several restarts to lay on the radiation table and hold my pee. But if I am full of anxiety and overfull of pee, I am struggling, cursing, gritting my teeth, and staining every muscle. I have over active bladder. So it's difficult for me. It's an enlarged prostate that has shrunk just enough to be eligible for this treatment. I have also found it painful to walk. My muscles are deteriorating, and so are the tendons. This is my own hypothesis. My left leg from toes to rear end has numbness, then stining pain, then pain so bad I cannot talk.


This was a good day. Despite the pain in the leg, on Aug 19 2022 I gave my Keynote to the 8th International Conference on Socio-Technical Perspective in IS held in Iceland, with the help of the Enthinkment Circle. I could only concentrate and tak for 10 minutes, and the keynote was 45 minutes. So I gave the keynote with Grace Ann and I in the waiting room of the Radiation center of Mays Clinic, Houston Texas. We were on Zoom as were several Enthinkment Circle colleagues (Rohny, Jillian, Duncan). See it at
https://www.youtube.com/watch?v=hF-5BB-6nTc&t=159s

This is all embarrassing because I am used to succeeding in life. I have never missed a keynote, never given anything but my best. I want to be the best patient. Instead I learned that in the first week, its the patients in their third, fourth, or fifth week of treatment that give you advice and counsel to get through this with strategies that work (e.g. come early, drink the water in the waiting room, walk around a bit, go to the desk and tell them when you think you can not wait much longer).


So today August 29, 2022 is first day of third week of radiation. 15 radiation events done, out of 28 total. I don't have it down yet. I am struggling. If everything is perfect. I arrive early, I drink just the right quantity of water, a machine is available at the time I am ready, and no delays for maintenance or extra procedures, etc. then its all good. But, if I have to restart, I can have an ultrasound with too much or too little in my bladder. It spirals out of control from there. Last Friday I was there for four hours with four restarts before I could get everything in alignment. Fortunately there was an amazing patient in his last week of radiation, who sat with me, in the inner room next to the ultrasound room. He had had chemo and said "you know, I find radiation worse that chemo!" Wow, I did not know that. "Do you want me to get you a warm blanket? There are lots of them in heating units down the hall outside the radiation treatment rooms." I sat there and talked with him until my nerves settled, confidence returned, and gave it another try. I struggled and I go through it, as I said above, with some cursing, and tightening all my muscles. The radiation therapist advised me to just use a penile clamp. I replied, "I'd rather have a Rottweiler dog chew on my penis. So no, I refuse to use a clamp." I regretted being so direct about it, but I remembered I do have choices, and there is such a thing as patient rights. I do want to live, but somethings I cannot abide.


I had a good week end, and I hope Aug 29 2022 is a good day, and everything goes well for me and all the men and women in the radiation wing of the hospital.



July 9th 2022 Saturday -July 9th 2022 Saturday -  I had an amazing MRI experience on Friday, with the anesthesia.  After a short wait time, answering the same questions I had put in the e-survey, and getting into my scrubs gown, an IV valve was inserted in my forearm near the wrist.   I walked into one of the MRI rooms, and lay on the platform. A team of nurses, and the anesthesia doctor hovered around me, saying all sorts of things.  Then one of them injected the anesthetic and I was in dreamtime.  Several hours passed and I awoke in the recovery room, and a jovial nurse asked how I felt. "I feel terrific, can we do this again?"  She asked, "are you ready to get up?"  I replied, "I want to rest, and enjoy the moment."  I was barely conscious, and my legs and arms did not care to move just yet.  Why not just live in the moment, relax, and enjoy the ride.  I have been reading about Worldlines, and I was on one, at the point where I am experiencing one event after another, and each event bounces through the now of spacetime, affecting many other events. It looks like this Lorentz transformation (courtesy of Wikipedia).

My Past Keeps Rehistoricizing
Good Future --><-- Bad Future
My Bets on the Future keep Unfolding

I am playing with the Worldline, dong some Quantum Storytelling, adding the antenarrative process of a wave to the left as Good Future, and a wave to the right as Bad Future.
 
Quantum Storytelling of my World Line I choose to accent and align with stretching this event into a Good Future. It is an antenarrative process I call, making Bets on the Future that affect (slightly and sometimes quite significantly) my Being-in-the-world, and my potentiality to live longer in quality of life. The MRI event, my body is moving in the vertical direction (Time), while the horizontal indicates distance (Space), the dashed line is the SpaceTime of the observers (myself, Grace Ann, Nurses, doctors, and so on).  The small dots are specific events in SpaceTime.  As the post-MRI event unfolds momentarily I am co-moving with frame changes as my recovery of my sense accelerates. There are many other Worldlines entangling and interlacing or moving away from mine. I am choosing to enjoy the event in its SpaceTime slice of my Worldline, a kind of True Storytelling line that is stretching and twisting about.  I am co-moving with others Worldlines, colliding, interacting, interlacing, or distancing. 

As Einstein observed, the linear notions of event-distinctions of a past, present, future, timeline are a stubborn illusion of linear thinking.


If this Worldline is dynamic, then a multiplicity of spacetime slices are simultaneous, some more effectual than others, some more probable potentialities than others. If this dynamic Worldline of spacetime slices is happening each moment, in each eventum of my living story, then how I observe and behave in that once-occurrent event (as Bakhtin, 1993) calls it, is my moral answerability for living a 'true life'. I am answerable to intervene, as best I can, in the once-occurent eventing of Being.  For example, what if, Wonder Woman had not persisted in getting me into a clinical trial to test the latest wonder pill? What if the lymph-nodes did not have the migrant prostate cancer test result in the initial CT scan? I would not be eligible to be in the trial, and my life, my Worldline would be unraveling in a very different directions, most likely quite cataclysmic? What if this event of the migrating colony of prostate cells moving into several lymph-nodes was not confirmed by the first MRI?  You can see why I am quite joyful. Being joyful got me here, in this recovery room, got my PSA in the prostate down to an undetectable level.  What is prayer groups and shamanic drumming circles were not convening on my behalf, then my Worldline would be quite different. You see what I mean by Worldline?

Tamara-Land of MD Anderson Cancer Clinic is composed of more than 25 buildings. Most of our interactions are in the Mays Building which has 7 floors, and about 6 elevators accessible from the 2nd floor.  Then there is a skyway connecting Mays and Main buildings, with trams like you see in airports, and people walking who want to stretch their legs.  Your task is always to find the right building, take a particular elevator to the correct floor, and check in at one of several reception desks for various specialized services on that floor.  This is a very complex Tamara-Land with simultaneous storytelling going on in the the buildings and in each floor and in the clinic spaces and waiting area spaces.





Skyway connecting Mays Building to Main Building

The scale of the Tamara-Land is an amazing complex adaptive system of simultaneous storytelling. So many patients, doctors, nurses, clinical staff and so on, chasing stories from room to room.



I am in one of 1,600 clinical trials, doing one of the 1.5 million outpatient visits, and engaged in the lab and testing procedures, and so on. You can see how any distinctions of pastm present, and future are quite arbitrary. I can stitch together many events into many different Worldlines. Life has many choices.


July 8th 2022 Friday
The MRI, my second one,will be done with me under anesthesia. The 1st one was way too disruptive to my conscious self. I hope this one will be amazing. Every patient I talk to had had tough time with MRI, so I am going under for this one. It's 4AM Friday, and I did my push ups, stretches, and jogging in place, and some meditations. Decided to get back to these regular morning exercises until my left leg is ready to jog again.  Yesterday with special Acupuncture for the L4 in lower back, things go right again for a few hours, but walking about in Target store, that fell apart and I could not walk and had to rest on a bench. So this morning I am taking a new direction, and getting more Qigong, more Feldenchrist, and jogging in place on the carpet. The strategy is not to stress the left leg, and instead work on the whole body. I learned from all the blood work, scan analyses, and so on, that my body and I are headed in the right direction for healing.  The lymph node cancers have shrunk, PSA in prostate is shut down, and the vital organs are all in good shape. 

Here is the big picture. I am a patient interacting with different kinds of oncology units in MD Anderson: Surgical Oncology (who found the lymph node cancer that the New Mexico doctors doing CT scans had missed in their own results). I am working then with Integrative Oncology, who takes a holistic approach that and reviews all supplements, and is open to acupuncture, Qigong, yoga, and so on.  Then at the last moment, I am sent to meet Medical Oncology, and because (I found you Thursday) there is a lymph node cancer that is from the prostate cancer cells migration, I am eligible for a special clinical trial about the connection between prostate cancer and lymph node cancer, which means I am eligible for the newest wonder drug, not on the market, but seeking FDA approval in Phase Two trial.  Since I have been taking the new wonder pill for over a month and the scores are in the right direction, if today's MRI holds up, and is consistent with the photo imaging studies and the CT scan and blood results from Wednesday, then I get the green light from Radiation Oncology to begin preparation for the radiation treatments. Those preparations include a July 21st prostate biopsy and a simultaneous implant of gold fragments in the prostate to allow the radiation to find its target in about 28 treatments during month of August, and a few days of September, plus a pad is install between anus and testicles  (perennial gland) so the radiation does minimal damage to those body parts.  The fragments and the pad biodegrade over the months following the radiation treatments.  Eligibility for this depends on my prostate having shrunk by up to 30% in last few months of ADT treatment (and the new wonder pills).  As I said right now it looks promising. 

My 45 years of academic training in organizational systems (aka bureaucracy) and my skills in storytelling, and shamanic meditation, and so on, along with Wonder Woman's amazing ways of knitting the various oncology specialties (each a silo, each with a linear hierarchical structure of intake person, a nurse putting data into spreadsheet, an RN who works closely with their oncology doctor, a scheduler person, and a Trials researcher for this trial), all these organizational testicles must align, and not trip over one another, for this intervention in my body to work out. Fortunately, to assist, there are prayer groups, shamanic meditation groups, and so on, praying and meditating good weave energy in my direction. This is a moving, complex adaptive system, with multiple Worldlines, and their respective spacetime slices (something Einstein began working out in 1920's).



A Worldline is defined as a curve in spacetime joining me the body throughout its existence. Each oncology silo has its own Worldline within its reference frame. I am a particle on a worldline.  Each has an entire history of its system and I am in each system, which is crafting my future. The frames of reference of the five kinds of oncology (departments) are moving with respect to each other and to me, at their constant velocity. I am a position coordinate (x) of each event in relation to other event frames of MD Anderson Cancer Clinic, and with event frames such as going to Greece to an Island for a month to relax and lower my blood pressure (which I did) in preparation for the surgical biopsies, the radiation events, and so on.

A Worldsheet is a term from string theory (coined by Leonard Susskind in 1967). A Worldsheet is a two-dimensional manifold that describes how the embedding of a string happens in spacetime.

Introduction_To_Spacetime_Diagrams A Brane is some physical object (like Boje's body) that generalizes the notion of a point particle to higher dimensions (for me that is mind, body, spirit). Branes (Boje's) are quite dynamical objects moving through spacetime according to rules of quantum mechanics (see Annual Quantum Storytelling Conference https://davidboje.com/quantum).  In four spacetime dimensions of the block universe, the surface make up is called the Brane, but in high-dimensional spacetime, it is called the Bulk. 

All boils down, to my body moving in spacetime along my Worldline, which is tucked into various WorldSheets of a very complex adaptive system called MD Anderson, which has many Brane units trying to track my movement in spacetime and their own coordinations in the block universe.


July 7th 2022 Thursday MD ANDERSON, interpretations of test, and prep for the MRI We head into MD Anderson to meet with various doctors and their teams, to see how things look for doing the Radiation treatments. If all looks good then July 21st, the 2nd prostate biopsy operation, and following day on July 22nd the gold chips and the pad are implanted in prep for radiation treatments. The entire month of August will be short visits for radiation treatments Monday through Friday (not sure of time of day as yet).  There is prep to do today for the MRI, getting the results of the daily blood tests turned into so the can be recorded as part of the Trial of the new med I am taking each day.  Each morning I take a lot of pills, many are supplements, and four pills are the new med not available on the market yet: Alfuzosin (brand name is ERLEADA). I am used to the regime of pills, pre-tests, scans of all kinds, biopsies, post-tests, and am more confident about my bet on the future, to life a long and happy and healthy life. There is joy in each day, as I take time to interact with the staff at MD Anderson, the patients, and quality time with Wonder Woman, always at my side, and sometimes clearing the roadblocks to care for the next event.


I notice the difference between the physical and the psychological 'need to pee' and how they interact. Physically I am fine, unless I start to obsess about whether I will be able to 'hold my pee.' 

I try to explain this to the nurse in radiation who is asking my a hundred questions with numerical values: on a scale of 1 to 10 how is your urge to urinate, etc. I am not a number on a scale, and I nuance my answers: "do you mean now or in last 24 hours, or in last month, or on the plane, or when the flight attendant says the lavatories are off limits due to turbulence, or meal service or preparation to take off or land?"  That number is different depending upon context. So she asks, 'on average.'  I reply, "I am a statistician and averages are also contextual." I try to get a connection, an opening, to explain my physical and psychological. She says, "are you doing kegels?"  I try to explain "kegels does not work for me."  She dismisses my answer, and calls me 'Mr. Boje."  So I escalate to get her attention, "That's Dr. Boje!"  She replies, "OK, Dr. Boje, I have a lot of things to do today, and I need you to concentrate on the questions, and give me numerical answers."  I say, "call me David" and she invites me to call her by her first name. Then some true communication begins to happen, but only for a few moments.

She is on a different spacetime slice, a different 'World Line" than I am, which is understandable. But, if the numerical profile she puts into the spreadsheet is skewed, then her understanding of what I am experiencing, is also skewed. It's important for these to align, in order to have true storytelling between us.  There is a big disagreement in what supplements (over the counter vitamins, such as the Nature's Sunshine brand). This is a discussion between Grace Ann (Wonder Woman) and the nurse who wants to remove things I am taking each day because they are not in her database. She wants Grace Ann to bring in the pill bottles.  There are about 30 pill bottles, and this seems ridiculous, since Integrative Medicine, and Medical Oncology intake nurses have already done this, and gone to the various web sites to see what are the elements in each vitamin pills (D, B, C, etc.).  Grace Ann has carefully negotiated with three units of MD Anderson specialties, and we can negotiate with Radiation Oncology, but we are being rushed, and neither Wonder Woman nor I will be rushed along. Fortunately, our main connection in this ensemble of specialties is Medical Oncology (where the Phase 2 Trial is houses) so they make the final call. And the Registered Nurse in Radiation Oncology (where we are today) is seeing the bigger picture.

July 6th 2022 Wednesday --> Whole day at MD Anderson Cancer Center - tests and scans to see how things are. 
This included 9viles of blood work with test results coming in throughout the day showing PSA has decreased again to less than 0.1, which is outstanding. It means that my PSA is now unmeasurable, not enough being produced to be detectable. In addition, my wight is 155 pounds (no weight gain), and very good blood work readings are happening, despite all those spinach and feta cheese pies in Greece. Had photos of bone scan, then a full CT scan with iodine infusion. This meant having 9 viles of blood from left arm, and at another center, the IV inserted in right arm.  The tests results on about every test, most of the chemistry I don't know, had me in the green zone.  It will be exciting to see results of the bone scan and the CT scan (with iodine contrast) of the pelvis area in particular.  Has the prostate shrunk a bit, how is the bladder resting on it.

June 9 to July 1st 2022 -->
We are on Tilos Island, after 24 hours of travel from Houston International Airport to Amsterdam,transfer flight to Athens to catch another plane to Kos Island, then catch Ferry to Tilos Island (in late AM on scary dock). Arrived Tilos Island safely We stayed at Apollo Inn with our amazing hosts Andreas and Erina. I did not activate my work computer and did not read any of the work projects, only novels and YouTubes about building electric vehicles (scooters, e-bikes, e-cycles), and daily swims in the ocean.  Each day my blood pressure steadily dropped from the highs in 160's to 120's and 130's readings becoming steady.  On other hand, after 3 days of jogging up and down mountains, left leg cramps and tendon strain, so had to just swim (snorkel) each day, which I enjoyed greatly. Wonder Woman to the rescue, she showed me Feldenchrist exercised to calm my tendons, and by time e left island I could make the walk between gates at airports. Saw the same fish in places I snorkeled, Very territorial these fish. One in particular had lots o black and white spiny wings and would be at same rock cluster each day. Very reassuring. During the air trip when they would close the bathrooms due to turbulence (very stressful for me) I would meditate on that spiny fish in its rock nest in the ocean of Tilos Island.

July 1st 2022 return trip from Greece to Houston, took several days, with stop over at hotel in Kos Island, then stop over in Athens, hours of layover Frankfurt Airport, then flight to Houston (HIA) July 4th, and the stay at Staybridge Inn for Grace Ann's birthday, July 5th. Much good news, I was able to control my bladder with trips those plane and airport bathrooms, and prove to myself I could travel long distance with bladder meditation, yoga, and lots of help from Wonder Woman. 

June 7 2022 Tuesday
--> We are 3rd day in Houston. Great news, had blood testing done, and all indicators are good or better than last set of tests at the remote MD Anderson site. The PSA score dropped to record 0.1. Yea!  I weighed in at 155 pounds, which is very good for me.

Uber driver back to main MD Anderson campus (40 minute ride) wonderful storyteller. We talked about Enthinkment, from point of view of project management. When there is thinking diversity, each person thinking somewhat differently get way better result. Example from diversity training. Suppose you have a law firm and can hire one more lawyer (and money to get a recent Harvard grad), who do you hire? Go Harvard. Now let's suppose you can hire 6 more lawyers. Do you hare 6 from Harvard? No way. They all think alike. Hire from different regions, different gender, different ages, different ethnicity, and so on. This way the thinking dialogism is way better than if all think the same way.

The nurses that care for me, loved the new bullets to heart-pen design. I glued on the tip to the canister so they are solid. see the YouTube and photo at https://davidboje.com/blacksmith



 Click here for video on how to do this yourself

We leave tomorrow for flight Amsterdam, then to Athens, then to Kos Island, where we catch a ferry boat to Tilos Island. With layovers, and flight time, its 24 hours, and throw in the time difference (Greece is 9 hours ahead of us), its 24 hours travel, add 3 hours before leave airport Houston), as Wonder Woman calculates it, 27.

June 6 2022 Monday --> 2nd day in Houston
Had a wonderful acupuncture treatment, and it helped the pain in legs and Charley horse cramps. 

I am have wonderful time in Houston with Grace Ann. We walked to wonderful Thai Restaurant from MD Anderson. It just opened, not even a sign out front. Food amazing, and we were only ones inside, Service great. Fresh art on the wall. Guy looks like the owner, and on right is Wonder Woman. After we walked all the way to our Air B&B, as healthy as can be.

Living the Spice Life (Jun 6 2022 - Houston)

May 18, 2022 Wednesday --> 2nd day for Bakhtin meets Enthinkment Circle presentations to
Malmö University Sweden via Zoom. 

Starting to get more insights into the 4 Who's by bounding them through Bakhtin's Architectonic Dialogism.

What is the Riddle of Participative Thinking in Bakhtin’s Architectonic Dialogism?  May 16, 18, & 19, 2022
 Slide set for the 3 days
Malmö University

Bakhtin meets Enthinkment Circle - YouTube (filmed May 15, posted May 17 2022)

Question: Do I loose myself in the eventing of daily life?
Or, Am I living each moment of my Living Story deeply and ethically-answerably?

The Pravda-truth, as Bakhtin calls it, is embodied in my encounters in once-occurrent eventness of Being. Very different from Istina-truth which is merely reflection (see slide set for definitions)

My questions are about the ways of mindfulness and what Bakhtin is getting at


My Bakhtinian interpretation of 7 Antenarrative Processes I have been developing since 2001 book on Narrative Methods
Blue hearts are Istina-truth, and the Why of Being symbolized by this strange animal is Pravda-truth. The blue pill is from movie, The Matrix, and its about the simulacra of representation and illusion taken to heart as what's true. The red pill, Neo takes from Morpheus and descends deeper and deeper into the rabbit hole, only to discover his own identity, and his life purpose.

As I do my Jainism walking meditations, and recite the Om AR-Hum Namah mantra, I concentrate on breath-in and breath-out, and make each step deliberate to the rhythm and sound of the mantra. It means I am Inner Divinity. It is 7th chakra, and saying it is so different than prayers to external God-head, who is out there, or up there, but not really in me.  see 7 Chakras
Many spiritual approaches have their mantras and chakras, and these have different sounds, colors, symbols, and meanings. Chakras I meditate on are from Gurudev Shree Chitrabhanu's (1979: 90-91) book: The Psychology of Enlightenment: Meditations on the Seven Energy Centers.  He has a meditation on becoming a Jain Seer. I am integrating this with my shamanic practitioner practices (https://davidboje.com/shamanic) and with my conversations with Mikhail Bakhtin's writings.

I keep integrating.

1.WHAT –’ BLUE PILL=ISTINA  theoretical-assumptions REFLECTING facts, opinions, silos called ‘epistemology are emotive-volitional tones, so settled forming GAP with BEING
2.WHENBLUE PILL=ISTINA REFLECTING settled assumptions of past events of history (retrospection) at GAP with BEING
3.WISH - BLUE PILL=ISTINA REFLECTING settled assumptions of varied Bets invested in Future projects (plots) after ante-up, at GAP with BEING
4.WHYRED PILL= PRAVDA RADICAL REFLEXIVITY UNSETTLING & uncovering what covered in this Once-Occurrent Eventness of BEING, inquires called ‘ontology’, at GAP with participants, the inquirer is also a  participant
5.WANTS – Emergences of Emotive-Volitional Tones: retrospection-to-past &/or arriving-from-future (prospection) sensemaking at GAP with BEING
6.WHO – 4 Who’s asking for or driving each story or narrative with emotive-volitional tone forces
7.WHERE BLUE PILL=ISTINA REFLECTING wild hunches, abductions, 6th sense, the eternal timeless where of the cosmos, settled at GAP with BEING

As I stay in once-occurrent event of Being, I am no longer escaping into illusion. Stuff comes up: memories, stuck events from my past, worries about the future. My choice is to either embrace and process, or stuff them down into my gut. As I process, I return to once-occurrent Being-->PRAVDA, with a different identity.

Yesterday I put on my Vietnam veteran's cap, and went to the border of Texas and Mexico. Grace Ann and I were applying in person to renew Global Entry passes that were expiring. I had to recount the memories of my teen years, the jail time, for possession of illegal substance. It was beer, illegal for those under age of 21 to possess and or consume. I did both at ages 16 to 18, and that and fingering the judge, got me put into jail. Not really a trial, more of a punishment for my acting out.  I had a record when I was inducted into the US Army April 2, 1968.  It is weird I went to Vietnam, to war,  April 2nd 1969, but at age 18 was not considered old enough to drink. I also drove without a license, after mine was suspended, and so on. The induction officer, said, the US Government would expunge my juvenile record in exchange for changing from 2 years of service to 3 years. That extra year was a bargain I accepted in exchange for my record being sealed. After 911, Homeland Security unsealed all the records, computerized them, and thus, I was having to recount my WHEN, my history.  According to the rule, a copy of all court orders such cases must be on file, but these events occurring in 1966 had no file, none I knew about. 

There is however a paper I signed, 'to never ever return to the State of Washington, for the rest of my life' in exchange for a get out of jail pass, and a flight to the State of New York, to be in the custody of my dad and his new wife. Dad had deserted the family, when I was 14, leaving his family to fend for themselves on welfare food stamps. I moved out at 17 lived on my own, working at Montgomery Wards tire shop (Wards is no more). I loved my job and the freedom it brought me. I drove a 56 Mercury, with a 3 speed transmission, I installed myself, and a motor I had rebuilt. I was drinking, and it became a problem. My uncle Vernon, a deputy Sheriff, would teach me object lessons, locking me sober, in a drunk tank. That too is an event of once-occurrent event-ness of Being. I did not know mantras or chakras then, I was just angry, and acting out in Being was what I did to cope.

Now, I use mantras to get attuned to the ecology, to connect my Ego-self to Eco-who, to focus on healing the stuckness of the past, free myself into the here-and-now, and take a different path to the future. I stopped drinking alcohol some 27 years ago, and here I am reliving my past. Perhaps some stuckness still needs healing.

I got the Global Reentry approval. Not easy. Had everything to do with Being-in-the-moment, while not falling into the past, and getting lost in old identities.

 
May 13, 2022 Friday ---> Healing from 4th Stage Prostate Cancer is Possible. Yesterday I received very good news. I have passed a first phase treatment threshold. I have been been busy since my last post, giving seminars on Zoom, filming another episode of Enthinkment Circle, and another episode of True Storytelling, and just living life. Wonder Woman keeps caring for me, and people keep praying form me.  Here is a story to communicate what's happening.

Rabbits and Turtles Storys the medical oncology doctor explained it in story form. It's like testing for the number of rabbits (fast moving cancer cells) and turtles (slow moving), to see what character they are (mild or aggressive).  The tests may capture more turtles, since they move slower, but rabbits are fast and move quickly and are harder to catch. You might test negative, but did not catch the turtles or the rabbits with aggressive characteristics. I invited this renown researcher and doctor to co-author an ethnography I am submitting to the Journal of Organizational Ethnography. It will be about medical semiotics and putting highly technical knowledge into language that lay persons can understand. It is about the doctor working with the patient, first to educate them and then to make them a co-partner in the treatment. 

The round of testing done has results with extremely good news. I am not out of the woods, but I passed the first threshold of a clinical trial for a new wonder drug (see earlier posts). There were many pretests done when the trial began a month ago, and four viles of blood drawn yesterday to see how my body was reacting. I will report on just one test. My PSA score is now even lower than a month ago.

Boje’s PSA Scores 2022 (Standard Range 0.0-4.0 ng/mL)

Jan 13 26.8

Mar 3  9.1

Apr 1    1.5

Apr 11  0.8

May 12  0.2

 

The Turtles and Rabbits adventure has just begun. There are 18 months, and radiation has not begun. What it means is the new wonder drug is doing it's thing. Lowering my testosterone to 0.2 so the cancer colony has to stop its colonization of my body and concentrate on its own survival. It's not just the new medicine, the 20 some new results of four tubes of blood drawn, tested, and interpreted mean that the raw food meals prepared by Wonder Woman and her loving support, plus all the jogging, resistance-band exercises to keep up muscle tone and keep the right weight (now an amazing 157 pounds), and the spiritual meditation with shamanic drumming and Jain mantras, plus all the prayer work of many people of many faiths around the world has resulted in all hope. In this first of several threshold gates on the adventure path, I am in that 10% of the distribution of the population, who by doing mind body spirit practices in cooperation with cutting edge team of doctors from varied fields can do in foot ball what they call a 'Hail Mary.' In David Trafimow's language of statistics, I am in the part of the distribution that has good attitude, excellent nutrition, and doing the physical exercise to receive best result of the medical treatments. In short, by stopping my couch potato ways, and going from vegan to raw food vegan, and from sort of spiritual to full on spiritual, and reaching out for communities of spiritual support, there is hope of healing with minimal side-effects.  That means extended quality of life. You can get healed, but be miserable physically and mentally, not living a quality of life.

In chasing after Turtles and Rabbits, there an several threshold gateways to pass through on this adventure. It will take 18 months of this to deal not just with stage 4 prostate cancer, but its spread to the lymph node chain in new colonies, and a less aggressive small cancer on right kidney. Since the main colony is having to regroup it cannot afford to keep colonizing. Next gate is to after our second honey moon on a Greek island.  We return to see if PSA and other tests (too many to list) are holding firm. If so, I go through the radiation gate, which is where the beleaguered prostate colony cells that did not quit and exit my body are encouraged to do so. Then, the next gate is the surrounding tissue of the organ. More pre and post tests, then deal with the lymph nodes, and finally the kidney cancer.

Another result, around April 8th a vile of blood was drawn to test if the cancers were passed genetically from my parents to me, and are of a sort that can pass from me to my children and grand children. Important stuff!.

A could weeks ago, I got a message from genetics doctor possibly reworded by a lawyer, that was mostly impossible to sort out. It did say 'negative results' but I was waiting for a phone consultation to tell me more. I asked one of the highly trained masters' RN to interpret the medical jargon and the legalese language. 
The genes I inherited could be BRCA1, BRCA2, and HOXB13. These make proteins that affect the DNA, telling them how fast to divide. So it is possible that combinations of inherited (15% probability), and environment (85% probability) are involved. The test is for the inherited not the environmental (that is not for Agent Orange, not for my own life style choices of being a former smoker, being couch potato, eating fast food at McDonald's, or stuck in Los Angeles traffic inhaling mercury from car fumes, and so on) Both heredity and environmental hazard could be affecting the BRCA1, BRCA2, and HOXB13.  Negative result is just for the hereditary component, and much of the environmental aspect is not passed on. This does nto mean that my childrent and grandchildren are immune, and need to live with care and wisdom.

All the best to you. Thanks for your prayers and meditations. 

 


May 6, 2022 Friday --> What is my Spiritual Experience of Stage 4 Cancer? In a word its Metanoia.


Kevin Grant in his dissertation (to which I was advisor), defines Metanoia, as a personal transformation that comes through a spiritual experience.

It took place on February 15th 2022. I have had Metanoia experiences over the 74 years, and the one I had recently is the 'Little Buddha' experience while doing a shamanic drumming journey with Jaguar song by a curanderos (male healer) who is apprenticing with a Mexican master healer. FYI curanderas is term for female healers.

The Feb 15 Metanoia spiritual experience facilitated by the curanderos-in-training, was one of the most powerful Metanoia experiences I had. I journeyed as as normally do in shamanic events, to lower world, and Great White Shark took me to the red sanctuary (there are others there). I let the colors of various lights wash over me, and then entered and went to the place that is like Star Trek transporter (beaming someone up to that mother ship). On the transporter was a 'Little Buddha' a child-like figure, facing skyward, with a big grin, totally serene, calm, and peaceful. I asked if there was a message for me. "No more belt, wear loose fitting clothing."  I took this to mean what it meant, to wear tunics with draw strings, and to be in that gentle, smiling, serene, attitude of emotion as I go through more tests, more treatment.  In subsequent session, a week later Feb Feb 22nd, I took same path as the curanderos shaman in training, sang and drummed, and this time Big Mahavira appeared, and I was shorter than a few inches and he reached the sky. You see I am Jain, migrating from Catholic, that then was in first marriage (by contract with mother-in-law forbidden to raise 3 children Catholic, and had to attend only the Methodist church), but after say 7 years of marriage migrated to Four Square church in Culver City, CA, where I led a men's group, and was go to guy to organize church events, and my daughter grew into a young teen and led one bible group, and family went to home study group, and led one of our own. One day, I was excommunicated from the Four Square Church (that was called New Life Fellowship, and still exists). Short story: since I was teaching in Management Department at UCLA, the pastor and his wife, who had been siphoning money from the building fund, feared getting caught by a business type. Of course, I was no accountant and had no access to their double books, but they had the fear. I was called into the office before service and the pastor said, "God spoke to me. You are to take your family now and leave the church, never return, and never speak to another member of this church about it, ever." I replied, "God did not speak to me." He was unmoved, and I left with the family, and then and there, we had no friends at all in Los Angeles, all were part of the Four Square (Aimee Semple McPherson, was its founder). She gave divine healing services in the 1920s and 1930s, with thousands of followers.


Sister Aimee delivered healing services, in which the blind could see, the lame could walk, and so on.  But in the modern times, Four Square was not popular, so only the insiders, me among them, knew the roots of New Life Fellowship were in Four Square evangelical, charismatic traditions.

Truth be told Metanoia has its roots in Christian spirituality, when a person reaches the end of their rope or hits rock bottom (no capacity to fix the challenges). And this did describe me when I had the 'Little Buddha' Metanoia event-experience. The result of such a deep spiritual experience is a change in behavior and in emotions that had been so overwhelming.

In Christian circles, Metanoia is a journey described in Psalm 25. I will give you the NIV version, since it is from my own bible, and it begins with 'Of David' (my parents' name for me):

     Of David.

In you, Lord my God,
    I put my trust.

I trust in you;
    do not let me be put to shame,
    nor let my enemies triumph over me.
No one who hopes in you
    will ever be put to shame,
but shame will come on those
    who are treacherous without cause.

Show me your ways, Lord,
    teach me your paths.
Guide me in your truth and teach me,
    for you are God my Savior,
    and my hope is in you all day long.
Remember, Lord, your great mercy and love,
    for they are from of old.
Do not remember the sins of my youth
    and my rebellious ways;
according to your love remember me,
    for you, Lord, are good.

Good and upright is the Lord;
    therefore he instructs sinners in his ways.
He guides the humble in what is right
    and teaches them his way.
10 All the ways of the Lord are loving and faithful
    toward those who keep the demands of his covenant.
11 For the sake of your name, Lord,
    forgive my iniquity, though it is great.

12 Who, then, are those who fear the Lord?
    He will instruct them in the ways they should choose.[b]
13 They will spend their days in prosperity,
    and their descendants will inherit the land.
14 The Lord confides in those who fear him;
    he makes his covenant known to them.
15 My eyes are ever on the Lord,
    for only he will release my feet from the snare.

16 Turn to me and be gracious to me,
    for I am lonely and afflicted.
17 Relieve the troubles of my heart
    and free me from my anguish.
18 Look on my affliction and my distress
    and take away all my sins.
19 See how numerous are my enemies
    and how fiercely they hate me!

20 Guard my life and rescue me;
    do not let me be put to shame,
    for I take refuge in you.
21 May integrity and uprightness protect me,
    because my hope, Lord,[c] is in you.

22 Deliver Israel, O God,
    from all their troubles!

Footnotes

  1. Psalm 25:1 This psalm is an acrostic poem, the verses of which begin with the successive letters of the Hebrew alphabet.



The Feb 15 2022 event of the Metanoia took place when I was diagnosed with Stage 2 prostate cancer, months before it was re-diagnosed to be stage 4.

My earlier Metanoia experience took place about 1982 or so, then my brother Steve, took my first wife and I (about to divorce) from Staten Island to Long Island, and the crowd literally pushed me and her to the front of the room where a Charismatic Catholic sister, did a healing for our marriage. We were both slain-in-the-spirit, fell into the catcher's arms. I experience a bright light energy, like a lightning flash, that penetrated my forehead, and I passed out. We did not know what to make of it and separated, her staying in Staten Island with mother-in-law, and me returning without family to LA. A year later, about 12 years into the marriage, she called and wanted to reconcile with Christian counseling. I flew to NY, and an evangelical church (neither 4 Square nor Charismatic Catholic) did take a collection raising the money for the airfare for family to fly back to LA. That is when we settled after a few moved near the Four Square Church, and were eventually excommunicated for being a threat to the financial pilfering of pastor and wife. That was not a Metanoia experience. 

Second Metanoia happened when I was  professor at UCLA, and it was clear from the dean and tenure committee, I would not get tenure, and was invited to leave. It happened bout 1985 at UCLA in Anderson School of Management. I knelt in my office, and prayed, God give me sign: do I stay with storytelling or with simple statistical studies to hold on to my family, my career, my life. I did the thing where you put your finger at random in the NIV illustrated bible (eyes closed) and it opened to pp. 10-11, to an illustration and text titled "Understanding the Bible."  It had three parts in a diagram: 1. Understand, 2. Explain, and 3. Apply. In the Undersan chart it has categories:

1. Setting
2. Purpose
3. Form
4. Context
5. Words

Under Form, was my answer: all about history, letters, and poetry (in short, this was storytelling, not statistics).
Being skeptical, science type, I knelt again, and said, 'OK, I need a more definite sign.' I took a break and went to Potlatch (name for snack place) and put a quarter and dime in the machine to get some Fritos. Instead of one bag, the spiral mechanism turned and turned, and dumped 12 bags into the bin. That was the answer: storytelling since 12 is a biblical number, not a statistic.  Still the skeptic, the next day, I way the fellow refilling the machine. I asked, "is it possible if I put in my coins, that more than one bag would spin into the bin."  His reply, "mechanically impossible for that to happen."

Another one happened in 1987. I had left UCLA, thinking my career in academics had ended. I started a business with two church folks. It was called Personnel For Printers. We were placing printers in LA. Back story: We tried to find a a church similar to Four Square but right and true. We found one, and had no money to pay the rent on house, or to have food in the house. This Metanoia took place about 1985, and without us requesting it, that pastor showed up with the exact amount we need to live another month.

In 1988 I got a job teaching at Loyola Marymount University, and financial situation settled down, but that wonderful church fell apart in leader struggles, and once again we are invited to leave, and this time marriage about 1994 when totally bust, never reconciled, divorce was finalized. 

In 1996 I moved to New Mexico, after marrying Grace Ann (Wonder Woman) and was on a path of Jainism, departing Catholic Charismatic, Methodist, and Four Square.  I was also returned to my grandmother Wilda roots, in indigenous spirituality. In Jainism, no creator God, and their is inner divinity in each person (if they choose). In short, a viery major shift in belief systems, and it would seem a Metanoia spiritual experience, that eventum, can happen in a number of spiritual paths.

May 5, 2022 Thursday —>Genetic Test Results  
Today I received information regarding genetic testing results fo hereditary causes of my stage four prostate cancer based on my history of metastatic prostate cancer.
 
Boje’s genetic test results indicate no apparent mutations for the ATM, ATR, BRCA1, BRCA2, BRIP1, CHEK2, EPCAM, FANCA, GEN1, HOXB13, MLH1, MSH2, MSH6, NBN, PALB2, PMS2, RAD51C, RAD51D and TP53 genes. This result is a negative result, however it does not completely rule out a hereditary form of cancer in the Boje family (children & grandchildren). These negative results significantly reduce the likelihood of a hereditary form of prostate cancer.
 
While this genetic test includes analysis of genes related to hereditary forms of prostate cancer, it does not rule out the possibility of a mutation in a gene not analyzed or a mutation in one of these genes in other Boje family members. If there remains a significant Boje family history of cancer, those relatives and/or the patient may benefit from genetic counseling which they can discuss with their healthcare providers.
 
Boje family members may remain at an elevated risk for cancer based on the Boje family history of cancer.

General population cancer screening includes colonoscopies beginning at age 45-50, mammography beginning at age 40, and discussion of prostate cancer screening beginning at age 40-45. Younger ages of cancer diagnosis in the family may warrant a more tailored cancer screening approach potentially beginning at a younger age or more frequently. Family members should discuss their cancer family history with a healthcare provider to ensure the most appropriate risk management recommendations.


May 4, 2022 Wednesday
- I participate in many discourse worlds. Sitting in Mountain View hospital, waiting to check in with score of others seeking blood work, or CT scans, and so on.This is a political world of mask policies, many medical worlds of different sorts science thinking (surgery, radiation, ADT medical oncology, integrative medicine, and so on).  Here I sit, also participating still in the Military world, the Agent Orange chemical in the air, water, and soil of my Vietnam War history. I am grateful for the thousands of dollars a month the Veterans Administration agency is now sending me, but would prefer a healthy prostate stage 4 cancer, spread to lymph node chain, and a different sort of  kidney cancer (with its smaller tumor).  Thankful I can participate in the sexual world of intimacy with the miracles of modern medicine, and hold my pee thanks to that miracle of medicine.  I got the blood IV from a wonderful nurse and because I was so good, she gave me a choice of stickers, some with Hot Wheels, but I chose Wonder Woman.

Grateful I participate in the spiritual world of Jainism, the shamanic drumming world of the hollow bone seer. So many worlds I participate in, I am drawn to Mikhail Bakhtin's architectonic dialogism, to find my centrality in multiple worlds of discourses, interanimating one another (ethical, aesthetic, & cognitive). These three discourses not at all the same as Immanuel Kant's abstract universalizing, declaring space and time to be outside this world, and we the people inside but one world. 

A PRIMER ON ANTENARRATIVE PROCESSES

This is a way I relate my own antenarrative processes to masterful discourse work of Mikhail Bakhtin.  Storytelling is taking into account how the antenarrative processes are Mycelium-like myriad worlds of discourse, constitutive of 'living stories' as well as of 'narrative mushrooms.'  Put simply, antenarrative processes do transform discourse worlds into living stories and narratives emplotments.  For example, I participate in these worlds of discourse (and more worlds besides these):

1. Wonder Woman, Grace Ann Rosile, romantic love, soul mates...
2. Heaven on Earth weekly sessions with Ken Long, doing True Storytelling Circles
3. True Storytelling Institute (TSI) sessions with Jens Larsen, Grace Ann Rosile, Jim Sibel, and Lena Bruun
4. Shamanic Drumming weekly sessions I facilitate
5. Enthinkment Circle weekly sessions exploring the thinking of Louis Ralph Pondy
6. Gaia-listening and Terrestrial Ethics world
with professors from Denmark: Ann Starbæk Bager, Kenneth Mølbjerg Jørgensen, and Anete Mikkala Camille Strand meets now and again
7. Annual Quantum Storytelling Conference each December
8. Prostate cancer world with so many scientific specialties in a culture of so many cancer discourses
... and many more worlds I participate in, doing participative thinking in each, and together.

What's true?  Each world of discourse has its way of truth-sekking. Bakhtin has two Russian words for truth that answer so much about getting form many worlds of discourse to 'true storytelling' (Larsen, Boje, & Bruun, 2021), not just one dogmatic truth, but for Bakhtin, a 'participative thinking' (Grace Ann calls it ensemble storytelling), about 'what's true,' with at least these two sorts of truth:

1. ISTINA --> means trying to isolate content-truth from sense-truth, which leads only to dialectic called epistemological, then to argument, to the cracked-
, I call the BENEATH- antenarrative process # 1.



2. PRAVDA --> means synthetic-truth in the 'once-occurent event-of-Being,' that compellent event of act-performing ethical answerability, a very special kind of participative thinking across so many different worlds. This in antenarrative process terms, depicted by the Nautilus-spiral process of Being #4 because what's true is uncovered in once-occurent event-of-Being in act-performing thinking. Yes, Nautilus has intelligence, perhaps more than so-called rational human beings are capable of thinking.


Note: All four hearts point to Being (34 process) depicted in the Nautilus-Spiral

BECOMING is the double antenarrative process # 5 because there is a becoming from historical thinking, so retrospective, looking backward from the the present to the past (see below, the BEFORE-). And there is prospective thinking about bets on the future (see below, the BETS-).  Why two, because time is two directional, and from time to time, we do mindful breathing to not be thinking, just experiencing breath-in and breath-out, not overthinking, aware of wht is unfolding in the here-and-now (see Nautilus-spiral process of Being #4).


This is the Evolving Theoretical Model with 7 Antenarrative Processes, and Little Buddha (aka, Mahavira in my spiritual philosophy, in #7)

BEFORE- antenarrative process # 2 is all about historical thinking, and recoving Little Wow Moments of success from stuck moments of rumination about things like trauma or PTSD.

BETS- antenarrative process # 3 is all about intentional, desire-thinking in which if you play cards you know how to ante-up in the betting process. Careful betting can turn to greed, wiser antes are sustainable.

BEYOND- antenarrative process # 7 is is spiritual thinking, quantum storytelling (not denial of spiritual), not the religious thinking Kant was doing to banish time and space from Being (i.e. deontological). Something more intuitive, what C. S. Peirce called abduction, or in practice terms, wild hunches or intelligent guesses in need of inductive testing and some deductive thinking in the A-I-D triad (Boje & Rosile, 2020).

Bakhtin is amenable to what I have been calling the four Who's, each a consciousness I participate in its discourse-world. Bakhtin asks Who is Thinking?. These are four I call the antenarrative process of
BETWEEN- antenarrative process # 6 as I do participate in in 'deed-performing thinking' in each Who:
1. Ego-Who, means a consciousness of self
2. We-Who, means a consciousness of the social, family and friends, which can become quite oppressive or liberating
3. Corporate-Who (Corp-Who, for short), means all kinds of organization thinking I get caught up in, not just business, but also government, medical, education, military, and so on. Lots of hierarchical thinking, not the participative thinking Bakhtin imagines possible
4. Ecological-Who (Eco-Who, for short), means the intelligence of Nature, Gaia and the Terrestrial, like how a flock of birds can turn this way and that in mid-flight, how Mycelium fungi chains connect the roots of trees in the network of threads (hyphae) more complex than the human brain or the Internet, and sometimes mushrooms grow, otherwise just makes soil fertile doing the real work of rejuvenation, renewal, and planetary digestion, perhaps oldest natural living system.

As they say in Ghost busters, 'don't cross the streams' and then they do to form hybrids of more antenarrative processes than the seven I have studied since 2001 book.

Please See Antenarrative.com for hybrids of more processes I am exploring

May 3, 2022 Tuesday - Good News from the Veteran's Administration

I received 100% score on my interview, my paperwork, blood work, and the information I submitted about my tour of service in Vietnam. I don't want to get into amounts of $$$. I am just darn grateful that it worked out for me. So if you are a veteran with prostate cancer, it is definitely worth looking into.

Grandfather Hackberry Tree May 3 2022
This the Grandfather Hackberry Tree (as I call this intelligent life form). It is at the East Mesa, at what was once a stock pond, mostly likely used by the Overland Stage, Pat Garrett and Billy the Kid.  I care for the pond, picking up illegal dumping, and the daily assortment of plastic bottles and beer and liquor bottles.  I like to do my part because in a few months the Monsoon rains will come, and the New Mexico Spadefoot Toads will dig out of their burrows and mate.  And every few years the New Mexico Fairy Shrimp will hatch from cysts lying about, too small to see with the naked eye. Not every year, lest the birds figure out a routine.  There are no Hackberry Trees on the mesa, you have to go into the Alameda Arroyo to find others of its species.  They have seeds but the soil is too depleted of mycellium fungi life networks to support seeds sprouting. Asking permission, with respect, I collect some of the thousands of seeds lying aobut that won;t go to seed.  I think it is not just depleted soil, but the lack of care of illegal dumping, the shooting galley, and sometimes, the cutting down of such trees, not for any good reason, just people who don't think much about how life is interconnected.  So I often drum for the Hackberry Tree, and try to tidy up. Do some shamanic drumming for people that request it and for my own situation.  We have a relationship, over the years.  I enjoy the seasons. I try to remember I was a delinquent, in my youth. I try to think of the generations of fathers, mothers, their children, even grandchildren, coming to this pond, and doing the off-roading, the shooting gallery, and all the boozing it up. Was I so very different at a young age? Now I know better, that off-roading and illegal dumping, and cutting or burning trees has an impact on Nature.  All the knowledge about sustainability, and all the many regulations about not doing these practices, all for naught. Codes enforcers from city, county, state, and federal agency, work out of an office, with outdated maps, so no sheriff, ranger, police, or codes enforcer can tell for sure, who has jurisdiction. Millions of dollars spent on non-enforcement. Conservancy agents collecting money to upgrade land elsewhere.  The old ways live on. Adults and children form elsewhere come to the East Mesa, a lawless place, and call it freedom. So I just tidy up, smile at the so-called rational animal, and wonder at the intelligence of the fungi, underground being all cooperative.


Did more writing on Bakhtin chronology, so I can sort what to put in an article and into a doctoral seminar.

In this context, I am interested in Bakhtin's defiance of Stalin for his dialogism and for his spiritual conversations in the Bakhtin Circle.

CHRONOLOGY is WORK IN PROGRESS for Various Purposes

Dates

Places

Bakhtin’s Situation

1895

Oryol City (aka, Orel) in Russia

Bakhtin born 16 Nov in Oryol City, 229 mi. south/southwest of Moscow

1914-1917

St. Petersburg (now Leningrad)

Attended and graduated from University of St. Petersburg

At age 16, stricken with osteomyelitis (inflammation of bone tissue)

1917

Oryol City

Russian Revolution broke out

1918

Oryol City

Published 2-page article: ‘Art and Responsibility’ which with two other essays accepted 1920-1923 & 1924 but publication postponed would become part of 1990 Art and Answerability book in English.

Formed Bakhtin Circle with:

Lev Vasilievich Pumpianskii (1891-1940),

Ivan Ivanovich Sollertinskii (1902-1944)

1920-1921

Vitebsk City in Belarus

Bakhtin Circle expanded, extablish the ‘dialogic’ concept

Matvei Isaevich Kagan (1889-1937),

Pavel Nikolaevich Medvedev (1891-1938),

Valentin Nikolaevich Voloshinov (1895-1936)

1921 Bakhtin Married his nurse, Elena Aleksandrovna Okoloveich, who was part of Bakhtin Circle and she scribed parts of 1919-1921 notebooks stored in a woodshed until 1960s, and became 1993 Toward a Philosophy of the Act book

1924-1928

St. Petersburg (now Leningrad)

1928 Medvedev’s book is couched in Marxist language so it can be published

1929

 

Voloshinov’s book is couched in Marxist language so it can be published

Bakhtin publishes Problems of Dostoevsky’s Poetics book

Joseph Stalin becomes dictator

Bakhtin arrested by Stalinists, charged with practicing religious beliefs, exiled, and sentenced without trial for 10 years northern Siberia ‘Kazakh Autonomous Soviet Socialist Republic’ along with several members of Bakhtinian Circle. Able to commute sentence to 6 years in Kazakhstan, for health reasons and favorable book review of Dostoevsky’s Poetics by party member

1930-1936

Kustani City

1930 he received permission to travel to the city of Kustani to find work himself, instead of being assigned a job by the government. Got position as an accountant in a local government office and helped train workers in the area in clerical skills.

1934 exile officially ended, but Bakhtin opted to remain in Kustani for another two years.

1936-1937

Saransk City (Russia); town of Savelovo (outside Moscow)

Bakhtin returned to Russia in 1936, settled in Saransk and took a teaching job at Mordovian Pedagogical Institute.

1937, he moved to the town of Savelovo; being only a hundred kilometers outside Moscow (was able to once again appear in intellectual and academic gatherings)

Bakhtin has worked on a book: The Novel of Education and Its Significance in the History of Realism, but tragically the publishing house was blown up in German invasion, the manuscript lost; thinking it being published, he had used pages of the original for cigarettes 

1938

Savelovo

Bakhtin’s right leg is amputated

He kept working form 1937 & 1938 on the ‘chronotopes’ and ‘discourse and the novel’ essays that would become part of Dialogic Imagination book.

Gave lecture in Moscow at Gorsky Institute

1940

 

Finished dissertation on Francois Rabelais, but due to war it was not defended

Bakhtin taught German in school

1945

 

Rabelais and his World, book published

1951

 

Defended dissertation on Rabelais

1952-1953

 

Bakhtin is writing material for a book ‘the Genres of Speech’ which after his death would become part with other pieces in (1986) Speech Genres & Other Essays

1971

 

13 Dec, his wife, Elena Aleksandrovna Okolovich, died

1975

 

The Dialogic Imagination, book published in Russian

1975

Moscow, Russia

Bakhtin died 7 Mar. in Moscow


Mushrooms and Prostate Cancer


Advisory: Consult your doctors. Just eating mushrooms in salad as a vegetable is not a big deal, but it depends how they are grown, in what medium, since they pick up those minerals, pesticides, fertilizers, etc. So the source matters. However, when you take power capsules (or teas), then you can alter the treatment modality (ADT, radiation, chemo, surgery, etc.), so you need to be sure of what you are doing.

Changing diet to healthy foods and more exercise has been shown to correlate with better medical treatment results. Many people ask me to check out mushrooms effect on lowering risk of prostate cancer or supplementing medical treatment regimes.


There is good evidence that diet matters, and including mushrooms is good way to lower the risk.


Click Here fore YouTube
This is a report of study showing positive impact of those who are eating mushrooms 3 or more times a week had a 17% lower risk of prostate cancer.

My story: My loving daughter told me a story about a man she met who took Lion's Mane with no medical treatments and cured his prostate cancer. I took some store-bought Lion's Mane, without cooking them first, and my body system did not agree with my choice. Better to follow specific cooking instructions (do not wash with water, brush them off; do not cook in oils). See for example this advice.  Since then, my doctors told me to hold off on Lion's Mane until after the clinical trial, since supplements of this sort can impact the efficacy.

Then there are specific kinds of mushrooms, usually taken in powder form that are most helpful with prostate cancer (before, during treatment, and countering remission). However, consult your doctor, to insure these do not interfere with what your treatment is supposed to achieve.

White Button Mushrooms and Prostate Cancer

Click Here for YouTube
Dr. Przemyslaw Twardowski, Director of Clinical Research, Urology and Urologic Oncology, and Professor of Medical Oncology and Urologic Oncology, reveals a novel clinical trial at Saint John's Cancer Institute in Santa Monica, CA involving prostate cancer patients and the use of mushroom supplements to boost immunity. Clinical trial for early relapse in prostate cancer. White Button Mushroom free dried to be in tablet form.

Good news. I got cleared to eat the White Button Mushroom in salads, but not to take any powdered/pill supplement form until after my clinical trial.

Click Here for YouTube

Can white button mushrooms stop prostate cancer recurrence? In a recent clinical trial at City of Hope, two patients experienced tremendous success with tablets made from concentrated white button mushrooms. Watch this incredible story unfold, and help us continue this groundbreaking research into natural therapies: http://www.cityofhope.org/superfoods. For more information on our prostate cancer program, go to https://www.cityofhope.org/clinical-program/prostate-cancer

Turkey Tail Mushroom potential

Click Here for Amazing Storytelling From the Heart
Stage 4 Breast Cancer survivor 84 yrs. mom. Perhaps the most amazing story of mushrooms and breast cancer cure is from Paul Stamets whose mother was cured with some medical pills and Turkey Tail Mushroom  at TedMed Conference.


Click Here for YouTube
Turkey Tail Mushrooms (aka Trametes versicolor) is one of the most well known and well research of all medicinal mushrooms. And for good reason- it contains powerful compounds for health and has been used for centuries to help us fight back against anything that tries to take us down. Turkey Tail Mushrooms help the immune system. This is research done in Australia.



May 2, 2022, Monday
, Awesome Zoom meetings - Lots of Zoom love

Great to be running again, no more flu, back to exercises.

Zoomed with Ann Starbæk Bager, Kenneth Mølbjerg Jørgensen, and Anete Mikkala Camille Strand. We planned their in-the-flesh sessions in Aalborg 16 to 29 May, with me Zooming in on 16, 18, & 19 May to converse with Ph.D. students about their dissertation. My focus will be participative thinking in the dialogic work of Mikhail Bakhtin.

Here are the slides for my parts of the Training event on Bakhtin Architectonic Dialogism

What is architectonic dialogism? It is our unique participation in Being, in once-occurrent event, and we decide to be a bystander or to intervene in the on-going event, such as to help a person who is suffering, or do something about the ecology.

My idea is to link Bakhtin's theory and practice of Participative Thinking to the formation of the Bakhtin Circle, and to the places he moved to and was exiled to when Joseph Stalin took a dislike to dialogism in general, and to meetings that included a spiritual component, in particular.

Mikhail Bakhtin was 16 Nov 1895 in Oryol City (aka Orel) in Russia. Age 16 stricken with osteomyelitis (inflammation of his leg bone).

At age 23 published 2 page article ‘Art and Responsibility’ and started the Bakhtin Circle with Pumpiankii and Sollertinskii. Age 25 (1920) Bakhtin Circle expanded, adding Kagan, Medvedev, and Voloshinov. Age 26 (1921) he married his nurse, Elena Alexsandrovna. She was part of the Circle, scribing in notebooks when Bakhtin too much in pain.

1920-1921- Bakhtin was writing in his composition notebooks, his theory of Architectonic Dialogism, with concepts such as, aesthetic seeing, participative thinking.  The notebooks rotted away, eatten mice for many years, and were published by Bakhtin admirers. The story I am telling is why this book was so delayed in Russia printing (1985-1986) and finally translated 1993 into English, as Toward a Philosophy of the Act.

Bakhtin, Mikhail. M. (1993). Toward a Philosophy of the Act. First written in notebooks (1919-1921), first published 1985-1986 as part of the work FIlosofiia I sotsiologiia nauki I tekhnike: Exhegodnik. The 1990 translation by V. Liapunov; ed. M. Holquist and V. Liapunov). Austin, TX: University of Texas Press.

As the story goes, it has to do with Stalin's rise to power, and an edict banning meetings that included discussion of religious beliefs or went against the doctrine of historical dialectical materialism. Bakhtin preferred his dialogism approach to that of any dialectic, be in Kant, or Marx.

1929, Bakhtin was about age 34, when Joseph Stalin became dictator, and Stalinists charged Bakhtin Circle with practicing religious beliefs, exiled Bakhtin and several members to Siberia (Kazakh Autonomous Soviet Socialist Republic’) for 10 years.  Bakhtin in ill health, appealed, and thanks to favorable book review of his book Dostoevsky Poetics, sentence reduced to 6 years, and went instead to city of Kustani to find work in the government, and did find job as an accountant. 1934 exile was over, but stayed a few more years.

1936, Bakhtin settled in Saransk, about 100 kilometers outside Moscow, and close enough he could attend intellectual gatherings. See

slides for more on this topic.


It does not mean I live and act for my own sake.



Zoomed from 10 to noon with the Heaven on Earth session of True Storytelling, on the topic of 'Profane.' Our group welcomed a new member, Jack Appleton, who is also a member of Enthinkment Circle. Each Monday we take a word, and each of us shares a story and our thinking about it. We wait for five to ten seconds in silence in-between the telling, to let what we call together-listening to the together-telling be contemplated. So many groups are telling only, without much listening or contemplation. I like the participative thinking of what Mikhail Bakhtin calls 'architectonic dialogism.'  It is listening, telling, and acting from the center of values from which issues the answerability of performed acts of thinking and doing. My story was about profane language and getting in trouble.

BOJE—> This is an embarrassing story about profane language and business language.

I was teaching Small Business Consulting class to undergraduates. I focus on ethnography - how to listen and jot down the verbatim phrasing people in business use, and not the summary.   There was a female doctoral student, an expert in Bakhtinian Russian Formalism and ethnography, assisting me. She took verbatim notes, and so did the student consultants. Big difference in the listening skills. Students were not picking up the phasing or tonality. Result: students took many more sessions with a client to understand (to actually hear) client’s problems. Students gave solutions without listening to clients, which led to conflict.

So I got bright idea to give derivation of F-word
Just watched George Carlin’s treatment of F—.
F-word.

The S-word hit the fan. I  got called on the carpet for violation of moral turpitude clause in my teaching contact of NMSU.

“A phrase that describes wicked, deviant behavior constituting an immoral, unethical, or unjust departure from ordinary social standards such that it would shock a community.” In short, profane profantity.

Department head-  while staring at a lengthy document, said ‘David, sign this paper, we are removing you from the classroom.”

David —> What is this about?

Department Head. I did an interview and this is the transcript of a young lady who wants to drop you class,  for your moral turpitude. You are never to talk to her, which would be retaliation,…”

The Department Head did not want to hear my side of the story. An open and shut case.  My side of it, the student did not want to pay $50 fee to change section, having learned course rigorous, and having not met with the client to do any field notes. It was past date of drop add, to pick up an easier course.

I was called to the dean’s office.

Dean —> ‘I have decided to take you off undergrad teaching. You will only teach doctoral students.’

Boje —> ‘OK, I agree. I will not teach undergrads, only upper division courses.’

Dean—> Taken aback by my congenial positivity, thought about it. ‘OK, maybe that’s not a great idea.’

‘We will review your course evaluations each term, for any mention of you using the F-word. David, you are learned, you do not need to do this, say the word, can do it differently. ‘

Lesson learned.


George Carlin 1978 excerpt the F-word

Zoomed with Jain Chanting group and did a wonderful study of Vajra Castle (see book by Pramoda Chitabhanu (2001) Jain Symbols, Ceremonies, and Practices. 4th Edition.  This is a sacred space with definite expectations for linguistic adherence to expectations. After the meeting, in the informal after-session, I got some important help in understanding a mantra I learned from Gurudev Shree Chitrabhanu

see 7 Chakras
Om ArHum Namah is a mantra I recite out loud or silently often during the day. In Jainism, this mantra of 7th chakra (the crown) is about bowing down to one's own inner divinity. This is a huge shift in thinking from my Catholic upbringing.  I have been practicing Jain for 26 years.  Now I am digging into the Sanskrit meaning of what I am doing.

Om (or Aum) means completeness. It is a symbolic word, meaning the very sound of the word, its vibrations matter. In the Aum version of Om, the letter 'a' has three meanings.

a1 +a2 + a3 + u + m.

a1 is for Arihanta (which is the Jain name given to me by Gurudev) some 25 years ago.  It means conquer of inner enemies, and the deeper meaning, that I have no enemies, every living being, even the cancer cells, are my friend, teaching me something (such as how to control my emotions, better exercise, how to find joy and happiness in each moment, understanding my spiritual purpose, and so on).

a2 is for Ashariri which means without body (SIddha).

a3 is for Acharya

U is for Upadhyaya
m is for Muni

In short, all the letters put together vibrate Aum (Om).  I am studying what the letters and sounds of the symbolic word mean in Jain philosophy.

Second word is ArHum, which is itself pregnant with Sanskrit alphabet sounds and vibrations that are mystically present ((Chitabhanu, P. 2001: 50). This is almost the same as the drawing Pramoda Chitabhanu (2001: 5) has.

ArHum Jain Symbol part of 7th
            chakra mantra
The word ArHum is a mantra
representing all vowel and consonant
sounds used in the Sanskrit alphabet. The
first vowel in the Sanskrit alphabet is “a” and
the last consonant is “h.” Therefore, while
meditating on this mantra, one focuses on the
silent sound of the universe (More).


Had more good news, a wonderful message from my friend Sharda, these Jain prayers and mantras tailored for me:
Dear friend Sharda was in the chanting group. She reminded me that words matter:  Do not say 'I have stage 4 prostate cancer and am like a woman with no testosterone.' Rather, say, 'I am being treated for prostate cancer.' Ok

Jai jinendra dear Arihantabha
kohum who am I
Sohum i am that
Nahum  No that is not me

Watch the thoughts and words- what are we owning - identifying with - how is that serving my highest god my intention to be healed be peace

Identification - disidentification
What if
I am not David ( limited conditioning of Egoic learned self

I have roles as David Boje PHD but I am more than my roles - more than my legacy /
I have a mind but I am more than my Mind
I have emotions but I’m am not my emotions
I have thoughts and concepts but I am more than…
Sohum the flame 🔥 of the candle not the wax

Re identify with the wholeness the indivisible everlasting unlimited energy of Soul
I am one with the light
I am whole and complete And heal through the state of peace - of acceptance - of calm 🙏
Namaste dear one --> Sharda

Sharda asks, I Keep wondering if you would find additional strength from the Dr Joe Dispenza book I left with you when I visited with Carm - You Are The Placebo.
I read the book and the find much value in it, and I also participate in the medical treatments and the spiritual practices of which the Sohum (I am that), Nahum (I am not that), and Kohum (who am I) emanate from the heart chakra in Gurudev Shree Chitrabhanu's writings. I am cast into this world that has no external God, creator, it just was and will be the world I participate in.
April 18 2022 to May 1 2022

I caught took time off from online note-booking to be with DayQuil and NyQuil.  It felt good to go through the flu cycle while keeping on my regiment of the new and improved ADT treatments. I notice my testicles are shrinking and look forward to post-flu.

April 17, 2022, Sunday. Boje enjoying Easter, flying his kite.





April 16, 2022, Saturday.

I learned a secret that changed my thinking publishing stuff. I spent my academic career thinking about publishing, and was not able to think of anything else. I put all my energy into publishing this or that, and had no energy left. Instead of publishing more stuff, in June, Grace Ann Rosile and I am going to Tilos Island in Greece, and experience the rhythm of the water rolling the stones on the beach. Actually I don't need to go to Tilos to experience a peaceful state of mind. I can watch the spring leaves of a Hackberry tree in New Mexico turn toward the sun.


I am studying Sanskrit words. First is 'Trushna,' which means overcoming craving, putting all one's energy into that. I look at this latest publication, I hold in the palm of my hand: "Is this the think I have used so much of my life energy to get?" Something lies concealed, undisclosed, an illusion, a hallow deluded thinking. Remove hundreds of publications and I see my true self. I become attuned to what is changeless, instead of the temporary clinging to publishing more stuff. What's true seeps into my consciousness, into what we are calling Enthinkment (https://enthinkment.com). Another Sanskrit word, 'Anitya', means transient, ever-changing. Publications are so temporary. A Final related Sanskrit word, 'Nitya,' means what is permanent, what is changeless. Not publications. The publishing habit is hard to break free of. The photo of stones rolling in the rhythm of the clear ocean water.
...Tilos Island stones rolling in waves of clear ocean water


April 14, 2022, Thursday. Today I began the Clinical Trial (Phase II) and took my apalutamide tablets. A month's supply is $14,253 and I must fly to Houston to MD Anderson Cancer Clinic, and pick them up in person.


Today I did my jogging, meditated in shamanic way at Grandfather Hackberry Tree, who has his first spring bloom.  And I started resistance band exercise regime. I must keep up my strength mentally and physically or I invite many side effects such as loss of executive cognitive function, hot flashes, mood swings, and so on.

Today, I polished up my Harley Davidson motorcycle. It was built in 2005 with a neighbor, and rebuilt two years later, with the same friend. I packed up all my motorcycle jackets, pants, and collection of Harley books, and gave them all to my good neighbor. Here is a photo of the second build.

The 2nd
              build of Harley Davidson
My neighbor will take great care of the Harley we built together. I know it is in good hands.  I have no more attachment to it.  I am free of temporary things.  Friendship with a neighbor is changeless, the motorcycle is transitory.


Phase II trials test if my type of High Risk Prostate Cancer (HRPC) responds to the new treatment. Apalutamide (Erleada®) is a next-generation AR inhibitor which was approved in 2018 for treatment of non-metastatic castration-resistant prostate cancer (CRPC). It has been successful in all three kinds of Trials, and has both European approval since 2018, and US FDA approval since 2020, but only for that kind of cancer. So only 15% of cases of PC have the severe CRPC crop up.  I am in the 85% of cases of HRPC that has yet to be tested. I have been on a first-generation treatment Androgen-Deprivation-Therapy (ADT) which accomplished chemical castration. It succeeded in dropping PSA score from 26.8 to 0.8 in just three months. Today I started second generation Apalutamide, and have good odds of staying in the 85% group, and good odds of an actual cure.

In June Grace Ann and I go to Greek Island of Tilos, and rest. In July, a month of testing in Houston. In about August 2022 I start about 28 days of external beam radiation targeted on the HRPC colony.  If all goes well a cure, if not we deal with that.

April 13, Wednesday 2022. I will begin to take Apalutamide tables, the generic name for trade name drug Erleada
® (https://www.erleada.com). The brand name for Apalutamide is Erleada®.

Yesterday I received my apalutamide (240mg) tablets and will take four tablets a day for about 18 months. In the clinical trial I am starting, the objective is to get European and FDA approval for apalutamide to be used as treatment in non-CRPC patients, in combination with radiation therapy. As part of this new clinical trial the objective is to compare my own High Risk Prostate Cancer (HRPC) condition with cases of metastatic Castration-Resistant Prostate Cancer (mCRPC). Currently mCRPC are approved in Europe treatment since 2018 and received FDA approval in US in 2021 for mCRPC treatment.   

 

Apalutamide has already gone through the three phases of Clinical Trials for mHSPC: Phase I trials test if a new treatment is safe and look for the best way to give the treatment. Doctors also look for signs that cancer responds to the new treatment. Phase II trials test if one type of cancer responds to the new treatment. Phase III trials test if a new treatment is better than a standard treatment (MD Anderson CC).

 

I am enrolled in a Phase II Clinical Trial, comparing HRPC (my case situation) with mHSPC (which has already been shown to work effectively in those cases). The Phase II Clinical Trial I enrolled in is called ‘Phase II Trial of Primary Radiotherapy with Androgen Ablation with or without Adjuvant Niraparib for Selected High-Risk Locoregional Prostate Cancer.’

 

Apalutamide is not cheap. The cost for Erleada® oral tablet 60 mg is around $14,253 for a supply of 120 tablets, depending on the pharmacy I visit. Prices are for cash paying customers only and are not valid with insurance plans. Erleada® is available as a brand name drug only, a generic version is not yet available. https://www.drugs.com/price-guide/erleada

 

Apalutamide will be provided to me at no cost during this Phase II study. I and my insurance provider are responsible for the cost of the androgen suppression medication and radiation therapy. It has been pre-approved by Medicare and Blue Cross. If I get assigned to receive AAP + ADT in combination with niraparib, abiraterone acetate and niraparib it is also provided at no cost during this study. If needed, me and the insurance provider will be responsible for the cost of prednisone.


Apalutamide Background History

 

In Europe, Apalutamide (Erleada®) is a next-generation AR inhibitor which was approved in 2018 for treatment of non-metastatic castration-resistant prostate cancer (CRPC) (see Smith et al., 2018). Apalutamide blocks AR activation by competing with androgen binding and preventing AR translocation to the nucleus. It has a 5–10-fold higher binding affinity than the first-generation anti-androgen bicalutamide, which is widely used for PCa patient treatment

 

The Janssen Pharmaceutical Companies of Johnson & Johnson announced Jan 29 2020 that the European Commission (EC) has granted marketing authorization for the expanded use of Erleada® (apalutamide) to include the treatment of adult men with metastatic hormone-sensitive prostate cancer (mHSPC) in combination with androgen deprivation therapy (ADT).

 

Apalutamide (240 mg per day) is undergone double-blind Phase 3 trial, with randomly assigned patients with metastatic, castration-sensitive prostate cancer (mCRPC) compared to placebo, added to Androgen Deprivation Therapy (ADT). The end points were radiographic progression-free survival and overall survival (Chi et al., 2019: 13).

 

Apalutamide, a new-generation oral androgen receptor inhibitor, is the first nonhormone therapy drug to receive FDA approval for the treatment of nonmetastatic CRPC (https://www.erleada.com).

 

Erleada achieved an 86 percent reduction in PSA at 12 months in the majority of patients, shows post-hoc analysis of Phase III study. Sep 13, 2021 (https://www.erleada.com).

 

“Apalutamide (ErleadaTM) is a next-generation oral androgen receptor (AR) inhibitor that is being developed by Janssen for the treatment of prostate cancer (PC). It binds directly to the ligand-binding domain of the AR and blocks the effects of androgens. In February 2018, apalutamide received its first global approval in the USA for the treatment of non-metastatic castration-resistant PC (nmCRPC)” (Al-Salama, 2018: 699).

 

Saad et al. (2021) report on a Phase 3 randomized control trial that resulted in a greater radiographic PFS for patients randomized to Apalutamide/Abiraterone (22.6 months) compared to 16.6 months for Abiraterone/placebo (HR 0.69; 95%CI 0.58-0.83; p<0.0001). However, OS was similar between both groups (36.2 months for Apalutamide/Abiraterone vs. 33.7 months with Abiraterone/placebo; HR 0.95; 95%CI: 0.81-1.11).


Al-Salama, Z. T. (2018). Apalutamide: first global approval. Drugs, 78(6): 699-705.


Chi, K. N., Agarwal, N., Bjartell, A., Chung, B. H., Pereira de Santana Gomes, A. J., Given, R., ... & Chowdhury, S. (2019). Apalutamide for metastatic, castration-sensitive prostate cancer. New England Journal of Medicine, 381(1), 13-24.  AccessedApr 13 2022 at  https://www.nejm.org/doi/full/10.1056/NEJMoa1903307


Saad, F., Efstathiou, E., Attard, G., Flaig, T. W., Franke, F., Goodman Jr, O. B., ... & Rathkopf, D. E. (2021). Apalutamide plus abiraterone acetate and prednisone versus placebo plus abiraterone and prednisone in metastatic, castration-resistant prostate cancer (ACIS): a randomised, placebo-controlled, double-blind, multinational, phase 3 study. The Lancet Oncology22(11), 1541-1559. Accessed Apr 13, 2022 at https://facultyopinions.com/article/740905744

Smith, M. R., Saad, F., Chowdhury, S., Oudard, S., Hadaschik, B. A., Graff, J. N., ... & Small, E. J. (2018). Apalutamide treatment and metastasis-free survival in prostate cancer. New England Journal of Medicine, 378(15), 1408-1418. Accessed Apr 13, 2022 at https://www.nejm.org/doi/full/10.1056/nejmoa1715546

 

April 12, Tuesday 2022 
Here is the latest thinking on the matter (Enthinkment 2 Quick Link).
Today we meet with the doctor for the Clinical Trials who is managing all my meds and bringing in radiation, when its time in the Trials.  I want to summarize the Enthinkment (E1) notes I made based on Heidegger, 1950 book: What is Called Thinking) (hereafter, abbreviated WcT) during all the 50 some sorts of tests I took on Monday. I am following Heidegger's process of addressing the early thinkers, but instead of his focus on Parmenides, I am looking at Hippocrates, the Father of Modern Medicine, and its most ethical standpoint. For example in his Hippocratic Oath, it says, "
I will abstain from all intentional wrong-doing and harm, especially from abusing the bodies of man or woman, bond or free."

Hippocrates (c. 460-360 BC) is considered to be a great thinkers of Greece, and of the entire Western Ways of Knowing (WWOK). Hippocrates was a master thinker, whose knowledge was deeper rooted than his disciples who came after him. What lies behind his philosophy and ethics, that posits this early thinking? Those who follow after Hippocrates today, are in a retrogression.  One meaning (interpretation) of retrogression is the process of returning to an earlier state, typically a worse one. However, another meaning is a way of thinking, a phenomenological return to a former and less complex level of development or organization.  The point is to retrace the questioning of a thinker's own thinking, and from nowhere else. To understand a thinker's thinking in their own terms is not the same as taking up the thinker's quest in terms of its core problematic.  The first is near impossible, and the second is quite rare, and the most difficult for us to accomplish. This strand of thinking is related to a more recent strand of Enthinkment by my mentor.

My book on my mentor, Louis Ralph Pondy (just sent last week to Routledge publisher for copy editing, download for free until the editing and quarries work is done).  I re-read all his published work, all the class notes I acquired as a doctoral student, our work in books and the (Pondy & Boje, 1980, Bringing Mind Back In) paper. I take up Pondy's way of questining, in the unique habitat and locus of his and our thinking (Heidegger, WcT, p. 185). What is the problematic that fascinated Pondy's own thinking? It is probable that Pondy did not entirely understand his own thinking, so anyone following and retracing it, including me, will come up short. It is impossible to understand Pondy thinking as he understood himself, and to trace his way of questioning. Yet, I do take up his way of questioning, and return to my experiences in the habitat and locus of thinking.

Pondy responded with a word, 'Enthinkment' (E1), a word he made up himself, a word not in any dictionary, or ever uttered before. He invented a form of speech, and set before us, the enthinkment art form. In an age of the typewriter, before the laptop, when iPhone was unthought, and before computer programs controlled human behavior in organizations and in society, Pondy spoke differently from the accepted Weickian Enactment (E2).  Saying Enthinkment (E1) for the very first time, situated in a sequence of words, contrasted with Enactment (E2). It was only a debased form of use, some carelessness, a joke, some idle talk with his good friend, Karl Weick.  What does Weick (1969/1979: 164) say:

“The concept of an enacted environment is not synonymous with the concept of a perceived environment, even though citations of the concept would suggest that it is. If a perceived environment were the essence of enactment then, as Lou Pondy suggested, the phenomenon would have been called enthinkment not enactment.”


This interpretation of enactment, perceived environment, and enthinkment has many concealments. We at Enthinkment Circle, summon Enthinkment to be admitted to (and too), its own essence and nature, unraveled. We ask, what is the essential nature of enthinkment? What is the essence and existence of Enthinkment? Our quest is not to fall short of Enthinkment's proper use, and to unconceal its radiance, its uses that have never been adequately clarified.  We do an antenarrative process, not the customary motto, Enactment, not Enthinkment!  Rather there are concealed uses of Enthinkment that hail to us, useful ways of Enthinkment as yet unthought that haunt us. We quest for Enthinkment to be brought into view, not as the stepchild of Enactment, but in its own problematic. Enthinkment retraced as the dawning of something worth thinking about,  something radiating, and as yet still too crude to be useful.

Two Heideggerian questions follow (WcT, p. 189):  What Enthinkment is?  Who Enthinkment is?  Who is speaking Enthinkment? What is most thought-provoking about Enthinkment that gives us food for thought? The what questions and the who questions are intriguing. What's Enthinkment, tells us of radiant ways of thinking. The who questions defer to Pondy the thinker, his ways of questioning accepted Management Thought. Above all, Pondy was about the organizational level of analysis, how to do essential thinking for complex adaptive system to adapt to changing environments. He followed his line of thinking in his dissertation, and most cases were dead-ends. The personality level and the group level of analysis kept intruding on the organizational level, thwarting his search for an adaptive harmonizing force.

Can we define more closely what there is that Enthinkment is saying?  And, is it useful? Enthinkment is not a dialectical 'yes' or 'no' kind of thinking. Pondy never did that sort of thinking. Pondy brought forth thinking that was useful in unifying different ways of thinking about complex adaptive systems, so its uses at an organizational level become manifest.  His way of thinking in no way exhausted Enthinkment;s usefulness.  The word Enthinkment was spoken once, yet the radiance ways of enlightenment are concealed, and remain unspoken.  To state a word, Enthinkment, and to engage and to think are quite different meanings.  Stating and thinking are brought into a thoughtful dialogue. There is no correct us of Enthinkment since it is not in any dictionary. And the very beginning of Western (WWOK) thinking is implicated in habits of Enthinkment.  The translation of Enthinkment (E1) as a weak form of Enactment (E2) leaves much concealed, many questions unanswered.  Antenarratively, the process of thinking, needs an entire theory of Enthinkment.

The Four Hearts of True Storytelling are Helpful in this Inquiry. 

...

What have we learned from the Four Hearts? Enactment sensemaking is spontaneous, and then retrospectively done by 'who', and recently prospective sensemaking occurs by more 'who's' (Weick, 2012). But is this way of Enactment (E2) what's perceived? Our 2022 way of hearts, is not the ancient ways. In the time of the Ancient Greeks "we take it to heart' and "taking-to-heart" in Enactment, exactly as it is, without a make over' and retrospectively to be "glad at heart to keep in memory" (WcT, pp. 203-204).  What is at issue, how the ways of story-telling and the ways of laying something in place to be useful, were combined in one act.   Today, people say they are 'taking-to-heart' what's true, what correct, what's right and just. But, I suggest 'this 2022 'taken-to-hear' is at the root of Western logic.

What would Life be without Enthinkment? There would be no Age of Enlightenment, no dialectical materialism, no doctrine of the Trinity, no Atomic Energy Commission, and no automobile. These are developments from thinking that Heidegger lists (WcT, p. 204).  Without Enthinkment, the world would be quite different than it is today.  ancient Greece, and I would add in 'Indigenous Ways of Knowing' (IWOK) 'taken-to-heart' was nto the kind of shallow mindfulness of 2022.  Always good to escape into the spontaneity of of here-and-now, but to stay there without thinking is another matter. IWOK meant to tell as a story-teller, and to lay before the community what comes to light in doing something with it seasonally, or daily, or even hourly.

Beneath-heart inquires into ways Enthinkment has its logic, and is the essence of thinking this way or that way begins to emerge.  But rather than translation we invite transpection (Pondy & Boje, 1980).  Why? To go Beneath the spoken word, revealing something about the ways of Enthinkment. It is not just speaking the word Enthinkment but:

"... activating the organ of speech such as the mouth and tongue, the teeth, the larynx and the lungs and so forth" (WcT, p. 198).
That would be Enactment (E2), not Enthinkment, and there is a difference between saying something and what lies Beneath. Enthinkment does not just refer to language, or to the spoken, or to the five senses of sensemaking Enactment.
Pondy (1986) fessed up to the 'sham' of his own language games. Pondy did not do the usual thesis, antithesis, and synthesis. Pondy was not Kantian or a German Idealist (WcT, p. 201).

Before-heart inquires back into the past, the habitat, the who's of history, which first summons Enthinkment to be spoken for the very first time.  Weick thoughtfully tells us an event of history.  Is this Pondy's own way of Enthinkment?  Is it the way Pondy the thinker did his thinking about Management Thought? What is that problematic he kept returning to his entire career? To retrace the Before of Pondy's Enthinkment, we need to study physics, be versed in Anthropology and language games, and understand game theory of complex adaptive systems. Even then, we that follow, are not up to the task. In other word, humility is required, lest we presume to understand Pondy better than Pondy understood himself.

Bets-heart inquires into the ways of thinking that has to follow after, and the thinking about the future that arrives (WcT, p. 202). Bets on the future is a thinking that has to follow after, and see what follows that (WcT, p. 202).

Enthinkment lies in future arriving, coming near, its arrival concerns us and what "letting lie-before-us: means (WcT, p. 222). Enthinkment in the ways of the Bets, has to follow up what arrives.


Beyond-heart inquires into Pondy's ways of combining intuition and thinking, going beyond by never accepting a superficial sort of thinking as the final answer. Pondy tured his sense inward, to the Beyond, to see what the eyes did not see, to hear what the ears could not hear, to touch the untochable, and so on.  .

Nautilus-spiraling The four hearts point to Being that exists, what's true is existential, and yet there are essences of thinking still concealed. The Being of a freedom of thinking to reveal something concealed. What does Being-Enthinkment mean? This venting of of Enthinkment, a process fo thinking through to a dead-end, being honest about the failure of that thinking, and going a new direction, unfurling another way of thinking about the problem. Pondy's habit force, a careful way of exploring, shaking the foundations of Management Thought. We retrace his unfurling thinking, and only a minute fraction is explored. What lies in the unexplored furrows is like seeing the trunk, branches, and leaves of the tree, but blind to the roots. Pondy say afresh each time, here and now, what he was not thinking, and by extension what Management Thought was not thinking, but could be thinking. A great thinker sees afresh each time what lies there in-Being, and what's missing in action (WcT, p. 201). The freedom of movement of a thinker, to engage with what lies there, in its presence, opens lines of thinking. "making-to-appear and letting-lie0before" so something hidden from language is apparent in the realm of Being (WcT, p. 202).


Hippocrates (c. 460-360 BC) was taking-to-heart ethics in his practice. And I have just been enrolled in a Clinical Trial that promises a cure for my Stage 4 Prostate Cancer.  Today i meet a modern day Hippocrates, the head of Medical Oncology who will explain his thinking.  And I will take that thinking to heart.

April 11 Monday  2022 
You are not going to believe how many baseline tests were conducted today to see if I qualify to participate in a Clinical Trail, that could well be a cure.  Good News on some tests and flags on others. Today, nine tubes of blood drawn to do lots of different tests. In all some twenty tests, many with ten to twenty sub-tests of various physical and chemical functioning of my body. Based on these tests,  I will learn later this evening if I qualify or don't qualify to participate in the Clinical Trial, that could be a potential cure of HGPC (High Grade Prostate Cancer). Here are the main PSA results:

PSA is good news. Today the PSA score dropped to a 0.8.

Boje’s PSA

Jan 13 2022

Mar 3 2022

Apr 1 2022

Apr 11 2022

Standard Range

0.0-4.0 ng/mL

26.8

9.1

1.5

0.8


The reason for the Clinical Trials, is Prostate Cancer (PC) colony is working on its alternative to the  Androgen Deprivation Therapy (ADT) which is depriving the colony of its key resource: Testosterone.
PC is a complex adaptive system (CAS), and no one medical strategy will be a cure. The colony keeps adapting. It is therefore quite usual for the PSA to start rising again once the PC colony develops its counter-strategy.  It's a game of chess, with new meds the PC colony has no counter-strategy, as yet. In short, the Clinical Trial is just-in-time to implement second generation Androgen Deprivation medication, and then engage about 28 days of External Beam Radiation Therapy.  Here is a breakdown of how low my Testosterone has dropped in three months of ADT. This is a L (low) flag, which is what is necessary at this point in the treatment. I have Testosterone of a 50 year old woman, which I hope makes me a kinder and gentler human being.

Component Boje's Value Standard Range Flag
Testoster Tot <3 ng/dL L
Reference Ranges:

Male: Age 20 - 49 249 - 836
Age >=50 193 - 740

Female: Age 20 - 49 8 - 48
Age >=50 3 - 41

At 8PM, I got the call. I have successfully qualified to be in the Clinical Trials.



April 10 Sunday 2022 - How does a cure work?  I have HGPC (High Grade Prostate Cancer) with a Gleason score of (5+5=10). Thanks to Wonder Woman I am being tested for eligibility in a Clinical Trial at MD Anderson Cancer Clinic.  I will take another bone scan (to be within required number of days for eligibility), an EKG to be sure my heart is strong enough for 18 months of treatments, and 18 months of follow-up. If all goes well in Phase 1 (1st 18 months), the cancer can be cured, end of story. But, if I am the unlucky 15% with Castration-Resistant Prostate Cancer (CRPC), then I get a different regime of treatment, and cure is less likely. I am already on Androgen Deprivation Therapy (ADT) with no signs of CRPC, so my antenarrative bet on the future, coming up 'cure' is good.  In Phase 2, I take one of two drugs in search of FDA approval. Which ever my luck of the draw in random trial, there is a Phase 3, if needed, to care for me.

Storyteller's Tale of Prostate Cancer (PC) Here is what I am thinking is what's true for me.  April 2nd 1969 to April 2nd 1970 I was a sergeant in US Army serving in Vietnam War zone.  During that time I was exposed to Agent Orange manufactured by nine US corporations, most of it by Monsanto (now owned by Bayer AG). The military operation was called 'Ranch Hand" from 1961 to 1970. It was at its peak during my 1969-1970 tour. About two weeks after I deployed byack to the states, on April 15, 1970 Operation Ranch Hand was suspended. Agent Orange was used to disambiguate, a process for reducing uncertainty in the war. This is military speak for destroy the crops of the enemy, destroy places they could hide along roadways, etc.

US sprayed 20 million gallons of Agent Orange herbicides in Vietnam, Laos, and Cambodia.  Some was sprayed from aircraft (helicopters & C-123 planes), and other batches by trucks and hand-sprayers around the U.S. military base. This included the base where I was stationed for 12 months. It was in the soil I walked on, the air I breathed, and the water we drank in our barracks. Agent Orange is a chemical concoction contain Dioxin.  Some such chemicals had been used in industrial agriculture in the US since 1940s, and sprayed along rail road tracks and power line corridors to kept down the forest undergrowth.  Used in excess concentrations, it was already known to cause a number of cancers, and get passed along in birth defects.  Dioxin enters to food chian of not only the enemy but of the occupying force.

Ironically, I earned by Ph.D. at the same University of Illinois at Urbana-Champaign, as   Professor Arthur Galston, a botanists and bioethicist. He did the original study of how to use Dioxin and TCDD (etc.) to allow early flowering of soy beans, and to help along rice and broad leaf crops. He was aghast when he discovered his formulae, in high concentration, was being used to create Agent Orange to destroy the food corpos of that Japanese in World War II, then used in Vietnam, Cambodia, and Laos. Secretary Dan Rusk advised my favorite president John F. Kennedy to initiate Operation Ranch Hand in Vietnam. 

Early on claims by US veterans were being denied. Monsanto and 8 other chemical corporations hired lawyers and paid for junk science to show that Agent Orange and cancer were coincidental, by chance. No surprise, the National Academy of Medicine decided to agree with the chemical companies.  When that failed, the chemical corporations claimed they were following orders of US military. A lot of lying occurred, hiding evidence, deceiving Congress, and the public.  Department of Veterans Affairs upheld 486 out of 39,419 claims in the early 1990s. Eventually class action suits broke through, but the nine chemical corporations settled out of court, to avoid actual full payment to claimants. 

Let's get back to PC.  The clinical trial I may get enrolled in (if the pre-tests make me eligible) is like a game of chess.  You see PC is an entire colony of millions of PC that have mutated, and by this time since my 1969-1970 exposure to Agent Orange, are mutations of mutations of mutations. In other words, generations of mutations.  The PC colony is known as a 'complex adaptive system', so when you try one intervention treatment, the colony adapts, and develops its own counter-measure. For example, I am in ADP therapy, which brought PSA from 26.8 to a 1.5 in just three months. However, studies show the High Grade PC (HGPC) is already producing alternatives to the lower testosterone levels.  Playing chess with HGPC, means coming up with several moves ahead, to outwit a very intelligent adversary. If the MD Anderson team of specialist doctors can outwit the moves of HGPC with some amazing new medications, then some External Beam targeted radiation treatments can wipe out the HGPC colony.  The complex adaptive system has had decades to build its reserves. And medicine has been chasing after a cure for decades.  My bet on the future is with the team of doctors, plus my surrenders to spirit, and the persistence of Wonder Woman.

This is a radically different strategy than making a single move, or a combination of treatments, and hoping the complex adaptive system of PC will surrender. The old strategy was to be concerned with the systemic spread of PC. In the approach I am signing up for, we don't worry about spread, because these are new colonies.  We go after the main colony, then get the other fledgling colonies, in clean up treatments.

I have some caveats. I could have inherited some gene problems, and it is likely I have encountered the gene mutating abilities of the environment in Agent Orange exposure.  The genes I inherited could be BRCA1, BRCA2, and HOXB13.  they make proteins that affect the DNA, telling sell how fast to divide. So it is possible that combinations of inherited (15% probability), and environment (85% probability) are involved. Both could be affecting the
BRCA1, BRCA2, and HOXB13.

The most current statistics are that about 268,290 new PC cases in the US, of which 34,500 result in death attributed to PC.   That is 1 in 8 (not the usual stat of 1 in 6) get PC during their lifetime. And 1 in 41 dis of PC. But 3.1 million men with PC are still alive and kicking.



April 9 Saturday 2022 - Saturday is very hopeful day in Houston. On Monday I go in for another bone scan, an electrocardiogram, more blood tests. If I pass the tests, then on Tuesday I begin Part I of the Clinical Trial, and start taking the meds for it. I am studying about Hippocrates, who was treating urinary disease before there was the discovery of a gland called the 'prostate.'
..
Hippocrates - c. 460 - 370 BC.

Hippocrates of Kos, Greece, was a Greek physician who is considered the founder of modern medicine. He treated urinianry problems of patients, before there was evena name for 'prostate'  (Johnson, 2021: 22). He taught and practiced medicine throughout his life. He believed diseases were caused by natural causes, rather than by the gods or superstitious beliefs. Disease was not some punishment inflicted by the gods, in Eastern terms, not karma for one's past or current life transgressions. His approach was based on the healing power of nature. I like his ethics:

Hippocrates Oath --" I swear by Apollo Healer, by Asclepius, by Hygieia, by Panacea, and by all the gods and goddesses, making them my witnesses, that I will carry out, according to my ability and judgment, this oath and this indenture.

To hold my teacher in this art equal to my own parents; to make him partner in my livelihood; when he is in need of money to share mine with him; to consider his family as my own brothers, and to teach them this art, if they want to learn it, without fee or indenture; to impart precept, oral instruction, and all other instruction to my own sons, the sons of my teacher, and to indentured pupils who have taken the Healer’s oath, but to nobody else.

I will use those dietary regimens which will benefit my patients according to my greatest ability and judgment, and I will do no harm or injustice to them.[6] Neither will I administer a poison to anybody when asked to do so, nor will I suggest such a course. Similarly I will not give to a woman a pessary to cause abortion. But I will keep pure and holy both my life and my art. I will not use the knife, not even, verily, on sufferers from stone, but I will give place to such as are craftsmen therein.

Into whatsoever houses I enter, I will enter to help the sick, and I will abstain from all intentional wrong-doing and harm, especially from abusing the bodies of man or woman, bond or free. And whatsoever I shall see or hear in the course of my profession, as well as outside my profession in my intercourse with men, if it be what should not be published abroad, I will never divulge, holding such things to be holy secrets.

Now if I carry out this oath, and break it not, may I gain for ever reputation among all men for my life and for my art; but if I break it and forswear myself, may the opposite befall me.[5] – Translation by W.H.S. Jones." (source).




April 8 Friday 2022, I signed the consent form for Phase II Trial of Primary Radiotherapy with Androgen Ablation with or without Adjuvant Niraparib for Selected High-Risk Locoregional Prostate Cancer. Here is some of the fine print in the consent document.
This study will be done in 3 parts. Part 1 (18 months), Part 2 (18 months), Part 3 (it depends).

If you are found to be eligible to participate in this study, during Part 1, you will receive Apa + ADT.

During Part 2, you will receive radiation therapy and will continue to receive Apa + ADT.

In Part 3, the therapy you receive will depend on how many cancer cells remain in the
prostate biopsy sample after receiving the study therapy in Part 1.

The goal of this clinical research study is to learn about the effectiveness of AAP + ADT treatment plus niraparib versus Apa + ADT treatment alone, when given after standard-of-care radiation therapy in select male patients with locally or regionally advanced prostate cancer.Abiraterone acetate is FDA-approved and commercially available for the treatment of certain types of metastatic (has spread) prostate cancer. Prednisone is FDA-approved and commercially available as a corticosteroid. Niraparib is FDA approved and commercially available for the treatment of certain types of cancer, but not prostate cancer. Its use in this study is investigational. It is also investigational to give AAP + ADT in combination with niraparib to male patients with locally or regionally advanced prostate cancer.

Radiation therapy is delivered using FDA-approved and commercially available methods. The study doctor can explain how the study drugs and radiation therapy are designed to work.

The study drugs and radiation therapy may help to control the disease. Future patients may benefit from what is learned. There may be no benefits for you in this study.

I live with cancer cells. It's what's true. I will say, in my case, starting with hormone therapy slowed what I will call the colonizers down, and they are for now, holding fast. The question becomes at such an advanced stage of cancer, is it better to do nothing more than the hormone treatments.  I am a researcher, and the research results for surgery, radiation, and turning around one's lifestyle (diet, exercise, spiritual practices) are not statistically very different. Not in my case.  The main issue is not psychological, and its not about fooling my brain with a placebo effect. Nor is it about escaping from past and future, into the now of mindfulness. It is about finding that 'cure' that a brillian Medical Oncologist said is possible for me.

Can I tolerate and make peace with millions of cancer cells living among by 37.2 living cells of my body. If I feel terrific, run miles a day, take meds to handle the enlarged prostate, and meds for a sex life, why do surgery, why do radiation. This is how my thinking is this day. I have a lot more thinking to do. At my stage of cancer, after surgery and or radiation, the cancer colony will mostly likely return.  If I panic. Most do. Then run to the surgeon, had cut out millions of cancer cells, and millions of healthy adjacent cells. Or go with targeted beam radiation, and avoid the scalpel. Every doctor I talk to opts for plan B (radiation once the hormone treatment does its work).

This doctor on April 7th, put it this way. Forget about your kidney tumor. And for now, forget about the lymph node cancers found in the scans.  The old way of thinking about it, was to control the spread of the cancer.  What I want to do is 'cure' the main colony dwelling in your prostate.  The kidney is a small and different kind of cancer. Don't worry about it.  What is important is to balance 'cure' with 'quality of life.' The lymph node cancers are just setting up their new home, and have a lot to do to make their new home hospitable.  We will work with the prostate colony. Millions of living cells have colonized your prostate. This is an adaptive and agile system.  Whatever we do, the colony will adapt. You are on Androgen Deprivation Therapy (ADT), and in a few months, the prostate colony will figure a way to produce its own androgen to replace the reduction in testosterone levels.  There is a new androgen being used in UK and in US, still in clinical trials, which is a game changer. It counteracts the prostate colony's next move (to make an alternative androgen).  The plan I propose is to get you into a new clinical trial. It's up to you. Grace Ann and I looked at each other, and nodded. This was a plan that gave us hope for a cure. It was coloring outside the lines of the national 'standard of care' to surgical remove the prostate or use standard ADT with external beam radiation.  As the head of Medical Oncology filled in the details, he kept using the word, 'cure.' It was impossible. It was not a placebo.  When it was our turn to speak. I said, I know about complex adaptive systems. I worked with them in organizations my whole life.  I also know, that the statistical approach called p-value is not the cutting edge. Instead of calculating the mean or median of the treatment groups, it is important to look at where a case such as me, is located in the entire distribution.  Our article (Trafimow, Haley, and Boje, 2022) published in the Journal of Evidence Based Medicine, points out how p-values are being misused. 


Trafimow, David; Haley, Usha; Boje, David M. (2022).  Best way not to misuse p values is not to draw definitive conclusions about hypotheses. BMJ Evidence Based Medicine journal. https://ebm.bmj.com/content/early/2022/02/24/bmjebm-2022-111940.abstract 



The Medical Oncologist understood the point before I finished the sentence.  He says, yes, it's worse than that. The government standard setters, take the average of two treatment conditions, and declare that a value.  It's not the right way to think about it.  What's need is to consider you in the overall distribution. You run several miles a day, do 75 push ups each morning, eat vegan, watch your weight, do Qigong, use resistance weight training. Not only is averaging two different things the wrong way to go, and using p-values is not the way to go.  The way to go is to look at your case and do the best thing for you. A cure is possible. He turned to his assistant, 'get professor Boje signed up for that clinical trial. See if he meets all the government criteria, has the necessary tests done.'  Wonder Woman asked, 'does this mean we don't fly back to New Mexico Tomorrow? I would have to change airline reservations, extend stay in the Air B&B, confirm with our house and dog sitter."  The doctor replied, 'we are checking now your eligibility for the trials, and to see if more testing is required.' Wonder Woman, says, 'If it helps David, we will change the reservations and stay over, not just a day, but into next week.' It was Thursday April 7, 2022. Not much happens in a clinic on a Friday.  It was past 5PM and time for people to go home. We left, and using her cell phone, Wonder Woman had changed the airline tickets, confirmed the new return date with the house and dog sitter, and had a message sent to the Air B&B owner.


Do you know what this means. A possible cure for prostate cancer! The possibility, that in less than 18 months, the new androgen blocker would set the prostate colony, that adaptive complex system, into a new direction, and another blocker would be waiting to be sent in. Then the confused colony would be out of moves, and check mate. A cure was feasible, predictable, and I had a new lease on life, a new bet on the future. What I called the antenarrative process, that per-constitutes the new narrative, was happening to me.


I am here-and-now healthy, happy, and terrific in mind body and spirit I am on hormone meds that have contain the cancer cellular colonial aggression. There are a lot of scary books and articles out there. For example, according to Kirby and Patel (2017, Fast Facts: Prostate Cancer), chapters on Management of metastatic prostate cancer, and Management of Castrate-Resistant Prostate Cancer (CRPC), my Androgen Deprivation Therapy (ADP), shots of Lupron every six months, will keep the PSA score at 1.5 of so, for 3 to 18 months. "PSA score will generally start to rise again fairly soon" (IBID. p. 101). Then a different hormone treatment, combined with chemo, can stretch my time to four years or more. At which point the organ gives out, and the colonizing, in my case to the lymph node chain, spells the end of this life. My spiritual practice (Jainism) is reincarnation, so by leading a good life, I have a shot at a better next life, and many more lives till I break free of the cycle of death and rebirth. In short, by Kirby and Patel's (2017) review of the published literature, I don't have long to live. However, as you will see, reports of my pending death are premature.

Here are the latest studies just published with the latest adjustments to the so-called standard of care most clinics and most doctors subscribe to. Here are some terms and definitions used by most studied I reviewed:


Prostate: A Brief History  The Greek meaning of the word prostate, is 'Guardian' the one who stands before as 'Protector.'  Most people don't know what it is, where it's located, or what it does. Talk to different specialists,and you get different answers to the these questions. In 1536, a Venetian anatomist, Niccolò Massa, was first person to discover the prostate gland (Johnson, 2021: 23-24). The prostate secrets fluid that becomes part of semen. Think of the prostate as a kind of switching station to the urethra. On one pathway, the prostate can send urine form the bladder through the urethra. And, on the other pathway, during arousal, the prostate sends sperm from testicles and its own secretions, into the urethra.  Some men achieve organism through prostate massage, known as the 'p-spot'.

PC - prostate cancer in men (1 in 6 men get it), and is most common cancer in men. 1 in 7 women get breast cancer.


  • In US, about 268,490 new cases of prostate cancer.  About 34,500 deaths from prostate cancer Source



Prostate cancer is not as fatal as Pancreatic Cancer:
  • In US, about 62,210 people (32,970 men and 29,240 women) will be diagnosed with pancreatic cancer.
  • In US about 49,830 people (25,970 men and 23,860 women) will die of pancreatic cancersource







HRPC -
high-risk prostate cancer (this is what I have, with Stage 4 PC).
TREATMENTS:

For a century, the main treatment

RP - radical prostatecomy (removal of part or the entire prostate. RP become more popular 'standard of care' with anesthetics, and then with robotic surgery

RT - radiation therapy became an option with advent of radiation technology; there are now several kinds, such as EBRT & BT, and can be used in combination)

EBRT -  external beam radiotherapy

BT - Brachytherapy (a type of radiation) used in combination such as EBRT vs EBRT+BT

ADT - androgen deprivation therapy, approved in mid-1980s

6AS or 18AS - 6 or 18 months of ADT

BO - bilateral orchiectomy (surgically remove one or both testicles). As you will read, for more than half a century, castration has been the standard of care in managing advanced PC patients. This was the dominant standard of care before ADT became available and approved in mid-1980s, surgical castration is bilateral orchiectomy (excision of both testicles), while chemical castration uses pharmaceutical drugs to deactivate the testes. I have met people whose dads had the BO surgery, and nothing else, and actually survived into their 90s.

CC- chemical castration my means of injection such as Lupron - It an now popular alternative to BO in treating

LUTS - Lower urinary tract symptoms (LUTS). LUTS is preferred term for prostatism

IPSS - The International Prostate Symptom Score. IPSS is questionnaire used to gauge LUTS symptoms. (Click here to see the seven questions and rating scales).

BPH - Benign Prostatic Hyperplasia (one of the causes for LUTS, along with Bladder Stone, or PC).

Prostatitis - inflammation of the prostate gland. Prostatitis is classified into I acute, II chronic, III asymptomatic (III A) inflammatory (or IIIB non-inflammatory) prostatitis, and IV chronic pelvic pain syndrome.

PC.  However, beware, there is the other use of CC for suppressing sexual desire in men convicted of sex crimes. Used in prisons. In 1996, California was first state to legalize CC for sex offenders. Florida and Texas have legalized CC, as did countries of Argentina, Denmark, Russia, and South Korea. In all nine US states have passed legislation authorizing use of either CC or BO to deal with sex offender recidivism.


RCT - randomized  clinical trials

MM - multimodal treatment plans that can involve RP, RT, and ADT

QoL - quality of life benefits or outcomes

Female Prostate - In 2001, The Federative Committee on Anatomical Terminology accepted female prostate as a second term for two Skene's glands found in the G-spot area along walls of the the urethra.
Female PC is quite rare (less than 0.003% of female cancers).

A Brief History of How Sciences Changes its Mind About What is Each New Standard of Care

The NCCN (National Comprehensive Cancer Network) sets the 'standard of care' guidelines which most doctors and cancer clinics are following.



The Mean or Median Statistic is not Where a Cure is Found About statistics: most prostate studies report the percentage of people who don't survive after 5 months, after a year, after 4 years. I prefer to look at the fact that parts of the distribution of cases do survive. Most of us actually survive for longer time than the studies follow-up limitation of 10 or 12 or 18 months.  Most studies report the mean of the distribution or the median value.  Big mistake. My case is not the average value of a distribution of cases. If these cancer studies got away from reporting P-values, which many statistical associations now are moving away from, and instead reported the position of people in the actual distribution rather than the mean or median score (see work by David Trafimow), then the so-called standard of care for PC would change.

Standard of Care is A Moving Consensus The United States so-called 'standard of care' is based on an expert panel, consensus on the best evidence-based practice to recommend to the average cases. 
Radical prostatecomy (surgical removal of all or part of an organ, and much of the surrounding tissue) was the 'standard of care' for breast and prostate cancers for over a century. The choices were the dualism of 'watch and do nothing' or go under the surgeon's scalpel.

Finding a Rival Standard of Care Takes Time It was not until much more recent history that a rival 'standard of care' to the great duality (do nothing, or radical prostatecomy) emerged. In the beginning of the twentieth century, doctors experimented by putting radium (radiation) into the urethra and rectum as a palliative alternative to the radical surgery option. I will summarize an excellent history done by
Denmeade, S. R., & Isaacs, J. T. (2002). A history of prostate cancer treatment. Nature Reviews Cancer, 2(5), 389-396. (See That History).


First some definitions. Palliative means, a treatment that relieves suffering or pain, but does not cure the cause of a disease. Then experiments began inserting radium-containing needles in the perineum, rectum, or the bladder (Denmeade & Isaacs, 2002). This treatment was painful to the patient.  Then, in 1970s the radiology breakthrough happened, when Willet Whitmore described using an open implant technique. A radioisotope of iodine, sealed in miniature titanium cylinders was inserted into the prostate, but without any imaging device. Without imaging, this technique would deliver too little or too much radiation to mostly the wrong places.  So Bracytherapy as it was called, declined in use. Another radiology breakthrough took place in 1983 when H. Holm reported implanting radioactive seeds using the image guidance of transrectal ultrasonography
(Denmeade & Isaacs, 2002).  Image guided Brachytherapy treatments emerged as a 'standard of care' that began to rival the century old radical prostatecomy (surgical removal) 'standard of care'.  Since most cancer centers and most private practice doctors had been schooled in the duality (do nothing or radical surgery), it took decades for a rival standard of care to be treated seriously.

Androgen-Ablation Therapy began in the early 1940s, radiation therapy lost popularity as a prostate cancer treatment.  Then in the 1950s, renewed interest in radiation treatment happened when higher-energy cobalt machines could penetrate deeper levels. Anecdotal evidence is not the basis for a national 'standard of care.' Early on, Juan Del Regato reported anecdotal results from a few patients who were apparently 'cured' with the cobalt therapy (Denmeade & Isaacs, 2002).  By the late 1950s, Malcolm Bagshaw and others saw the possibility of a radiation curability for prostate cancer. Without randomized trials, with placebo control groups, the national panel would not set forth a standard of care. However, word spread, the story was out there, a cure for prostate cancer was possible. In the early 1960s, doctors tried combinations of a Cytoreductive Hormonal Therapy and Radiation Therapy as a way to reduce the tumor burden, and create a situation more favorable for external radiation (Denmeade & Isaacs, 2002). It took a while for this external-beam radiation used with Androgen Ablation Therapy to become a rival 'standard of care.' 

As a storytelling research I look at history and the validity of the statistical studies. I question the way statistics are used to make policy decisions, then how doctors and clinics use the 'standard of care' value to make decisions in individual cases.  What's clear is the 'standard of care' a century ago was radical removal of prostate and or testicles, as a way to stop the aggressive cancer colony from spreading. Since mid-1980's with approval of Androgen Deprivation Therapy (ADT), the 'standard of care' has shifted to most of us with PC being put immediately on ADT, then either a Radical Surgery Removal of Prostate, or most recently the standard of care has shifted once again to most doctors (everyone we talked to) recommending radiation plus ADT.  However, there are side-effect to be aware of.

HERE ARE SOME OF THE CURRENT RESEARCH STUDIES:

Denham, J. W., Joseph, D., Lamb, D. S., Spry, N. A., Duchesne, G., Matthews, J., Atkinson, C., Tai, K. H., Christie, D., Kenny, L., Turner, S., Gogna, N. K., Diamond, T., Delahunt, B., Oldmeadow, C., Attia, J., & Steigler, A. (2019). Short-term androgen suppression and radiotherapy versus intermediate-term androgen suppression and radiotherapy, with or without zoledronic acid, in men with locally advanced prostate cancer (TROG 03.04 RADAR): 10-year results from a randomised, phase 3, factorial trial. The Lancet Oncology, 20(2), 267-281. https://doi.org/10.1016/S1470-2045(18)30757-5

Study of optimal duration of androgen suppression for men with locally advanced prostate cancer receiving radiotherapy.

The RADAR trial in a 2 by 2 factorial design with random assignment of 1071 men, (group 1) 12 months of ADT, (group 2) 18 months of zoledronic acid (for those with bone cancer), or (Group 3)  both, and a brachytherapy boost (Group 4).

The mortality results are analyzed in 10-year follow-up. No interactions observed in group 3.

At 10-year follow-up 375 of the 1071 (35%) had died:
The total number of deaths was 375 (200 men receiving 6AS+RT and 175 men receiving 18AS+RT), of which 143 (38%) were attributable to prostate cancer (81 men receiving 6AS+RT and 62 men receiving 18AS+RT).

The study interpretation: “Interpretation: 18 months of androgen suppression plus radiotherapy is a more effective treatment option for locally advanced prostate cancer than 6 months of androgen suppression plus radiotherapy, but the addition of zoledronic acid to this treatment regimen is not beneficial” (p. 267)

When analyzed by duration of androgen suppression, the adjusted cumulative incidence of prostate cancer-specific mortality was 13·3% (95% CI 10·3–16·0) for 6AS+RT versus 9·7% (7·3–12·0) for 18AS+RT, representing an absolute difference of 3·7% (95% CI 0·3–7·1; sub-hazard ratio [sHR] 0·70 [95% CI 0·50–0·98], adjusted p=0·035). The addition of zoledronic acid did not affect prostate cancer-specific mortality; the adjusted cumulative incidence of prostate cancer-specific mortality was 11·2% (95% CI 8·7–13·7) with zoledronic acid vs 11·7% (9·2–14·1) without, representing an absolute difference of −0·5% (95% CI −3·8 to 2·9; sHR 0·95 [95% CI 0·69–1·32], adjusted p=0·78).
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Nabid, Abdenour, et al. "Duration of androgen deprivation therapy in high-risk prostate cancer: a randomized phase III trial." European urology 74.4 (2018): 432-441.

Long-term androgen deprivation therapy (ADT) combined with radiotherapy (RT) is a standard treatment for patients with localized high-risk prostate cancer (HRPC).

630 patients with HRPC were randomized:
310 to pelvic and prostate RT combine 36 months
320 to same RT with 18 months of ADT

Overall Survival (OS) and quality of life (QoL) were measured.

At 9.4 year follow-up

290 of 630 patients had died
147 in group 1 and 143 in group 2

Conclusions
In localized HRPC, our results support that 36 mo is not superior to 18 mo of ADT.

“In this study, we report outcomes from high-risk prostate cancer patients treated with radiotherapy and either 36 or 18 mo of androgen deprivation therapy. There was no difference in survival between the two groups, with the 18-mo group experiencing a better quality of life” (p. 432)


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Schulman, C., Cornel, E., Matveev, V., Tammela, T. L., Schraml, J., Bensadoun, H., ... & Tombal, B. (2016). Intermittent versus continuous androgen deprivation therapy in patients with relapsing or locally advanced prostate cancer: a phase 3b randomised study (ICELAND). European urology, 69(4), 720-727.   https://www.sciencedirect.com/science/article/pii/S030228381500977X

Overall, 86 men died within 5 yr of study entry (44 in the CAD group and 42 in the IAD group) with no difference in OS between groups (p = 0.969) (Fig. 4).

no notable differences in quality of life measures.

“n this open-label trial, IAD and CAD administered after a 6-mo induction with leuprorelin acetate 22.5 mg 3-mo depot demonstrated comparable efficacy, tolerability, and QoL in patients with nonmetastatic locally advanced or relapsing PCa. The principal potential benefits of IAD compared with CAD include reduced drug acquisition costs with comparable OS rates. There were no apparent differences in QoL benefits between the treatment groups”

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Moris, L., Cumberbatch, M. G., Van den Broeck, T., Gandaglia, G., Fossati, N., Kelly, B., ... & Wiegel, T. (2020). Benefits and risks of primary treatments for high-risk localized and locally advanced prostate cancer: an international multidisciplinary systematic review. European urology, 77(5), 614-627.
https://aura.abdn.ac.uk/bitstream/handle/2164/15969/Plass_etal_EURUROL_Benefits_and_risks_AAM.pdf?sequence=1

This is a systematic review of existing literature for high-risk localized and locally advanced prostate cancer for 90 studies published between Jan 2000 and May 2019 that met inclusion criteria.

Radical prostatectomy (RP) and external beam radiotherapy (EBRT, abbrev. to RT) and Brachytherapy (BT) or combine multimodality treatment (MM) were compared. 

Both RT and RP are seen as part of multimodal treatment plans, with possible addition of BT. Randomized Clinical Trials (RCT) were included in the study.

With metastases at 5 or more years follow-up, and cancer-specific mortality. as the outcome variables.

“High levels of evidence exist for EBRT treatment with several RCTs showing superior outcome for adding long-term ADT or BT to EBRT. No clear cut-off can be proposed for RT dose but higher RT doses by means of dose escalation schemes result in an improved biochemical control” (on line).

In short, I am likely to undergo multimodality (MM) treatment.  For high-risk localized and locally advanced prostate can, RP and EBRT and long-term ADT can be recommended as primary treatment.

4 studies wooed no statistical difference between RP and RBRT plus ADT.  27 of 30 studied favored RP to combination of ERBT plus ADT.  Survival ranged from 10% to 28% and from 4% to 8% respectively at 10 year follow-up (favoring RP compared to ERBT plus ADT). However, more sexual dysfunction and urinary incontinence in RP and more GI toxicity after RT.

Conclusion - based on the literature review, both RP as part of multimodal treatment and EBRT plus long-term ADT can be recommended as primary treatment in high-risk and locally advanced prostate cancer.

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Kishan, A. U., Steigler, A., Denham, J. W., Zapatero, A., Guerrero, A., Joseph, D., ... & Romero, T. (2022). Interplay Between Duration of Androgen Deprivation Therapy and External Beam Radiotherapy With or Without a Brachytherapy Boost for Optimal Treatment of High-risk Prostate Cancer: A Patient-Level Data Analysis of 3 Cohorts. JAMA oncology.

Study to determine ADT duration threshold for patients with high-risk prostate cancer receiving EBRT or ERBT with a brachytherapy boost (ERPT+BT).

Retrospective of 3 studies totaling 3410 men withe man age 62-74, with high-risk prostate cancer found significant interaction between treatment type (EBRT vs EBRT+BT) and ADT duration between leads that 6 to less than 18 months, and greater than 18 months.

Patients receiving only ERBT not associate with significant improvements, but with ERBT+BT a longer duration, and with 28 months of ADT improved outcomes.


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Shore, N. D., Antonarakis, E. S., Cookson, M. S., Crawford, E. D., Morgans, A. K., Albala, D. M., ... & Concepcion, R. (2020). Optimizing the role of androgen deprivation therapy in advanced prostate cancer: Challenges beyond the guidelines. The Prostate, 80(6), 527-544.

ADT reduces PC regression, relieves symptoms, and prolongs survival. However, ADT has side effects detrimental to patient’s quality of life, necessitating additional treatments.

A 14 member panel composed of urologic and medical oncologists did expert review of use of ADT in advancePC patients.  They work din 4 separate working groups.

The panel gave recommendations for monitoring PC patients while on ADT and stressed importance of quality of life maintenance.

In my case, the roel of ADT in metastatic castrate-sensitive PC

ADT is the gold standard treatment for metastatic PC.  Panel recommended maintaining patients with metastatic castrate-sensitive prostate cancer (mCSPC) on continuous ADT rather than intermittent ADT, but for certain patients with cardiovascular conditions, reduction in ADT is warranted.

History

For more than half a century, castration has been the standard of care in managing advanced PC patients.  The major breakthrough in ADT care was in the 1980s, with development oF LHRH agonists, approved for patients with metastatic disease.  Practicing urologists used ADT therapies across the entire spectrum of PC.  Medical data from 1991 to 2005 found 44.8% of men with PC exposed to ADT within first year of treatment. Of these 51.8% were ages 75 to 79 and 60.1% over 89.   With the known side-effects judicious use of ADTacross the PC spectrum is arranged.

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Lu, Y. C., Huang, C. Y., Cheng, C. H., Huang, K. H., Lu, Y. C., Chow, P. M., ... & Hong, J. H. (2021). Clinical Outcomes in Locally Advanced Prostate Cancer Between Radical Prostatectomy and Radiotherapy With Androgen Deprivation Therapy: A Propensity Score-matched Analysis.

Compares RP and RT with long-term ADT in locally advanced PC.

325 patients with stage 3 or 4 PC and media follow-up of 59.2 months.

37.1% in RP group and 69.9 in RT group.


The RP group had a higher risk of biochemical recurrence compared to the RT group.

The RT plus ADT significantly decrease risk of biochemical failure.

TO date no randomized trail has compare RP to RT plus ADT in locally advanced PC.  Most retrospective studies have inevitable selection bias. This study use matched method. 


There was o statistical difference in overall survival. There were only 10 deaths in the cohort of 325 patients at the 59.2 (median) month follow-up.


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Niklas, C., Saar, M., Nini, A., Linxweiler, J., Siemer, S., Junker, K., & Stoeckle, M. (2021). Can local treatment prolong the sensitivity of metastatic prostate cancer to androgen deprivation or even prevent castration resistance?. World journal of urology, 39(9), 3231-3237.

Metastatic PC, there is long-lasting sensitivity to various forms of ADT after RP. 

115 RP cases with T4 PC reanalyzed. Overall survival was median of 156 months. 84 patients had biochemical recurrence (61%) and 44% (at 150 months).

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Kinnaird, W., & Stewart-Lord, A. (2021). A qualitative study exploring men’s experience of sexual dysfunction as a result of radiotherapy and androgen deprivation therapy to treat prostate cancer. Journal of Radiotherapy in Practice, 20(1), 39-42.

Sexual dysfunction (erectile dysfunction, low libido, ejactulatory problems, & penile shortening) is common side effect of EBRT and ADT treatment of PC.

Interviews with 8 men living 18 to 30 months after EBRT +/- ADT. Results: All men experienced sexual dysfunction following treatment. Interviews include condid discussion of self-perception and relationships, as well as physical changes.

A focus on ‘cure’ can contribute to men’s perception of not being properly prepared for sexual side effects.

impacted on their self-image and the nature of their intimate relationships. Here are some interview comments for patients 1, 2, and 4.

“We had a good sex life before and that’s… that’s vanished now, you know it’s… not the end of the world but it’s disappointing.” (P1)

 “I don’t feel one hundred per cent a man because I’m not able to have that function in my life. I know I feel inadequate sometimes… We had a fantastic sex life and now that’s non-existent.” (P2)

“I mean if there was something that could get it back working then fair enough… I miss the intimacy and that side of it.” (P4)

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I am non-violent, a practitioner of Ahimsa (Jainism). So I prefer to love all my living cells including the cancer cells. I am not a monk, but maybe in a next life...

Steven Eisenberg (2021: 65-66, Love is the Strangest Medicine: Notes from a Cancer Doctor on Connection, Creativity, and Compassion) gives the example of a 60 year old Tibetan Buddhist monk with metastasized cancer, who had never smoked, drank alcohol, and spent most of his time in quiet meditation and prayer:

"When the X-ray came back with a suspicious unidentifiable shadow on the left, the doctor ordered a full body scan. The results of the scan were more than suspicious. The monk's body was peppered with small masses for which for which there was no logical explanation except cancer. They were in his lungs, his bones, and his liver. ... I explained the monk's condition.... The translator conveyed my words carefully. ...When I finished speaking, he spoke just a few words to the translator and then nodded to me, and said in a soft careful English, 'I accept what is'."
Everyone there, reexplained the situation to the monk, then outlined several treatments to fight the cancer. The monk had this reply, "I love all of nature." The monk accepted what is, and decided to live every living cell of his body, enen the cancer.

Cancer is not my enemy. Cancer is my teacher. Cancer is my friend, who I have named, 'Little Buddha." My body protects Little Buddha. Cancer is part of nature, not a punishment for past karma in my life. Little Buddha teaches me my purpose in life: to not ruminate about the past, or worry about the future, just live each day to its fullest. I am learning many life lessons because cancer is calling on me to rethink my life. Mostly this is about how to surrender to spirit, how to live one moment at a time, and one day at a time. Cancer is not from bad karma. It is something one in six men will contract.  I'm a thinker, rethinking what's true, what's right thinking, and what is right conduct. And its not about cancer, its about dealing with my anger, anxiety, my compassion for self and others, and realizing my own inner divinity. Cancer is not from karma. Cancer is part of the evolution of life on planet earth. No doctor, no clinic, knows what causes cancer in a specific person. Anybody who says cancer is from bad karma, seeks a simple story to answer a big complex question.

I am rethinking what is cancer, how to deal with a cancer diagnosis, and what are the treatments that work.  I will tell you about the amazing interdisciplinary approaches. Each cancer specialist is trained to answer the big questions differently. What's the big questions? What is cancer?  Why did it mutate? Why did the body's defense systems not work?  How is it that it took four decades for millions of living cancer cells to be noticed by the popular tests? What's the treatment plan?

My answers to the big questions has to do with my training in a discipline called storytelling. Prostate cancer has a medical narrative riven with its own language and grammar (medical semiotics). Prostate cancer has its own 'cultural biography' (Johnson, 2021 A Cultural Biography of the Prostate), Johnson points to a kind of prostate storytelling that haunts the young people of Sweden. In her research, Ericka Johnson found that most of young people don't know what a prostate is, where it's located in the body, or what it does. Older people get prostate cancer, not young people in their twenties and thirties. The haunting got so culturally contagious, Sweden stopped doing PSA tests. Prostate is not just medical discourse, its is cultural discourse that haunts the youth of that nation, with anxiety and fear.



So that means, live a good life, in a year or two, make a decision about radiation and or surgery, and or more cutting edge medical oncology (better hormones).  So for now, I try not to overthink it. Just live each moment, do my mantras, do my exercise, live a life style discouraging further cancer colonization. The irony is the body is accommodating the cancer colonizers, protecting them instead of routing them out.  In short, my cancer is a trickster, able to con the defense system processes, able even to invite them to counter any standard of care treatments.


When I was diagnosed January 2022 with stage 2B prostate cancer, with a PSA score of 26.8. I began thinking about cancer, asking many questions: what is cancer, what is called cancer, when did the first living cell mutate into cancer cell. When did the one living cell become millions of living cancer cells?  I was thinking, what is cancer anyway. Then in March my diagnoses was upgraded to stage 4 aggressive metastasized and spreading. This was after biopsies, CT, and MRI testing revealed millions of  cancer cells had already metastasized to the lymph node chain that runs from the bottom of one's feet to the top of the head. It is not in the entire chain, but has entered lymph nodes near the prostate. A recent bioposy revealed the kidney tumor is small, not aggressive, and not the same type as the conquering prostate variety. As a thinker, I began to think about three places cancer dwelled in my body for a good long while. The prostate, kidney, and the lymph node chain are at what's called the systemic stage.  Before any individual treatment, a medical oncologist treats the systemic level.  I have waited to see this specialist for 30 days. We had to beg and plead to get on his schedule. We will see him on Thursday April 7th at MD Anderson. If all goes will he will be the quarterback of my cancer team that includes a surgical oncologist, radiology oncologist, integrative medicine doctor (specializing in mushrooms), an integrative medicine acupuncturist. I am already taking medicines prescribed by my home team from New Mexico and West Texas: an MD, a urologist, and a radiation oncologist. It's called Androgen Reduction Therapy (ADT), a hormone therapy to reduce my testosterone level. By last week's blood test, my PSA score has dropped from 26.8 to 1.5.

A thinker will naturally start overthinking all these things. Worrying about the future does not change the cancer.  Ruminating about the past, the history of each cancer does not change the cancer to a non-cancer.  I have learned to meditate on the here and now, so I can take a break free from overthinking nonstop about millions of living cancer cells.  The good news,a score of 1.5 means the hormone treatments have worked. On the report from the blood test, it says I have the testosterone of a 50 year old woman. I hope that means I am a kind and gentle woman.  Since I exercise, run miles each day, have a vegan diet, meditate, have acupuncture, am blessed with a wonderful care giver (Grace Ann), and do Qigong and Kung Fu, I have physical and mental and spiritual well-being. With the simple pills I take, I can also travel on planes, be sexual being, and I have no pain. Every day I am learning and thinking  new things.

Let's talk about overactive bladder, and how ADT makes it so I am not supposed to have erections. But there is good news, modern medicine has Flowmax and pills to take so the erection can happen with the right stimulation.  And guess what, with some acupuncture, it can erect (with pills) just by thinking about sex, seeing my loving partner, and its a joyful experience.


These past forty years, I've been a storytelling researcher. I use my storytelling training to challenge the rather simplistic stories about Spirit Cancer Sex. The fact is cancer has been living in my body for at least four decades.


What's the cancer story? How did one cell mutate and fool all the many intricate body defense systems? How did one cell mutate than make a home for millions of living mutated cancer cells? How come the body defense measures developed over millions of years of evolution, to identify and exorcise mutated cells, was fooled so easily?


My thinking on the matter, is the one cell mutated, turned cancerous, while I was serving my country in Vietnam April 2nd 1969 to April 2nd 1970. Cancer cells become millions of cells quite slowly, over four decades, as best as I can figure out. The Digital Rectal Exam (DRE) and the PSA test don't catch a few thousand cells. Millions must colonize in a place, for the tests to succeed in spotting the cancer cells. Another line if thinking is my dad had several cancers, including lung and prostate cancer, but died of a heart attack, with the remote control in his hand and a smile on his face.


As a thinker, I am making choices about these lines of thinking. My intention is to be a Centennial, to live 100 plus years. I am 74 years old, so I plan on another 26 plus years. I want these to be quality of life. I will work with the quarterback (Medical Oncologist) and the entire team of specialists.


I am a thinker. I have learned to stop thinking, when I need to rest, when I want to enjoy life's wondrous moments. As a thinker I am questioning the entire cancer industry, all the Western Ways of Thinking (WWOT). Enthinkment means I take a step thinking about this or that cancer. The way is cleared to take another step forward. This is called prospective thinking about my bets on the future. Which treatment will get em to Centurion. Which treatments actually work? Are there differences between treatments such as hormone therapy, surgery, and targeted radiation? As it turns out not as much difference as you would think. Not as much difference as is advertised by the cancer care industry.


It all started when on living cell mutated in a way that would invite millions more, fool the body defense system, and begin to colonize more places in my body. Did it start with genes passed from my father? There is no way to tell for sure. Did that first cell mutatate from exposure to Agent Orange in Vietnam. There is no definitive test, just speculation.




When
              your PSA goes from 26.8 to 1.5 its time to Celebrate
GO to why its time to celebrate

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This is first Day of the Rest of my Life!

Does Quantum Storytelling Cure Prostate Cancer?


     

























    Jump to the Chronology of treatments, tests, and my spiritual reactions

    Quick Jump to Chapters that will be in my

Book: Stage 4 Cancer Journey to Self-Healing:


      Journey to Cancer Mecca chapter;

      Journey to Inner Space Cystourethroscopy chapter;

      The Wild Ride: MRI chapter

      Try never to do this: Kidney Biopsy chapter

    My daily Tai Chi, Qigong practices

    Let's Celebrate a PSA lowered to 1.5


    Enthinkment Menu:


Yesterday (April1st) I got the news. My PSA score had fallen from 26.8 to just 1.5.  I did the ADT hormone treatment to lower my testosterone to near zero levels. The treatment known as chemical castration makes a metastasized Stage 4 (Gleason=10) cancer cease its activity. The purpose is deal with the systemic issue: to stop the spread. This gives the prostate time to shrink a bit, and then radiation therapy is possible on affected lymph nodes and on the prostate itself. 

..
In my case, Stage 4 means a highly aggressive high risk prostate cancer spreading to the lymph node chain in the groin area.  Its called systemic spread and is quite dangerous situation. The lymph node chain is in green in above diagram. With a PSA score of 1.0, the good news is I just wait with hope until July or August for the swollen prostate to shrink by 30% (the goal). Radiation or radical surgery is not an option until then.

So today I am free of pain. II had three biopsies and numerous CT scans, and IVs have been been inserted into both arms to draw blood samples, of to inject iodine or radiation material that show up in the images. It takes awhile for a 74 year old man to recover from all the testing. 

There is an emotional and a spiritual journey that took place in my life.  I am thriving with cancer. I am not free of cancer. To live with an aggressive cancer that has been coaxed into inactivity with 'Androgen Deprivation Therapy (ADT) is a temporary window.  Millions of cancer cells are still there in three locations: all through the prostate capsule, colonies the migrated into the lymph nodes, and a rather small nodule on the right kidney what fortunately is not aggressive.  Ii did not spread to any other organs or to he bone. 



ADT (chemical castration) is used in both radical prostatectomy and EBRT to deprive cancer of testosterone.  The prognosis for these two most 'standard of care' procedures:



Surgery (prostatectomy) has a slight edge over external beam radiation therapy (EBRT), often not statistically significant.
Life expectancy outcomes vary by your lifestyle (exercise, diet, etc.).

Most likely with treatment of a stage 4 cancer, it will come back again. Good news, there are good ways to treat it.

I want to turn now to deconstructing ways society, religion, and medicine deal with cancer.

FIrst Deconstruction: The Social and Religious Stigma Attached to Cancer

First, most prostate cancers are now treatable without radical removal surgery. The problem is the 'C-word' is so terrifying, most men just take the surgery option. There is a social and religious stigma of having cancer even though 1 in 6 men and 1 in 7 women will have cancer.  I grew up Catholic, and now I am a Jain. In Catholicism, cancer is God's punshishment and in the Karma religions (Buddhism, Jainism, Hinduism), cancer is seen as just punishment. These are of course misguided beliefs, stupid, as they are ignorant. Nevertheless the stigma is there. People tell me all the time:don't tell anyone you have cancer. What will people think? And if I listen, what will I think of myself?

Bard (2014: 3, The Prostate Cancer Revolution: Beating Prostate Cancer without Surgery) describes four reactions to getting a cancer diagnosis:, which I summarize as follows:

Stoic: Cancer is a sign of wickedness.
Worrier: Cancer has lots of side-effects.
Victim : Cancer get you lots of attention.
Problem Solver: Overcome fear and anxiety and deal with the proble.ms at hand.
Stoic reactions is no joke. In some Western religious circles, cancer is God's punishment for the wicked. In India and China, some people treat cancer as a sign of bad karma in the past (or current lives) of the entire family. Of course, both the stoic reactions to caner being a wickedness are absurd and show real ignorance of their own religious foundations. The worrier cannot drop the anxiety and keeps catastrophizing-about-the-future instead of just living life. The victim likes the attention. I opt to be a problem solver.

I realize that my bad karma did not bring about my cancer.  Cancer arrived. Cancer is calling me to learn to use it to open my inner divinity. I do not know why cancer showed up in my body. It is here and now!  I am answerable for how I think about cancer. I am answerable for my acts of thinking whatever the cause. I am answerable for any choices such as junk food, alcoholism, smoking, etc. that are associated with a higher incidence of cancer.

Each day I learn new ways of participating in life by choosing care, compassion, joy of a loving heart. I am peeling back the cultural layers of stereotype and ignorance, digging through the historical layers of stupidity, and finding my inner divine self. I am finding my inner divinity.


Deconstructing the Prejudicial relation of Cancer and Karma. As you I present the chronology of events, I will return again and again to what is Karma and its relation to what is Cancer. For now, I will say that getting cancer is a complex event, one that science cannot understand. Karma in Jainism (& Buddhism) is about the kind of way you treat self and other in you thoughts, words, and action.  Karma is not a punishment. Karma is working out your inner divinity. If a person has cancer, it is one more way to work out their spiritual path.

In some cultures, people with cancer are treated as lepers, and castaway. In the US, let's be honest: old people with cancer are treated as a burden to society and their families. The US is not a country that puts family first, or treats elders as keepers of wisdom. In some cultures in India or China, a son or daughter will not tell their family members they have cancer. In many countries, cancer of a family member's body is seen as a sign the entire family has done something in the past (lives) to deserve cancer in this life. The family reputation is at stake. The parent, learning their child has cancer, will not tell friends or other relatives. The family starts living a lie instead of standing in true storytelling. This is not intelligent thinking. And its a kind of thinking that is its own bad karma.

Karmic Justice Stateements For example, in India: "
Himanta Biswa Sarma, Assam health minister, struggled to explain his recent throwaway remarks about cancer and karma. Only karmic justice could make sense of why cancer strikes one tobacco-chewing person and not another, he said, finally backing off and apologizing — Amulya GopalakrishnanColumnist at The Times of India  see full article at https://timesofindia.indiatimes.com/blogs/to-name-and-address/the-karma-of-cancer-cancer-leaves-us-wordless-thats-why-we-come-up-with-clumsy-metaphors-to-explain-it/

Another example: Don't Tell your Parents
As expected, my parents decided to not tell our relatives and friends about my cancer, to both protect me and our family’s reputation.  By Esther Xu as told to Elli Jacobs. “When in 2016, age 34, I was diagnosed with non-Hodgkin's lymphoma, a cancer of the lymphatic system, I was scared to call and share the news with my parents who lived in Shanghai… My family have been quite successful in business and are highly respected in their community. I felt if family or friends were to find out I had cancer they would begin to think perhaps my grandparents did something wrong when running their business and that bad karma had transferred itself to me”  Read more: https://www.sbs.com.au/topics/voices/culture/article/2020/05/11/my-cancer-diagnosis-was-seen-bad-karma

Did I cause the cancer in me? Did this kid have bad karma? I see the spirit of me in this photo, not my genetic make up, not by environmental situation.

...

Why do people get cancer? Why did I get cancer?  Yes, there are things a person can do that increase the likelihood of prostate cancer: smoking, alcoholism, eating tons of junk food, eating foods with toxic pesticides, drinking bad water, moving to a place where the soil and air carry cancer.  Cancer is 5% genetic (passed in the genes) and 95% environmental (in the food, air, water, soil, and in the kind of work we do). 
Discovering my child, is part of the journey.  Cancer is from many causes, it’s 5% genetic (passed in the genes), and my did had cancer, was better human being for it.  It is 95% environmental.

No one knows exactly what causes cancer in a particular person.  Cancer is complex. Karma of past lives and living this one, is just as complex.

Did I cause cancer in my body? Point of fact, I served my country as an army sergeant in a war zone, and my body came into contact with agent orange made by Monsanto, used to defoliate that natural world.  Do I blame it on Monsanto, or a nation that would use such a toxic chemical to annihilate another country and take away the health of its own soldiers. 


The date is actually 1968-1969. It is the second half of my tour in Vietnam.

I am this person in the photo. Looking at this picture, I think about the true meaning of Karma, not the popularized version. I’m 21 going on 22 years old. I don’t have a clue the water I drink, the soil I walk in, the air I breath is ripe with Agent Orange. I have no idea that I am in an Agent Orange toxic zone.

In this photo I am a golf-pro. I had been company clerk for 6 months. Clerk or pro, I breathed, drank, and touched Agent Orange with every part of my body. Agent Orange was everywhere in the war zone. I am a sergeant, a squad leader. In my squad one solder has M70 grenade launcher, another an M60 machine gun, several soldiers have M16’s, I prefer the accuracy of an M14. We did guard duty, protecting the sacred records of the personnel office. The night sky was lit up like 4th of July, by the tracer rounds whizzing overhead.

“Agent Orange exposure was linked to a 52 percent increase in prostate cancer risk, and a 75 percent increase in high-risk, aggressive forms of the disease” More at https://buschcenter.com/agent-orange-likely-a-prostate-cancer-risk-factor/


"From 1965 to 1969, the former Monsanto Company manufactured Agent Orange for the U.S. military as a wartime government contractor”  More at https://www.business-humanrights.org/en/latest-news/agent-orange-background-on-monsantos-involvement/

Last Tuesday I went to the Veteran’s Administration contracted lab in El Paso.  They reviewed my medical records, took a urine and a blood sample. There is no test to measure Agent Orange in one’s body. The politicians and the Veterans Administration have come to an agreement. If you were in the combat zone where Agent Orange was used, you got it.

" During its operation, the Settlement Fund distributed a total of $197 million in cash payments to members of the class in the United States. Of the 105,000 claims received by the Payment Program, approximately 52,000 Vietnam Veterans or their survivors received cash payments which averaged about $3,800 each.  

The other part of the Settlement Fund, the Class Assistance Program, was intended by the distribution plan to function as a foundation. Between 1989 and 1996 it distributed, through a series of Requests for Proposal, $74 million to 83 social services organizations throughout the United States. These agencies, which ranged from disability and Veterans service organizations to community-based not-for-profits, provided counseling, advocacy, medical and case-management services. During this period, these organizations assisted over 239,000 Vietnam Veterans and their families. On September 27, 1997, the District Court ordered the Fund closed, its assets having been fully distributed." (More).

The problem is that the symptoms of Agent Orange qua prostate cancer do not show up until men are in their 50s and 60s, or in my case 70s.

I don't know if the VA will pay anything. $3,800 for Stage 4 prostate cancer is quite ridiculous. Pay the true health costs of soldiers going to war, or just don't send them in the first place.

My overall point: No one is that sure where cancer comes from.  Certainly don't know if its bad karma. There are things one does: smoking, drinking to excess, eating junk food, not exercising, and so on that bring on the environmental cancer. That I am answerable for.


What I do know. It is I who make the choice to create an event of happiness, joy, wonder, or accept a cultural judgment that is not the truth of who I am choosing to be in the once-occurrent event-ness of Being. 

As of April 1, 2022, I weight 58 pounds. I run and exercise each day. I meditate more than ever before. I take time to see what’s in wonderment all around me.


I am no longer into the military metaphors, like ‘fight cancer.’ It’s not a fight, it's a relationship. I am peaceful, joyful. I am not my body, I am the spirit you see in these photos. That is me. It is who I am. I live with millions of cancer cells inhabiting my body. I am glad they are calm after the ADT therapy.

I feel healthy, happy, and terrific as long as I can deal with the Social and Religious Stigma attached to Cancer.


Second deconstruction: Dualism
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The Cancer Industry has a dualistic approach when it needs an Integrative Medicine approach.

Keep in mind that doctors and major cancer clinics are under the influence of the 'National Comprehensive Cancer Network' (NCCN). The NCCN sets that 'standards of care' that are used by the big cancer clinics (& most doctors) in testing and treatment for 97% of cancers affecting patients in the United States More). A panel sets the standards of care. Today, the NCCN recommends a low risk prostate cancer be managed by (1) active surveillance, (2) radiation therapy, or (3) radical surgical removal. These are the three standard approaches, and they have equal weight (More).

The NCCN has a dualistic not an integrative approach. The choices of standards of care are (1) no treatment and (2) radical surgery or radiation (or in combination).  The conventional 'standard of care' choices are a false dichotomy between no treatment and two options (surgery or radiation). What gets overlooked in 'Complementary Alternative Medicine' (CAM) that are not part for the two options to doing nothing (surgery or radiation). There are many CAM practices that are not considered part of the NCCN standard of care (aka best practice).

Integrative Medicine goes beyond the dualism of NCCN.  Integrative medicine combines conventional treatments (surgery/radiation) with CAM practices that have been shown through science to be seen to be effective.  Integrative Medicine stresses the patient's preferences in order to address spiritual, mental, and physical aspects of health.

Integrative (CAM) practices include diet, herb supplements, acupuncture, meditation, yoga, Tai Chi, Qigong, massage, chiropractic, Reiki, energy healing, homeopathic, Chinese meridian channels, and so on. Grace Ann and I are a big fan of Integrative Medicine, and treat it as complementary to the accepted Standard of Care practices.

Third Deconstruction: Follow the Money and its Not about Studies of the Efficacy of  Integrative Medicine.
The big research money in cancer in the US is in studying surgery and radiation, not in studying CAM practices.
National Cancer Institute (NCI) and the National Center for Complementary and Integrative Health (NCCIH) are co-sponsoring clinical trials to test CAM treatments. During my time at MD Anderson, I have to keep asking for Integrative Medicine options.  On the first visit to MD Anderson, we pleaded and begged, and got an appointment with Integrative Medicine to go over our supplements.

April 1 2022, on second visit to MD Anderson, we got a referral to acupuncture. Medicare and Blue Cross denied it, so we paid out-of-pocket. Best $64 I spent. Booked another appointment for Monday.

Boje getting accupunture Apr 1 2022
I have 24 acupuncture needles: in hands, ears, abdomen, legs and feet. And for first tie in months I feel great.

It was amazing. A licensed professional and certified acupuncturist was attempting to balance out all the treatments I had been receiving over the past three months (MRI and Kidney biopsy had been particularly disorienting).  With ADT hormone therapy I was out of balance. I had been doing daily meditation, Qigong and Tai Chi, some prostate yoga, and weekly Kung Fu practices with Sifu. I cannot do the surgery or radiation until the PSA comes down to near zero and the prostate shrinks.  Using acupuncture in relation to prostate cancer is new territory. There have been no funded clinical trails.

My experience, is I got an hour of energy flow work from the acupuncture. The acupuncturist placed needles according to his experience and training, and by feeling the Chi energy. He could feel a tug in each needle he inserted, something he did not experience with most patients. My Chi practices had paid off. This would balance me, drop my stress levels, give me some sensitivity in my abdomen and pelvic region.
 

My point:  Doing cancer tests is an emotional roller coaster, and a profound spiritual journey.  Each new test (biopsy, blood draw, PET scan, and so on) gives doctors new information on the systemic issue, and my body's reaction to the ADT treatment. Each consultation changes the diagnosis: initially at Stage 2B, then Stage 3, and recently full on Stage 4 aggressive, spreading, masticating cancer.

The two gold 'standards of care' for aggressive prostate cancer (radiation & radical surgery) both involve ADT a chemical castration, that means loss of erection, which for men is a big deal. Fortunately, there are good medications one can take (Flowmax & Tadalafil
), but even then, without acupuncture, and all the Qigong, etc., there is no calming the body, mind, and spirit. By the way as you got through the chronology of events I relate how it is often cheaper to not use Insurance to pay for medications. The cash-pay is often less than the co-pay.  And the cost of generic presciption at a sample of pharmacies such as CVS, Walgreen's, Wal-Mart, and Sav-On will reveal that there is something rotten in the Insurance and pharmacy industry.

I hope this deconstruction has been useful. In sum 'Cancer' (C-word) is so terrifying, many men  opt right away, for a radical prostatectomy (removal of part or all of the prostate).  The side effects of such radial surgery are major: urinary incontinence (being unable to control urine) and erectile dysfunction (impotence, problems getting or keeping erections). An alternative treatment is targeted radiation therapy.  The side effects for external beam radiation therapy (EBRT) are urinary (or bowel) side effects for two to six week, and then improvement over time. Since the  NCCN 'standard of care' in the US sidesteps aka Integrative Medicine (CAM) practices as 'not' researched, its up to the patient to get informed, get assertive, and take charge of their own treatment planning.
The 'C' word strikes fear into most men and women. Many people do not survive the depression that follows the diagnosis.  For example, my neighbor's father accepted 'C' in stride, had his testicles removed (Orchiectomy). It is an outpatient procedure and not too expensive (More). His father lived into mid-90s.  My neighbor's farther-in-law, on the other hand, had his prostate removed, but fell into deep depression and died a few years later. How can you call gelding a man a 'standard of care.'  To treat the body without treating the mind an the spirit, to me is a very weak 'standard of care.'

Next I go through the chronology of tests, treatments, and my spiritual journey.

THE CHRONOLOGY is a diary I keep to understand my journey and to later compile an autoethnography.

 
Little Buddhas  My Name for Cancers that are my friends? Cancer is not my enemy. My friend is on the journey I am on, teaching me each step of the way. I call the cancer, Little Buddha.

Renaming a prostate cancer and a kidney cancer, Little Buddhas may see strange to you. Words have quantum energy vibrations.  Body Mind Spirit are wave vibrations. We see and hear wave frequencies. The Body is not solid, the 37.2 trillion living cells are moving and vibrating, composed mostly of space, some water, not much solid. Atoms are spread out electrons, not much matter there. The Body is 60% to 70% water, depending on its age. All those living cells are communicating with one another.  I choose my words carefully, so as not to give trillions of cells the wrong message. The embodied restorying process (ERP) is a way of restorying cancer by renaming scary medical language and grammar (aka semiotics) that otherwise stresses me out. I will introduce you to seven 'antenarrative' (Boje, 2001) processes that allow me to rehistoricize my past and make new bets on the future, while I go beneath the medical semiotics and let's not forget the business semiotics, and can work with quantum energy fields. I live in an energy universe. Mind Body Spirit, for me, are quantum energy fields, quite sensitive to words.


Let your four ♥'s be your guide to healing cancer with Mind Body Spirit storytelling practices.

I am an antenarratist bringing the power of storytelling to the cancer healing arena. Every 'Fore' word means 'in advance of.'  Ante means 'antecedent.' Put the 'Fore' and the 'Ante' together you get what I have been defining as 'antenarrative processes' for over two decades. And here I bring antenarrative into Mind Body Spirit of my life.



The Back Story Here’s the back story. I met Grace Ann Rosile in 1995, and immediately become vegetarian. Grace Ann took him to meet the Jain monk, Gurudev Shree Chitrabhanu, who said, ‘David you are Arihunt, that is your Jain name. I listened, taking notes on every word. I wrote Arihunt means ‘conqueror of inner enemies.’ After meditating on his inner enemies every morning for ten years, I returned exhausted to the monk and asked for a new name. Gurudev, informed me, 'you misheard me, '‘Arihunt means you have no enemies, everyone is your friend.’ That began a very different spiritual journey. In December 2020, after a Vision Quest on the Organ mountains, Mike ThreeBears gifted me my second name, ‘Surrenders to Spirit.’ I actively listened, and wrote down, ‘Sacrifices to Spirit’ in my notebook. These stories of mis-hearing, illustrate the difference between deep listening and actually hearing spirit.  I was so deep in chronic stress in 1995, so filled with semiotics of fear, worry, rage, anger, and accumulated trauma, my Mind Body Spirit could listen to words but not 'hear'!  My body had a cholesterol score of 400 (off the charts). Agent Orange from my tour in the Army in Vietnam 1969-1970 was infecting my Body organs slowly, putting me seven times the usual risk for men to have prostate and live cancer. 


Current Story When I met Grace Ann in 1995, I instantly switched my diet from junk food with lots of processed chemicals (poisons), lots of sugar (poisons), and salts (more poisons) to plant foods (not poisons).  I got into it and became vegan, and currently am doing raw food. In 2022 the cholesterol scores is 200 (still high), and on its way down to my target (under 100). I used to think 'whatever the mind can conceive and believe, it can achieve.'  Now I know this is a half truth.  The other half is the body and spirit.  Mind Body Spirit are a Quantum Energy Field that I call 'Quantum Storytelling.'  Most quantum physics scientists focus on the physical, reducing body to energy waves and particles. Some do allow for mind (observer effect), and very rare is the quantum scientist who includes Spirit.



Chronology of Tests and Opinions A chronology lists the events by date and my Stress (Subjective Units of Discomfort SUDS scale 0 to 100.
Be forewarned: There is a good deal of medical semiotics (language & grammar) one learns in the western medical model.


Jan 2nd 2022 I noticed blood droplets in my urine. This lasted for a week. Stress level is 75%


Jan 7 met with general MD specializing in Palliative Care (means Mind Body Spirit). Tests were scheduled, and referred me to a cancer expert MD who recommended CT scan and Gamma scan. My Stress calms a bit to 65%

Jan 13 blood test at a lab; results indicate cholesterol 250, which is high, but in 1996 it was 550, and the vegan diet has brought it down.  Prescribed Ciprofloxacin 500MG 2 pills a day to bring it down.  My Prostate-specific antigen (PSA) score was 26.8. 1 to 1.5 is normal range Under 4 ng/mL of blood is OK. PSA scores below 4.0 correlate with155 probability of prostate cancer. It takes a biopsy to be sure.  Between 4 and 10 is borderline. More than 10, chances of prostate cancer are 50%.   My stress level is better, 50%, after all its not final, PSA is probabilities, not certainty.



Jan 21 The Biopsy Procedure  Local shots that are not painful, and then 17 needles poked through the prostate to take tissue samples. Also not painful.  But the whole procedure is terrifying, as I worry over the results, and can I hold my pee during the test. I do OK.  Have to wait for results. Stress is rising to about 60%


Jan 26 CT Scan  - I am injected with iodine and scanned in my lower regions.  It is painless but th time waiting and the procedure as I think and overthink all that is happening is excruciating. My stress level is 75%.


Jan 28 Gamma Scan - This is the bone scan. A radiated substance is injected, and you return hours later to have the scan.  It is painless, but all the 40 minutes to laythere being fed in and out of the scan machine, I think and overthink everything, and my stress level is 100%.


Feb 2 2022 The Diagnosis in Las Cruces, NM: An aggressive prostate cancer apparent in 13 of 17 biopsy samples. CT scan indicates it is all through the prostate and has launched into surrounding tissue outside the prostate.  Diagnosis is stage 2B headed to Stage 3, with 31% chance of living five years after surgery. The Gamma scan of the bone indicates no bone cancer. However the scans indicate a small cancer on right kidney (not sure what kind it is).  Colonoscopy is recommended and scheduled.  The cancer specialist in my city recommends I see a radiation specialist in El Paso. Stress level lowered by meditation, exercise, Shamanic Drumming to about 50%.


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Above are doctor's notes and drawings on the report


 


 



Feb 9 (about) - phone call to schedule intake and possible visit to MD Anderson in Houston. My wife and I read about special Proton radiation machine they have to treat cancer.  We schedule intake, and were told a team of surgeon, radiologist, and clinician would review all the tests done in New Mexico, and give a team opinion on diagnosis and best treatment options.  We read they had some clinical use of Tibetan Yoga, and were interested. Unfortunately that was not happening now. So I continued to use YouTube sources for Qigong Yoga, Tai Chi Yoga, daily Prostate Yoga with Amit (very effective in getting the prostate and bladder to calm down). Also do weekly Kung Fu breath and body workouts (Shaolin, taught on FaceTime by my son's teacher Sifu Wong), weekly psychoanalyst visits who does Shamanic ceremony, and did Shamanic Yoga mediation along with my core shamanic drumming meditation daily. This all helps me to manage and cope with stress of the diagnosis, prognosis and the treatments.



Feb 14 Radiation Oncology MD - This doctor in El Paso specializes in prostate radiation therapies. There are several options. 


1. External Beam Radiation Therapy, 28 radiations in 5 weeks: pass x-rays to the can cells after inserting 3 gold chips in fiducial  that body dissolves in six months. The gold allows the Halcyon radiation machine to stay within a millimeter of the target.  Much more advanced than the older radiation technology. 
2. Extreme Dose MIR-fusion (in addition to #1)
3. 5 high-dose radiation treatments (in addition to #1)
4. Brachytherapy is an extra dose to to above options: Place catheters  into the prostate, and pass in radioactive material. Do this two times.


Results of surgery or radiation are similar for 10 year life results.  In short, no difference in the long run from doing surgical removal of prostate, or doing radiation therapy. Ii double checked the medical journals, and this appears to be true storytelling by the medical model.


This doctor is not a fan of MD Anderson and their Proton radiation approach. It is described as bait and switch, since Proton is not applicable to prostate cancer because the prostate moves about when you breath, and Proton machine cannot stay on target.  MD Anderson purports to be a team approach (clinical, radiation, and surgery doctors and their staff), but mostly its just surgery.  The El Paso MD trained in Houston at nearby non-Anderson hospital, and worked with many patients after Anderson had done their thing.  The El Paso MD outlined a plan. Do ADT (Androgen Deprivation Therapy) beginning today.  If and only if the prostate responds to lower testosterone levels, then and only then do radiation. If my 100 cc enlarged prostate is not reduced by 30% then no radiation, get prostate surgically removed, at MD Anderson or wherever. Even after surgery there is usually radiation treatment. Surgical removal side effects are loss of control of urine, so napkins/diapers are a must, loss of erections, etc. Surgery to be avoided if at all possible. Side effects of radiation are much more minimal, and one does recover sexual function 30% of the cases, and 30% use Viagra, and rest not much hope except surgical implants of mechanical device.  Given the plan is hopeful and all I do is take pills daily for 30 days, and a shot every 6 months, I have time for other opinions, and to go to MD Anderson and get their opinion.


Feb 15 2022. Went to pharmacy got the
ADT (Androgen Deprivation Therapy) pills, and a mouth guard (my teeth were grinding again, and I needed to remedy that until my stress got to 0). The doctors in Las Cruces concur with the doctors recommendation in El Paso, and the ADT  begins. The local doctors prescribed Bicalutamide 50MG tablets,  1 a day for 30 days, which is part of the ADT to lower my testosterone, which is rocket fuel for prostate cancer.  ADT inhibits growth but does not completely kill the cancer cells. Side effects are hot flashes (male menopause), testicle shrink, fatigue sets in, loss of ability for erection, and no more sperm ejaculate (not all bad news). So I exercises twice as much and run twice as far each day to keep up muscle tone and energy resilience which works fine.  If I stay in shape, the testicles will grow again, erection can come back, and orgasm possible (but no ejaculate, so could be fun). In short as the doctor in El Paso put it, there is light at the end of the tunnel, if you are not a couch potato. No hope for them whatsoever. 

Feb 20 (about then) got the shot for ADT (Androgen Deprivation Therapy). Shot happens every six months over next two years or possibly three.  The shot effects are a soreness in the rump for about 8 to 10 days.  This is potent stuff. It lowers testosterone, and along with the pills I take for 30 days (Bicalutamide 50MG (twice a day), the chemical castration will be complete.

Mar 2 2022 - fly to Houston to MD Anderson. WIll spend 8 days here. Go to a great raw food restaurant and relax after the flight, then onto the Air B&B.  It is a great place to relax.

Mar 3 - will meet with a doctor in the University of Texas Department of Urology, Division of surgery, at MD Anderson Cancer Center. After which I will have a blood test on same day. After that, wait for the recommendation to be posted on the MyChart app.  We have put all the prior test results in the MyChart.  MD Anderson has reviewed it (or someone there has), and we come this day for the visit. Plan is to spend 8 days here. It is first time in two years we got out of the Corona Virus Pandemic home-quarantine. We only left home to have groceries and supplies put in trunk of the car, and some trips to local used books store, and three times to a restaurant. We need a break from all of this. Found out at 2PM in afternoon that my cancer expert, Curtis Pettaway MD did not want the blood test done after his tests because his tests would mess up the PSA score in the blood test.  So he intervened and tog it sorted out.

Which ever treatment, stress is a factor. So is diet, as you can see below. What is interesting is how placebo groups compare with treatment groups. Sometimes placebo is as good or even better than the treatment.

I am using my time in Houston to deg into the medical journal, and see what's what,and to take breaks and do my Shamanic Yoga, and so on. I am meeting with Dr. Curtis Pettaway MD, considered one of the experts in prostate cancer in the world. I prepared for the meeting.

  1. Parker PA, Pettaway CA, Babaian RJ, Pisters LL, Miles B, Fortier A, Wei Q, Carr DD, Cohen L. The effects of a presurgical stress management intervention for men with prostate cancer undergoing radical prostatectomy. J Clin Oncol 27(19):3169-76, 2009. e-Pub 2009. PMID: 19349551. Short Abstract:  This study assessed the short-term and long-term efficacy of a presurgical stress management intervention at reducing mood disturbance and improving quality of life (QOL) in men undergoing radical prostatectomy (RP) for prostate cancer
  2. Andriole GL, Bostwick DG, Brawley OW, Gomella LG, Marberger M, Montorsi F, Pettaway CA, Tammela TL, Teloken C, Tindall DJ, Somerville MC, Wilson TH, Fowler IL, Rittmaster REffect of dutasteride on the risk of prostate cancer. N Engl J Med 362(13):1192-202, 2010. PMID: 20357281. Abstract: Among 6729 men who underwent a biopsy or prostate surgery, cancer was detected in 659 of the 3305 men in the dutasteride group, as compared with 858 of the 3424 men in the placebo group, representing a relative risk reduction with dutasteride of 22.8% (95% confidence interval, 15.2 to 29.8) over the 4-year study period (P<0.001). Overall, in years 1 through 4, among the 6706 men who underwent a needle biopsy, there were 220 tumors with a Gleason score of 7 to 10 among 3299 men in the dutasteride group and 233 among 3407 men in the placebo group (P=0.81). During years 3 and 4, there were 12 tumors with a Gleason score of 8 to 10 in the dutasteride group, as compared with only 1 in the placebo group (P=0.003). Dutasteride therapy, as compared with placebo, resulted in a reduction in the rate of acute urinary retention (1.6% vs. 6.7%, a 77.3% relative reduction). NOTE: In the placebo group, 858 of 3424 tested positive for prostate cancer. In the dutaserride group 659 of 3305 tested positive. What I am noticing is both groups had tested positive. My own gleason score is 9 out of 10.
  3. Tsavachidou D, McDonnell TJ, Wen S, Wang X, Vakar-Lopez F, Pisters LL, Pettaway CA, Wood CG, Do KA, Thall PF, Stephens C, Efstathiou E, Taylor R, Menter DG, Troncoso P, Lippman SM, Logothetis CJ, Kim J. Selenium and vitamin E: cell type- and intervention-specific tissue effects in prostate cancer. J Natl Cancer Inst 101(5):306-20, 2009. e-Pub 2009. PMID: 19244175.

    Abstract: Thirty-nine men with prostate cancer were randomly assigned to treatment with 200 microg of selenium, 400 IU of vitamin E, both, or placebo. Laser capture microdissection of prostatectomy biopsy specimens was used to isolate normal, stromal, and tumor cells. Gene expression in each cell type was studied with microarray analysis and validated with a real-time polymerase chain reaction (PCR) and immunohistochemistry. An analysis of variance model was fit to identify genes differentially expressed between treatments and cell types. A beta-uniform mixture model was used to analyze differential expression of genes and to assess the false discovery rate. All statistical tests were two-sided.

    Results: The highest numbers of differentially expressed genes by treatment were 1329 (63%) of 2109 genes in normal epithelial cells after selenium treatment, 1354 (66%) of 2051 genes in stromal cells after vitamin E treatment, and 329 (56%) of 587 genes in tumor cells after combination treatment (false discovery rate = 2%). Validation of 21 representative genes across all treatments and all cell types yielded Spearman correlation coefficients between the microarray analysis and the PCR validation ranging from 0.64 (95% confidence interval [CI] = 0.31 to 0.79) for the vitamin E group to 0.87 (95% CI = 0.53 to 0.99) for the selenium group. The increase in the mean percentage of p53-positive tumor cells in the selenium-treated group (26.3%), compared with that in the placebo-treated group (5%), showed borderline statistical significance (difference = 21.3%; 95% CI = 0.7 to 41.8; P = .051). NOTE: If I'm interpreting this correctly the placebo group did better than the Selenium treatment group.

  4. Strom SS, Yamamura Y, Forman MR, Pettaway CA, Barrera SL, DiGiovanni J. Saturated Fat Intake Predicts Biochemical Failure after Prostatectomy. Int J Cancer 122(11):2581-2585, 2008. PMID: 18324626. Note: Diet has a major impact on result.








Mar 3, 2022, The Experiencing MD Andersen, the Cancer Mecca

Wow!!!  MD Anderson is the mecca for cancer.  Thousands of people here this day.  You get a new mask at the door, and a bracelet with a scanner code on it.  We found our way through the Skyway, seemed a mile or more, to the appointment waiting area for Dr. Pettaway.  My bracelet was scanned, and I filled in some forms, including an American Urological Association (AUA) 'BPH Symptom Score Index.  I was called in after a brief wait for blood pressure and weight.

I weigh 161 pounds, down from 178 two months ago. That is due to doubling my jogging distance, more military regulation push ups, some squat thrusts, and lots of yoga.  My heart rate 128/81, not too bad. The Finger monitor showed oxygen 97% and heart rate 56, which is rating for an athlete.  Back to waiting on the 7th floor. We waited 90 minutes, and nothing.  I had don Qigong routines, lots of meditation, and tried to stay in the calm, cool, collected zone.  Succeeded, then went to inquire about the weight. The attendant said, 'waiting for a room.'  I asserted myself, 'how about some service. 90 minutes is a long wait!' 

Finally, a very nice nurse, who is an assistant to Dr. Pettaway came out to greet us. She told us, that we were supposed to do blood test first, and did not know why intake kept doing things backwards. And this was an unusual day, with so many people coming for care. OK, so what to do?  She said go to 2nd floor and get the blood work done. 

At 1PM, we headed for the appointment with the Diagnostic Lab for a blood test that would yield new PSA score. The place was packed. More people there than at the airport, and in much smaller space.  Most all chairs taken, no social distancing at all.  Everyone in masks. You sign in on a terminal after putting a prophylactic on your index finger. I pecked the keyboard, and I'm in the system.  Grace Ann struck up a conversation with a lady she had encountered earlier. The stories we heard. Her hometown doctors had removed her thyroid. She came to MD Anderson, who reanalyzed the results. Turns out a perfectly good thyroid was removed, and the root problem was elsewhere in her body. There are many such stories.

I found out it would be another 90 minute wait. So I set a timer on the iPhone and headed to a balcony off the cafe, to get some fresh air and some peace.  Wait almost over and Jacky the assistant to Dr. Pettaway sought us out on the balcony. Apologized again for the wait and wondered if we wanted to wait for the blood work. Only 25 minutes to go, so we waited.

My name finally came up, and got in the wait line, a much shorter line, and was quickly sent to a room. Blood drawn we went back to the 7th floor. Nicky had told us to just knock on the door, and not to wait to be called in.  Before we could knock, she opened the door for us.

First met a very competent doctor, fresh out of med school. He went over our records from our hometown doctors. He had the actual images from the CT scan and showed pictures of two potential lymph nodes that were missed by our own doctors.  It could be an hour or two before today's blood work results were processed by a lab.  So on to the rectal probe. Did it professionally. He felt the prostate, and a part of it, he indicated was hard to the touch.  I was happy it was only a part of it.  He answered questions and reviewed the treatment plan our home doctors had devised: to do the ADT chemical castration, which by this date, was well under way. In May or June, if the enlarged prostate has shrunk by 30% (was at 100cc Jan 26th 2022), then and only then radiation, and if that is not possible, surgical removal.  The MD Anderson doctor though it strange we were assigned to surgical team instead of to radiation group. He was listening to us. Great relief.

Dr. Curtis Pettaway came in and took over. He has an amazing bedside manner. Just the right amount of storytelling about things not related to medicine. He is also vegetarian, and likes that we are on raw food, and doing lots of exercise, and managing our stress level.   He went over the notes of his assistant and looked at the imaging.  He said he was going to get us scheduled for an MRI to really see what was going on in the prostate.  He asked about the El Paso radiologist MD's treatment plan. I explained about the gold infusions, and how all three home doctors were not all that keen on MD Anderson proton radiation. Dr. Pettaway was forthright. He said MD Anderson has gold infusion technology, and there are things that they can do with Proton radiation if it proves necessary. The main thing is to get a full team of radiation, surgery, and integrative medicine together and share expertise. Prostate cancer is very complex. Good, I like complexity! After another probe and more Q & A, I was asked if any doctors back home had done a Cystourethroscopy? I was advised to get other tests done, but we could do this one, here and now. 


Cystourethroscopy

 

This is the procedure for placing a camera on a probe that enters the urethra to explore the bladder.  Dr Pettaway said a local anesthetic would be used. I felt good about that part of it.  I was taken to a room nearby, where the procedure was explained, and I signed a release form. I am sharing this with you because, many men have had botched procedure, and are terrified about ever doing another. MD Anderson prides itself on having a competent staff that is caring, compassionate and knows how to make the experience a good one.  'You've never had a Cystourethroscopy?' 'No, I replied, its my very first time.'  I changed into a gown, provided a urine sample, and an was seated in the chair with the stirrups that keep my legs apart and elevated.  A very caring person administered the numbing agent, and pumped my bladder full of cool liquid. Not too bad a feeling.  Then the intern inserted the camera and guided it into the bladder. "Do you want to watch?"  I said, "I might just keep my eyes closed. Not sure I want to see this."  But curiosity got the best of me, and I was looking at the monitor,  As she steered right or lift, up or down, I could feel the movement inside my body. I could see the walls of my urethra, and its tender pinkish red coloring, and lots of blood veins. It looked OK to me like I was in that 1996 movie, Fantastic Voyage, shrunk to the size of a few cells, and traveling through my own body.




I am traveling in the space of my own body, while watching on the monitor.  We arrived at the bladder, and everyone crowded around the monitor, to see what we could see.  It was a huge cavern, with pinkish walls, lots of blood vessels, and nothing menacing. Dr. Pettaway was the guide. "This is one of the channels your urine comes in.  It looked clear and healthy to me, but I had no comparison point.  There was this small sink hole, about the size of a thimble. It had good edges and looked nice and rosy like the other parts of the bladder.  All said and done, the bladder got a clean bill of health. What a relief.

The voyage was over, and I went to pee out all the liquid. Much have been 12 ounces.

"Drink eight glasses of water a day for a few days, to flush out your system. It will prevent infection, not usual but better to be safe."  We were released to go have dinner. I had not eaten anything all day but was not really that hungry.  Found a Foods Market restaurant by Rice Center. Fantastic vegan food.  Bought some jackets and a sweatshirt at a nearby used clothing store. I forgot to pack mine.

We got home and the MRI was schedule for March 12 at 6:30AM. We extended our stay at the Air B&B, got airline reservation changed, and our house sitter caring for our dogs was good with it.

What was I learning?  MD Anderson does indeed have together-listening and together-telling. Experts from many fields were going to do a number of consultations with me. Instead of waiting weeks for appointments, some could be done in a day or less than a week. I would get a biopsy on the two-lymph-node sighting. Lab results happened in hours, not days.

I opened the MD Anderson site, and my blood work results were there.  I gave blood at 2:31 PM and results were in at 3:28 PM. We were so busy with the Cystourethroscopy, we had not checked results.

I was jumping up and down with joy. I scored a PSA of 9.1 mg/ml. which is down from 26.8 in January.  The  ADT treatment combined with the prayer and Shamanic drumming of loving friends, and my own Shamanic  Yoga, Prostate Yoga, the Shaolin Kung Fu training, and the therapy with a Shamanic practitioner had all keep my stress low, and lots of exercise. I was looking at hope. And it felt good.

Message:

Please see media tab for Provation note.
 
HPI: Patient is a 74 y.o. male from Las Cruces NM 88011 with history of newly diagnosed high risk prostate cancer. In response to an elevated PSA of 26.8 on 1/11/2022. He underwent TRUS prostate biopsy on 1/20/22, with pathology showing high volume grade group 5 disease from the left lateral base, left apex, and right base in addition to grade group 2 disease from right base and right apex. Staging CT abdomen pelvis (Urogram phase also included for history of hematuria on 1/2/2022) negative for metastatic disease but does incidentally identify a right 1.5 renal mass. A bone scan was performed (images not available for review) but per patient report was negative for metastatic disease.

First, I received the Lupron shot of 45MG on 17 February, 2022. The next schedule shot is 21 June 2022 (which I can take or not take, per the protocol of the clinical trial).
 
Second, the Biclutamide was 30 pills each 50 MG, begun on Feb 15 2022 and completed taking the 30th pill on March 16, 2022. This was a prescription from Dr. Mendel in El Paso Rio Grande Urology Clinic. Prescription written feb 14 2022, and got the pills on Feb 15 2022.

Symptoms: Minimal urinary symptoms. Hematuria has resolved. He has not undergone cystoscopic evaluation. Endorses hot flash on ADT. 


MyChart Alert: The MRI procedure got rescheduled for today Mar 4, 2022. I was doing a 4-mile run when I got a call from Grace Ann. I was halfway and headed back. Got bathed and re-dressed, reentered our Uber info, and off we went to MD Anderson. Good thing I had not eaten anything or had much water to drink. I could hold my pee. Got to the entrance, was given the new mask, and a new ID bracelet at the MRI center. Filled out same questionnaire about metals, metal plate, jewelry and so forth. Had to fill it all out again. Left the form in the waiting area. One computer bonkers, the next one worked, and we redid it all.


Magnetic Resonance Imaging (MRI) for Prostate

"Your MRI exam may use an endorectal coil, a thin wire covered with a latex balloon. The doctor places the coil a short distance into the rectum. The rectum is located immediately behind and up against the prostate. Placing the coil into the rectum so close to the prostate helps generate more detailed images"(RadiologyInfo.org). 

The MRI erects a magnetic field with radio frequency pulses.  Doctors use Prostate MRI to evaluate the enlarged, its prostate cancer and see if the cancer has spread. MRI produces clearly and more detailed imaging than the CT or Gamma scans I had in New Mexico.



The Prostate Cancer MRI Experience

After half hour of forms and endless questions. Do you have any metal on or in your body? Are you in good health? etc. then the IV apparatus inserted just above my left wrist. I took two pills to relax and tranquilize my pelvis muscles. It is said to wear off by the  time the procedure is done.  I am parked along with three other patients awaiting their turn in an MRI. I am assigned to MRI room 2, and there are four rooms.  There are about ten people attending to the patients and preparing the MRI rooms, or doing intake.  Some are permanent staff, others are students getting MRI technician profession credentials, and will graduate with a Bachelor degree. After an hour wait time, I walk into MRI room 2.  Two people are there to greet me, one full time MRI professional, and one student trainee.  

The MRI prostate procedure is described in Google as a noninvasive test.  I beg to differ. I roll onto my left side, a gel is liberally applied by the student, and the endorectal coil with its magnets, all encased in an inflatable latex balloon is inserted inch by inch into my rectum. How do you spell invasive? It is then inflated by a sort of bicycle pump, and the coil is attached by a thin wire to the MRI machine. I roll onto my back, and a warm blanket is placed over me.  A plastic encasement is placed over my pelvis to hold it motionless during the coming event.

I am guided to place my arms and hands at collar bone height. I am handed a small ball attached to a cold cord that is called 'the panic button.'  "Squeeze this ball if you have a panic attack. We will stop the procedure and extract you from the machine."  Good to know. Or, is it alarming to know? I cannot decide which. I am told, "hold onto this rolled up towel, one end in each hand. If your hands ever touch they can create an electrical circuit. The MRI pulse beams could complete that circuit and it affects the results of the imaging." In other words, the world would explode, and all life on the planet would come to an end. I grasped the ends of the towel but elected not to hold onto the panic button. A towel was placed over me.

The machine begins to whine and groan. It comes alive, and the platform I am lying on, facing the ceiling, begins to roll me into my tomb. Its a white cavern, with inches of space for my body.  I keep moving slowly into the cave to my forehead. I can see the palm tree picture lit up on the ceiling. Nice effect. It is a soothing island of peace I can send my mind to.  The MRI does not use radiation (x-rays). Too bad, I could use some radiation. For now all the testing is to determine which radiation or which surgery is best for my bodily condition. I have a drip IV in my left wrist, but it does not become activated until the last five minutes of the procedure.

Magnetic resonance imaging with radio frequency pulse waves begins. The table I am on is thrust inches deeper into the cavern.  I close my eyes. Perhaps I won't open them again until this is all over. It is hard to resist taking a peak. I tell myself 'don't look down at your body, it could cause vertigo.'  With decibel sound vibrations equal to any KISS music concert, the machine makes sonic boom sounds, and piercing shrieks.  I feel the quantum energy waves pulsate through my body to the inner core of my Being. I imagine I am riding my Harley Davidson through a mountain pass during a thunder storm. The lightning flashed strike the ground, again and again, all around me. Then come the thunder claps. Waves of electromagnetic energy course through my body. 


A 1987 Harley Electra glide I owned and Rode in LA


The storm ceases. I hope it over.  It's not, the table moves inches deeper into the cavern. I open my eyes. I am in the tomb. I can tilt my head up and see out. Directly above my eyes and nose is a row of slits, through which air is breezing on my face. Nice touch. I appreciate air circulation.  Enough respite. The sonic booms begin again. My mind tries to do shamanic drumming meditation, but it's impossible to concentrate. Impossible to hold an image. I go back to riding my Harley Davidson. Fight heavy metal thunder with the HAWG. I open up the throttle, and the Harley lurches forward into the storm. Lightning strikes the ground, and there are flashes of red, orange, and yellow colors. I know from experience, after the light flashes, comes the roaring thunder.  But this thunder is different, there are iterations of low radio frequencies intermingled with high pulsing frequencies. I give up trying to meditate, and decide to just go with the flow. My Wu Wei training tells me to stop resisting. Resisting just brings one more stress in life. 

After more spaces of silence, giving the beast time to rest, it awakens and the sound wave bombards my body once again. The waves penetrate deeper this time than last time. I choose to meditate on Little Buddha, and after many interruptions I make contact. He is actually Little Mahavira, a Jain incarnation. I tell you it’s Little Buddha, since you are more likely to have heard of Buddha, but probably not much experience with Mahavira. There are 26 births before his incarnation as a 'tirthankara' (defined as someone who succeeded in crossing from a series of rebirths to a path of enlightened awareness). Born 540BCE, and died 468BCE, about age 71 or 72.  Historically, Mahavira was born a bit before Buddha. At age 30, Mahavira renounced the worldly life and became an ascetic. He turned to meditation to conquer his worldly desires and thus became known as 'Jina' or conqueror.  Mahavira added the principle of chastity to four pre-existent principles (no violence, no lying, no stealing, & no possessions.).  During his lifetime, Mahavira established a like-minded community of 14,000 monks, and 36,000 nuns. Chastity is sort of my current condition with the ADT chemical castration. Might as well make a choice of it.

The MRI senses my meditative escape, and intensifies its powerful magnetic field. The radio frequency pulse change rhythm. I hope this makes for clear and coherent images for the MD Anderson and my hometown doctors to example and make a righteous diagnosis, a treatment plan, and a prognosis of life after this entombment.   This is no ordinary MRI. The machine is dialed up for multiparametric (Mp-MRI), an advanced imaging technique to yield pictures of the prostate gland, and two possible lymphatic zones. All the quantum field (my name for it) vibration waves set my bodies water in motion, and blood perfusion peaks within the prostate. This vibrant mattering helps the doctors differentiate diseased cells from normal prostate cell tissue. 

The prostate sits in front of my rectum, at the base of my penis and just below my bladder. The prostate surrounds the first part of the urethra, through which a camera was inserted yesterday. The prostate has a function, to make the milky fluid called 'sperm.'   My hometown doctor used an ultrasound to image the prostate. The Mp-MRI is much more comprehensive imaging.


The Mp-MRI Comes to a Sudden Halt

It's too early, by my calculation, to be over. The technicians rush into the room. I hope I'm not on fire. There is a lot of heat, my bodily fluids are hot!.  "It's OK, we just need to make an adjustment to your endorectal coil, the encasement is losing air, deflating." They roll me out of the machine, then get the bicycle pump out, and give my inserted sort of basketball, some needed air. They twist and push the coil apparatus a bit deeper, and check the wire connector. "All good," they say, and roll me back into the cave.  They run from the room. Do they know something I don't?  The machine restarts and does some low frequency attunements than gets underway. I look up and I am immersed into the machine and can stare, if I choose, at the row of air slits and feel the gentle breeze.   The machine kicks into high great, and the shock waves are more dramatic, more severe, not painful, just annoying.  I'm a blacksmith, a Harley rider, and love heavy metal thunder. But this is all a bit much.  I go back into Qigong breath work. Tongue to the upper cavity of my mouth as I breath in, then shift the tongue to the inside of the lower jaw, to breath out.  I find Little Buddha in the deep ocean. My power animal, the Great White Shark, gives me a tow, and we arrive at the red hut, deep down. I enter the watery membrane, and there is fresh air to breath.  I know not to rush the entrance. Experience whatever color light show up: red light, a white tone, a pink one, an orange.  I can hear the storm on the ocean surface.  I move to the transporter room (like in Star Trek), and call for Little Mahavira, and he's there.  "What message to you have for me."  He says, "breath more slowly. Calm your breathing. Focus on the breath." I do as I was instructed.

The monster MRI machine is jealous. It switches rhythms and dials in a frequency vibration that is completely different. The table moves me a bit deeper. The waves are directed at the pelvis, no longer at the chest.  My arms are numb, my left foot starts to cramp. I wiggle my toes ever so slightly. I apply what I learned from Shamanic Yoga, to care for my own body. 

It is longer than an hour. Restarting the MRI after adjusting the rectum balloon, added to the total time.  There is announcement, I hear the voice of the MRI technician on a loud speaker. We are going to inject the contrast material through your IV. It is gadolinium, not an iodine contrast I had in the CT scan back home.  "Remain perfectly still. This will take five minutes."

There is click sound, and the gadolinium surges through the IV and into my left arm. It feels like its spraying fluid all over my hand and arm. But I don't feel liquid at the elbow, so perhaps that is just how it feels.  I tell myself, 'Stay calm. Stay still. You don's want a redo. It must be about over, and this could be the last part.'  The monster machine rears, and buck, and there is yet another kind of rhythm, and the sonic booms are less deafening, but more penetrating.  These radio waves re-align my hydrogen atoms throughout my body. Each type of tissue has hydrogen atoms. As the radio waves subside and pause, the tissue flesh return to normal hydrogen alignment. The Mp-MRI is sensitive to these hydrogen atom shifts, and collects that data.  Each type of tissue in my body reacts differently. The coil in my rectum is communicative with coil encircling the entire body. Each series of waves, and pauses between waves, produces images on thin slices of my body.  This way, the MD Anderson team can study the image slices at different angles. I can get what I call a 'quantum storytelling' (QS) of the vibrant mattering slices, once the team of doctors and technicians gives all this image library an interpretation, a diagnosis.


Not a full diagnosis I still have to have biopsies on the possible lymph-nodes. I am scheduled back home for a biopsy on the right kidney. I still must meet with the radiology oncology folks and with the integrative medicine folks (who are more focused on Mind Body Spirit).

The technician bounds into the room with the student assistant. "It's done. We are going to roll you out.  Now roll to your left side, and we will deflate that ball, and extract the coil form your body."  It comes out inch by inch, and I am praying nothing else comes out with it. I hold it together. I think having a pee will feel pretty good.  "Can you sit up? Can you walk?" asks the student.  These are good question. It's been 90 minutes, three hours in total. I'm OK, but looking forward to seeing Grace Ann, who has been waiting all this time, and getting some fresh air.

We exit MD Anderson, get an Uber to Whole Foods, and buy 12 liters of water. I have a lot of drinking to do. We buy some other groceries and head back to the Air B&B. We eat and relax. Before 5PM on this Friday Mar 4 2022 we call the appointment schedulers to get set up with the integrative medicine group, and with the radiation unit.  Will wait and see when they get back to us.

Results of MRI (See Imaging, wait a minute for it to full load the imaging)


Summary:

Impression

1. PI-RADS 5 lesion involving the bilateral peripheral and transition zones and present from the base to apex, compatible with biopsy-proven carcinoma; frank extraprostatic extension; no evidence of seminal vesicle invasion.

2. Pelvic lymphadenopathy, compatible with lymph node metastases. Compared to prior CT urogram, the lymph nodes appear overall decreased in size compared to prior study.

3. Subcentimeter L4 vertebral body abnormality, indeterminate and may be degenerative given location though warrants attention on follow-up imaging. Prior negative bone scan noted.

OVERALL PI-RADS category: 5.

Narrative

FULL RESULT:

Examination: MRI PELVIS W WO CONTRAST PROSTATE on 3/4/2022 1:06 PM

Comparison prostate MRI: None; lymph nodes were compared to CT performed 01/26/2022

Prior therapy: hormone

PSA: 9.1 ng/mL on 03/03/2022.

Gleason score: 5+5.

Clinical history: Grade group 5 prostate cancer diagnosed at outside facility via nontargeted biopsy.

Indication: Prostate cancer staging.

Technique: Prostate MRI acquired at 3 T with an endorectal coil. Three-plane localizer, axial T1W and axial DWI of the pelvis were performed. Three plane T2W, axial T1W, axial DWI with ADC reconstruction of the prostate were acquired. Axial dynamic contrast enhanced sequence was performed with a focus on the prostate. 

Motion artifact: None

Findings: 

Prostate measurement (3-plane): 6.1 cm transverse x 5.3 cm AP x 6.3 craniocaudal dimension.

Hemorrhage: Mild

Benign prostatic hypertrophy: Severe

Lesion #1 is challenging to accurately measure given its shape approximately 5 cm and involves the bilateral, left greater than right, peripheral and transition zones and present from base to apex with an example on:
Image # 20, series 9.
PI-RADS Score
T2: 5.
DWI: 5.
DCE: plus.
Lesion overall PI-RADS Category: 5.

Extra-prostatic extension (EPE): found at a few locations, such as from the left posterolateral and anterior margin of the base to apex and from the posterolateral margin of the right apex; soft tissue abuts the left levator muscle without frank invasion
(Example on Image # 20 Series # 9)
Example location: # 3 o'clock
Objective description: Frank extension of soft tissue.
Qualitative suspicion of EPE: Highly likely.
Distance from NV bundle: Extends into the region neurovascular bundle.

Neurovascular bundle invasion (NVB): Suspected.
Image # 25, series # 9
Location: # 8 o'clock 
Objective description: Extension of soft tissue into the region of the neurovascular bundle.
Qualitative suspicion of NV invasion: Likely.

Seminal vesicle invasion (SVI): Not Involved.

The lesion extends to the apical most margin of the prostate without clear involvement of the distal sphincter. No involvement of the bladder neck or rectum.

Lymphadenopathy: Found; multiple abnormal appearing bilateral obturator and internal iliac lymph nodes. Compared to prior CT urogram, the lymph nodes appear overall decrease in size compared to prior study, such as a 1.6 cm left internal iliac lymph node (series 9 image 2; previously 2.1 cm). Additional indeterminate 0.9 cm short axis right femoral lymph node which is similar to slightly decreased in size (series 9 image 12; previously 1.2 cm).

Bones: Focal subcentimeter signal abnormality in the L4 vertebral body (series 1400 image 34) which appears to be centrally hyperintense on precontrast T1-weighted images (series 6 image 54), though prior hormone therapy noted. 

Other pelvic organs: 1.2 cm left posterolateral bladder diverticulum. 3.6 cm right gluteal intramuscular lipoma.

 



What i the Jainism Path of Quantum Storytelling? I have been increasing my faith in Jainism. There are some important differences between the Middle Way 8-fold path of Buddhism and what Bhagwan Mahavira foresaw in quantum mechanics.
..

Birth: 599 B.C. ... Death: 527 B.C. ... Lord Mahavira was the twenty-fourth and last Jain Tirthankara according to the Jain philosophy Mahavira (born 599 BC and died 527 BC) lived 72 years, during which time he foresaw many aspects of Quantum Mechanics, or what I Call 'Quantum Storytelling.'


 This is not the Buddhist 8-Fold Noble Path?
 


March 5 and 6 20222 -- Saturday & Sunday (Mar 5 & 6) we relaxed, sat by the pool, ate meals together, had fund, took long walks, and I did long runs along the aqueduct.  This process of letting go. Letting go is part of the 8-fold path to not cause suffering in the world.  I am learning to relax, and to not feed my own suffering, and not to feed other's suffering. I am exploring the relation of Buddhism 8-fold path to Jainism vows of truth, non-attachment, non-violence (Ahimsa), and so on. For the 8-fold path I changed the terms a bit, applying teachings of Br. Ph
áp Dung's (2017) Dharma Talk (see YouTube).  See more of this adapted table.

This is my integration of Enthinkment and Buist ddh 8-fold path of the Middle Way. It is a step along the way to working it out in Jainism.  The difference is in Jainism, the Middle Way is taking a side, and doing violence toward those who adopt their extreme views.  For example I am dealing with the extremes of medical semiotics and business semiotics and find a Mind Body Spirit path, but it is not the Middle Way path.


I incorporate the Mind-Player in this, as I want it to communicate to the Body-Talker controlling my automatic body functions (breathing, blood flow, nervous system, self-healing system, and so on). I apply the general eight terms of Br. Phap Dung, and include other ways of defining each one.  It is also a way of finding a way to deal with the impermanence, non-self, and suffering that marks Dharma.  It expands on Professor Louis Ralph Pondy's (1986) notion that organizations are stress systems, that only once in a while enact cooperation episodes (a reversal of this 1966 dissertation and his 1967 most famous model).  The Middle Way of Buddhism and is not the way of tolerance for all views in Jainism. For me, Jainism, 7-fold Predication (Syadvada) is about respecting the assertions that may at first appear contradictory. It is not ending in acceptance of paradox, leaving the parties in opposition. Jainism is a way to find inner peace and tranquility in the total of all views (standpoints). As an organizational storytelling researcher, I find Jainism a way to attain composure, harmony, and peace in our contemporary organizations that are fast-paced, chronically stressful because most organizations  seduce, socialize, and reward us to be stressed-out, which as you know carries Karmic consequences that can recur in the Birth-Death reincarnation cycle. This is my rendition of Buddhist Middle Way, to drop the views, to side with the Middle Way view.


By finding the Middle Way, we have a way to engage in Enthinkment, tame the sensorium of enactment (five senses) and engage the 6th sense (intuition, abduction, and Spirit). 


It is Monday Mar 7 2022 and while waiting for appointments to get set up at Integrative medicine and Radiation oncology, I am studying and writing about Mind Body Spirit

There are similarities and differences between Buddhism and Jainism.





Buddhism Jainism

Buddhism Jainism
Practices Meditation, the Eightfold Path:

1. Right view,
2. Right concentration (intent),
3. Right speech,
4. Right action,
5. Right THINKING,
6. Right mindfulness,
7. Right diligence,
8. Right LIVE-ly-hood
Five vows of Truth, Non-violence (Ahimsa), Non-stealing, Non-attachment, control over desires and 5 senses.
Greater emphasis on non-violence and truth. Also follow 3 jewels:
  1. Right Faith/Belief,
  2. Right Knowledge and
  3. Right Conduct
Human Nature Ignorance, as all sentient beings. In the Buddhist texts, it is seen that when Gautama, after his awakening, was asked whether he was a normal human being, he replied, "No". Human suffering is due to negative effects of bad karma and excessive attachment to material aspects of world.


My path is Jainism, My Mind Body and Spirit are Oneness. I do like Buddhism. There are parallels of Buddhism and Jainism.   For example, Right perception is becoming aware of something through the five senses which is what Buddhism is drawing into awareness. Thinking and Mindfulness of Right Knowledge are more or less similar. Right Conduct is Right Action, and the Diligence of training.  The Jainism Five vows put more emphasis on Ahimsa (non-violence) and compassion for all living things.  Both are about understanding karma and detachment from the material things of the world in order to get on the enlightenment path.  Since Jainism and Buddhism are contemporaries, they do borrow and learn from one another.

How does this apply to me?  Dharma is the phenomenal world of Being. It is how I am Being-in-the-world. In the cracked-heart of the Beneath (https://antenarrative.com).


To Stop, To Be Still, and to Look Deeply at the Cracked-Heart of Suffering I call the BENEATH. TO heal the cracked-heart is an eight fold path.  The Mind-Player is attempting to communicate with the Body-Talker that regulates all the involuntary physiologic processes of Body: breathing, blood flow, heart rate, digestion, sexual arousal, and so on. The Body-Talker operates at hyper speed and cannot hear the slow speech of the Mind-Player. The Mind-Player is however able to do attunements (like a tuning fork). I have been listening to YouTubes by Br. Phap Dung of Plum Village (His video has amazing insight). I placed in the BENEATH heart, the 8-fold path of 3 attunement energies (2. concentration, 3. mindfulness, & 4. diligence) and the 3 Karmas (4. thinking, 6. speech, & action). My VIEWS (opinions) set up the cracks in the BENEATH heart setting the 3 energies split from the 3 Karmas. All this affects (8) my LIVE-ly-ness.  The Mind-Player attunements give impressions to the Body-Talker, who has its own kind of intelligence.



The Body-Talker, who commands the autonomic processes (blood, breathing, digestion, and so on) is not able to directly communicate with the Mind-Player, who is much slower process.  However, Mind-Player can create such LIVE-ly-ness, and energy flows the Body-Talker begins to take notice, and adjusts heart rate, breathing, digestion, and nerve connections



Enthinkment To Stop, To Be Still, and to Look Deeply is the foundation of Enthinkment. I notice I get attached to (1) Views, and this affects my vibrant energy field (concentration, mindfulness, & diligence). Views attach to judgement, flame, and resentment. I end up playing the right-wrong game. So letting go of all Views changes my energy. Fortunately I can choose my energy attunements.  The energy attunements  affect the 3 Karmas, each a kind of cause and effect. I can choose my thinking, speech and action.  My thinking comes back to me. My Enthinkment is a matter of choosing my energy attunements and noticing how my thinking affects my speech and action. My energies alter my Enthinkment  (consciousness) and my Enactment (sensemaking). I like the Jain mantra (see 7 Chakras):

Ko Hum 'Who Am I?'
So Hum 'I am That!'
Na Hum 'I am Not That!'

As Br. Phap Dung explains it, sometimes latent seeds of anger, bitterness, fear, hatred, pride, jealousy, or blame take root in out consciousness (see video). I am the garden and my Father is the gardener (John 5) is one of my favorite verses. I cut off every branch in me that bears no fruit.  Every branch that bears fruit I trim clean so it will bear even more fruit. Diligence training is about composting the seeds and branches I do not want to bear fruit.  It is about feeding and watering the seeds of compassion and kindness I do want to bear fruit in my life. As I Stop, Be Still, and Look Deeply at my energies and my karma (actions) then I can make gardening choices. Compost this seed, care for that one. What I am learning is the seeds I cultivate manifest views and affect my LIVE-ly-ness.

Letting Go of Views.  To no longer hold onto opinions is to change my relation to suffering.  I let go of an identity that is stuck in my past (BEFORE of history), and I have more energy to cultivate and compost what I prefer to cultivate.  This is the Embodied Restorying Process (ERP) that Grace Ann and I write about and its a diligence training we practice. Letting go of an identity narrative I keep defending allows my identity to be flowing, flexible, without resistance. I can then change the energy of concentration-intentions and make new BETS on the Future. I can be Mindful of seeds I am watering.  What will my thoughts be five and ten years from today? How different will the be?  I don't want to stay frozen in the thought here-and-now.  What comes to be has consequences for my self and others. That is Karma.

True Storytelling  Do I have the energies of concentration, mindfulness, and diligence to be a True Storyteller? This is where Buddhism and Jainism converge on the question: What's True?  A Cracked-Heart with so many Views (opinions) cannot find What's True.  Cracked-Hearts consume lots of energy concentrating, minding, and doing due diligence about seeds that don't matter, and would make good compost for seeds that do matter. I am not just doing Enactment of sensemaking, I am doing Enthinkment by managing my energies and my Karmas. This way I am raditing waves of energy by Enthinkment not just by Enactment. More important, I want the Body-Talker to send different messages, to notice my Mind-Player has new and different attunements.  Enthinkment is my energy work and my action (Karma) work, it is seeding carefully.   This energy work relates to the 7 Chakra Gateways I learned in Jainism (Click Here to Jump to the 7 Chakras).

I notice I am overthinking the cancer. This intensifies suffering instead of learning form the suffering. Anticipating the side effects of the next treatment or test, intensifies the suffering. Going with the flow,  I can concentrate on caring for my self and caring for my loved owes, or offering care to a stranger.  Not overthinking it, my concentration, mindfulness, and diligence energy fields shift.  I set up different Karmic outcomes of thinking, speech, and action. This affects my LIVE-ly-ness in Phenomenal Being of True Storytelling.

Instead of spending my whole day and night overthingking, I Stop THining, Be Still, and Look Deeply at my State of Being.


Next I want to look at how the relation of the Mind-Player and the Body-Talker are related to my aliveness, to my Being-in-the-World. In Buddhism, Dharma is the phenomenal world of Being.


The Buddhist Mind Body Spirit relation of Beneath Heart to Being-in-Dharma (the phenomenal world)


In Enthinkment, the 8-fold relates the (1) views we attach our self to, our 3 energies (2. 3 & 4) to our three kinds of doing (5, 6, & 7) which affect the kind of (8) LIVE-ly-ness we bring into Being-in-the-world, the phenomenal world known as Dharma.  As the MIND-PLAYER and BODY-TALKER come into alignment, then I am in a better state of self-healing.

Our work lives and home lives are not seen as separated, and we can have aliveness in work life instead of waiting for home life. It is the LIVE-ly-ness that we carry into the way we are Being-in-the-world.  How we work with Mind-Player's 8-fold is our net Freedom-in-Being. 

Jainism and Buddhism are quite different from Western Ways of Knowing (WWOK) and its focus on seeking knowledge for problem solving. In Jainism and Buddhism its all about coming to a Stop, Being Still, Being One with the Suffering. The True Storytelling comes into play in actually seeing what's true about the suffering. Suffering becomes a teacher, and Little Buddha and Little Mahavira are excellent spiritual guides. Diligence is about training our attunement away from Views, and to Stop, Be Sill, and Observe the Suffering we are in, and any Suffering (not matter how small) we cause to others.  When I Stop, Be Still, and Observe I Notice seeds of blame, judgment, frustration, jealousy, and anger that are stored in my consciousness, and begin to take root in the situations I am in, such as waiting in line, waiting for appointments, and so forth.   My thinking comes back to me and affects my speech and my action in these situations. I have freedom of choice to nurture other kinds of seeds in my consciousness, such as love, kindness, caring, and understanding. These attunements can be what actually occupies my concentration, mindfulness and diligence training. Then I am more likely to be thinking, speaking, and acting on these seeds.

This cracked Heart of the BENEATH, makes it difficult to find what's true storytelling. To heal the cracked heart we need to address our own ego-centric, one of four Who-consciousnesses.  


March 9 2022 Wednesday

We began the day with a Zoom training session Grace Ann and I did for a Swedish university. I put the two slide sets, one on my antenarrative, conversational storytelling, abduction, and Tamara-Land work, and the other on the Enthinkment slide set (https://davidboje.com/Denmark). It was an amazing session. The faculty and doctoral students had great questions, and we had a wonderful conversational storytelling about intuition and the stressful ways of Tamara-land.

We had a great online visit by Zoom with a Doctor of Integrative Medicine. She reviewed every single one of my supplements and found that a third of them are redundant, and be dropped. Too much of a supplement can aggravate my self-healing, and can stress my overactive bladder.  I am doing Kegel exercises, and these seem to be helping. She signed us up for yoga classes, and for acupuncture.   No one at Cancer Mecca seems to have tried this for dealing with overactive bladder, and it will definitely help me with Enthinkment.  I am recommending that Cancer Mecca incorporate more Integrative Medicine to deal with the whole person Mind Body Spirit. With the pandemic, the Integrative Medicine unit got downsized, one less doctor, the nurses and other support staff transferred to pick up the workload with COVID. 


March 10 2022 Thursday
Today I meet with doctors of intervention radiation. They will review the CT and Gamma scans, and the biopsy from New Mexico doctors.  They will prepare me for the biopsy tomorrow which involves taking samples of two lymph nodes to determine if they are cancerous, and if so what kind, and how aggressive. That test result helps make a treatment plan of particular radiation or surgery.

After the consultation, another blood test. It will include another PSA test, and some specific tests of my how supplements are doing in my body were recommended by Integrative Medicine.

I am looking forward to this team(surgery, radiation, and integrative medicine) getting together a recommended treatment plan I can take back to my hometown doctors.

Today is the Shamanic Drumming Meditation meeting (https://davidboje.com/shamanic). I have an intention to submit to the drumming.

 

The Ego is the particular Who that we are dealing with in my visit to MD Anderson.  However, I am also dealing with the Corporate and Medical WHO, the We-WHO of the social, and my own Nature the Ecological-WHO.  These are the BETWEEN processes of antenarrative.
My BEFORE (history) is getting restoried, and my Bets on the future are changing with each MD Anderson consultation My BEYOND Heart is my Spiritual, my Intuition, and the Abductions I am making that are beyond Being, but have there effect on my Being (my Dharma relationships).


 
This is something we explore in TrueStorytelling.org training

Read more about the model in latest publication 

David Boje, R. Duncan M. Pelly, Rohny Saylors, Jillian Saylors, Sabine Trafimow

Implications of Tamara-Land Consciousnesses Discourses for Organization Culture Studies

at http://dyskursy.san.edu.pl/abs/dyskursy16-4.pdf


Bottom line: Diet, Stress management, and the Placebo effect have a lot to do with the outcome



Accept the Diagnosis, don't let the Prognosis Become your Life Sentence! 's matter to Mind Body Spirit. I accept the medical semiotics of doctors (after 2nd and 3rd opinion), but I know enough about probability statistics, that I don't enroll into the prognosis.  The diagnosis is I have a stage 2B prostate cancer with a 'PSA' statistic of 26.8 (very high) and a small kidney cancer that may or may not be as aggressive.  Accepting the diagnosis is a wake up call. Alarms are going off in Mind Body Spirit. Pay heed! Accepting the medical industry's and the business industry's language and grammar (aka semiotics) is unwise.  Why? Loaded with toxic stress energy that invades Mind Body Spirit, lingers and festers there. Accepting prognosis  turns your living story, your Mind Body Spirit, over to two industries (medical and business) that have a language and grammar (semiotics) that colonizes your living story, takes over your Mind Body Spirit, leaves you totally disempowered. Guess what?  The Mind Body Spirit has been doing self healing for a hundred thousand years of human history. There is ancient wisdom about Mind Body Spirit. I am an intellectual shaman, a shamanic practitioner. Time to heal thyself!


Eastern philosophies treat Mind Body Spirit. For example Amit does Prostate Yoga to reduce enlargement.  It is fairly advanced for a 74 year old, but results are beneficial. Do I need to tell you to take it easy practicing Prostate Yoga. Ask a doctor who practices Mind Body Spirit, if you can find one.


March 11 2022 Friday Storytelling Notes

's matter I have been doing my Kegel exercises more regularly and I my pelvic floor muscles are helping me pee less frequently. Since the Cystourethroscopy and the MRI, the diligence I had attained in New Mexico had slipped. I was afraid I would Kegel and hurt my sore urethra, prostate, kidney, and bladder.  Yesterday I began to practice more while sitting, while walking, while jogging. I found that with a touch or self-kindness, I could be diligent. I could reassure the bladder I would do the Middle Way, and not overdue it.  It feels good to be in control again. I am not back to 7 or 8 ounces, mostly 2 and 3, but last night I slept the whole night, 8 hours, and did not get up till the end, after staying in bed Kegeling. 7 ounces was the result.  I'm back. Now I can be more self-confident, less worrisome, less vigilant for the location of bathrooms wherever I am. have some routine practices. When I feel a sensation in my urethra, I do 10 to 20 count squeeze, and I can feel the lower floor muscles.  Instead of peeing after exercise or after a sip of water, I do some kegels and go about my day. I realize that the cancer tests had got me off my game.  I worried there would be blood in the urine.  I was abandoning my prace. I can practice with the energy of caring diligence, while watch TV, riding in an Uber, talking a walk, or running.


Habits of Storytelling 


Question: Wh
at is the story I keep telling myself about myself?
Question: What stories about myself am I sharing with you?

Question: What story about organizations am I sharing with you?
Question: What story about the ecosystem am I telling myself? ....telling you?


I am seeing my thinking much more clearly. Some of this thinking I am seeing fro the very first time. When I look someone in the face, or am breathing in-Nature, the storytelling is different. 


The three Karmas: Thinking, Speech, and Action have everything to do with being kind to self and others or being unkind to self and others.


Question: Am I thinking instead of Being? 
Question: Am I Being instead of Thinking?
Question: Am I Doing (acting) instead of Being and Thinking?



The three energies: Concentration, Mindfulness, and Diligence shift my habits of storytelling. 


My energy practices as a shamanic practitioner is a good example. My commitment is to drum each morning. Some mornings I don't strap the drum on my back and I go running without it. I say, Oh its OO, I can listen to the tape of drumming. But some days I don't do that either.  I say to myself, "It's OK to skip it."  This is about diligence to my shamanic practice. It is about small things, that add up day by day to integrity. When I am consistent in doing my drumming, doing the breath-in and breath-out awareness while  running, and then while drumming, just be breathing with my body.  I have the body I am grateful for. It is millions of years of evolution to perfect its functioning,



I notice I am being kinder to my body, telling my body that it will be all right, that I love eachpart, and I am more encouraging and forgiving to my body. I love my body unconditionally. I take time to stopping to appreciate the miracle of life, then my energy shifts. I am more attuned to Nature, fall into non-ordinary-consciousness.


Stop Thinking, Be Still, and Notice the Breath-in and the Breath-out. My thinking changes my attunement to Nature, my facial expressions, and my breathing. My thinking




Mar 11, 2022 Friday 9AM waiting to see the Radiology doctors, then will have in afternoon:

IR CT GUIDED PELVIC (NON-BONE) BIOPSY
Starts at 1:30 PM CST(2 hours, 30 minutes)
MD Anderson West Houston (have to grab an Uber to get there)
13900 Katy Fwy, Houston TX 77079 - Please check in for your appointment on the Second Floor
13900 Katy Fwy
Houston


Stop Thinking, Be Still, and Notice the Breath-in and the Breath-out.
Met with two wonderful doctors of Radiation Oncology.  An intern, Moaaz Soliman MD and Dr. Henry Mok. 

They were very true storytellers, telling it like it is.  I have a high risk cancer. High risk has several gradations, from early end to later end. Mine is later end of the spectrum.  Dr Mendel's approach in El Paso seems to be right on.  Do tri-modality treatment of (1) chemical hormones, (2) external beam, and (3) Brachytherapy.  Dr. Soliman and Dr. Mok recommend an appointment with Medical Oncology to see if there are clinical trial for high risk (later end) with lymph node involvement.  Dr. Mok anticipates that today's lymph node biopsy will be positive.


The priority is to deal with systemic issues and do be aggressive in this treatment, which means the whole pelvic area treated with hormone therapy and then with external beam radiation. I already finished my 30 days of ADT pills yesterday and had my shot (one every six months). As Dr. Mendels (El Paso Rio Grande Urology) diagnosed, I will be in the hormone phase for 3 to 6 months, then radiation of several forms. Surgery is not out of the question, but its last resort.  The choice will be to come to Houston, and stay in Houston for the radiation or have it done in El Paso.


Dr. Mok prescribed Viagra, since its use it or loose the function all together. He prescribed something to quell OAB, Ditropan Oxycontin tablets. How do you spell relief. This could have been prescribed 30 days ago.


In a few hours I head to the west clinic and do the biopsy on the CT scan machine.


We will wait to see if Medical Oncology can squeeze us in for an appointment. MD Anderson bureaucracy could have had us start with Dr. Mok, and with Medical Oncology. That would be quite rational.  But bureaucracy works against rationality, as we all know.


Good news, Dr. Mok thinks I can travel to Sweden, have a good time, and will be OK, then return for whatever radiation treatments are needed. It will be great to be in Europe again. I look forward to that.


In my shamanic practice, I listen to my spiritual guides and my animal helpers. I focus on my breath-in and breath-out.  I go with the flow because going against the flow is stressful.  Going with the flow things work out.  I have concentration, mindfulness, and diligence to work with my quantum energy field.  I take a breath-in and become fully present with the person I am with, and with my own Body Mind Spirit.  This is what LIVE-ly-ness and letting go of Views (opinions) and not Over-thinking and not over-sensing is all about.  


In the afternoon, I was prepped in the West campus of MD Anderson for pelvic biopsy.  It is a Siemen's CT Scanner. I have an IV to numb my mind, and some shots in the pelvic area to numb my body locally.  After and hour of prep and wait time, I entered the operating theater. Everyone professional, me clutching my Little Buddha (aka Little Mahavira).  Some initial photos by the CT machine, then insertion of the sample needle.  The table rolls in and out, as the needle is pushed deeper and deeper, and locates the probable area of millions of suspect cells. After 40 minutes that part is over, and it went well. Another hour of wait time for the numbing effects to wear off.


Grace Ann and I take an Uber to Mellow Manna Indian restaurant.  The Dosa is scrumptious. We take some side dishes home to snack on. 


Saturday and Sunday Mar 12 and 13 2022

I am turning more and more to Jainism. I really love the quantum physics, the ecological ethics, and the path of discipline to develop my intuitive and thinking practices (aka Enthinkment). Don't freak out, the Swastika existed for seven thousand years before it was appropriated by the Nazis.


“The word swastika comes from the Sanskrit svastika, which means “good fortune” or “well-being." The motif (a hooked cross) appears to have first been used in Eurasia, as early as 7000 years ago… a sacred symbol in Hinduism, Buddhism, Jainism, and Odinism” (More).


In Jainism, the Swastika depicts four possible Beings: Heavenly, Hellish, Human, and Plants/Animals/Microbes in the Moshka cycle of Birth-Death that recurs until all the karma on the Subtle Body is detached.  This can take thousands of years of rebirth-death reincarnation.   The way to detach Karma from past lives and this one is through the 3 Jewels: right faith/belief, right knowledge, and right conduct.  Attract Karmic and you downgrade to microbes, and have to do a lot of reincarnations before trying to be a Monk and atain the Abode of Liberated Souls. But you can just come into Animal/Plant, Human, or be a Heavenly god or goddess (who must also be reborn to try again to attain that Nirvana (Abode of Liberated Souls).


Jain scriptures reject God as the creator of universe. All gods and goddesses that attain the heavenly Moshka, need to be reborn and shake off all karmic form the Subtle body in order to enter the Abode of Liberated Souls. That is where the universe is at rest, there is no motion, it's timelessness, and you have no body or mind, just a very purified soul.  Don't bother praying to the those in that Abode, there are in state of bliss and peace, and have no way to hear your prayers or acknowledge any offerings. You are on your own if you seek this Abode.



 

This symbol of the Universe (body outline) was adopted by all on the occasion of 2500 year completion of Mahavira. I have annotated it in ways that relate to my spiritual path.
 

Ahimsa 


The whole of Jainism revolves around Stop, to Rethink so as to be non-violent and cause no harm.  To be conscious of thoughts, words, and actions (as in Buddhism) but to go further by being Vegetarian, not to intentionally step on a bug, or drink a bug in your food and water. After all, that cockroach could be a sentient Being (not all five senses) but four of them, and you are going to attract Karmic consequences if you step on the cockroach. I get a piece of stiff paper, and coax them onto it, along with spiders, centipedes, and any scorpions and put them outdoors to live out their lives in peace.  It is a mindfulness practice, and its non-vioent. To STOP, to RETHINK, is part of Enthinkment, as I practice it.



Wikipedia has some good summaries of Jainism and Ahimsa Click Here


"The wheel of time is divided into two half-rotations, Utsarpiṇī or ascending time cycle and Avasarpiṇī, the descending time cycle, occurring continuously after each other. Utsarpiṇī is a period of progressive prosperity and happiness where the time spans and ages are at an increasing scale, while Avsarpiṇī is a period of increasing sorrow and immorality"

Click Here for more.


"These heavenly beings are not viewed as creators, they are subject to suffering and change like all other living beings, and must eventually die. If godliness is defined as the state of having freed one's soul from karmas and the attainment of enlightenment/Nirvana and a god as one who exists in such a state, then those who have achieved such a state can be termed gods/Tirthankara'
Click Here for more.


"Hence in accordance with the natural karmic laws, consequences occur when one utters a lie, steals something, commits acts of senseless violence or leads the life of a debauchee. Rather than assume that moral rewards and retribution are the work of a divine judge, the Jains believe that there is an innate moral order to the cosmos, self-regulating through the workings of karma. Morality and ethics are important, not because of the personal whim of a fictional god, but because a life that is led in agreement with moral and ethical principles is beneficial: it leads to a decrease and finally to the total loss of karma, which means: to ever increasing happiness" 

Click Here for more.


Quantum Storytelling, Existentialism and Jainism

This is my own rendition of how Quantum Storytelling and Existentialism are part of Jainism. I believe in reincarnation, that I have had past lives, and likely will have many more lives before ascending to Nirvana Enlightenment.. I believe every living organism can evolve spirituality and after millions of years break free of the cycle of Birth-Death.  Jainism maintains “Every creature living in this universe possesses a separate and independent existence and individuality. Every one’s soul is independent. Everyone has a separate existence. Every creature has to put forth its own efforts to get deliverance from the bondage of Karmas” ( Kothari, 2019).




Albert Einstein once said, if he was going to be reborn he's like it to be in India as a Jain, because they understand science.  Ahimsa (non-violence) heads up the ethical doctrine along with Truthfulness (Satya), non-stealing including no plagiarism, Celibacy (Brachmacharya) which means no cheating on your partner, Non-Possessiveness (Aparigraha) detaching from greed, anger, and acquiring material things to massage the ego.


Jainism and Existential Energy Work
For the past 25 years, I have been learning from a Jain monk, Chitrabhanu, who died a few years ago. He gave me my Jain name (ari hunta) and asked me to study Sanskrit to learn the Jain concepts such as Ahimsa, so as a teacher I can impart them to others in my area, I call Quantum Storytelling (QS). It is for this reason I am careful to translate the Jain Sanskrit words for you the reader.


 




Mind-Player (māno-ramam)
One of the key practices has to do with the Mind-Player (māno-ramam) mantra meditation does access  creative sexual energy  of the second chakra that can activate self-healing of the body.  Mind-Player (māno-ramam) meditation on energies can get noticed by the Body-Talker that subconsciously directs the body’s autonomic Functions (breathing, blood flow, digestion, immune system, and so on).

Swādhisthāna is the second chakra name of the dwelling place of our origin (Chitrabhanu, 1979: 19-20, The Psychology of Enlightenment: Meditations on the Seven Energy Centers). It is the second chakra (gateway) of water (creative energy) that flows to every cell of our body. This meditation is to guide the self-healing water energy to wherever our body’s 37.2 trillion living cells needs healing. Water makes up 55 to 80% of the body (depending on our age). We can direct the creative self-healing energy of water by visualizing the meditation chakra: māno-ramam which means the ‘mind-player of the one who dwells within. Visualize a silver boat shaped like a crescent moon, that you direct to whatever part of the body has cells in need of healing.  I focus on  māno-ramam this immortal dancer of creative life energy. The chakra is the gateway of energy that you can direct its flow where needed.

For me, I focus on the lower dantian (abdomen pelvic area). It has been diagnosed with three cancer locations (prostate, right kidney, and lymph nodes). I am considered a high risk cancer case, in Stage 2B moving along to Stage III. My score is 9.1 out 10 on the risk scale.  You can appreciate why Swādhisthāna second chakra, and the māno-ramam ‘mind-player is a way to direct the creative water energy where it can care for millions of cancer cells in several locations. 

All seven chakras are important energy gateways. The intention is to get all seven energy gateways unleashing energy in ways that tends holistically to my Mind Body Spirit, and gets the positive attention of the Body-Taler.

Energy work is one part of Jain existentialism. The other part is working on karma (cause & effect) that I am accountable for in  this life, and all prior ones.


Jainism and Sartrean existentialism emphasize the role and responsibility of an individual. Jainism posits that every individual is the architect of their own faith, and acceptable for actions and thoughts that accumulate karma. Sartrean existentialism endorses the same belief that an individual is a product of, and responsible for their own actions.

I want to give some overview of Jainist Existentialism I am practicing.


For an excellent overview of Jainism Existentialism, please see Jahnavi Kothari’s (2019) thesis: Finding parallels between Jain philosophy and Sartrean existentialism: Recognizing the richness of ancient South Asian religious philosophy against inst developments in continental philosophy. Downloadable Here.

I am becoming atheist, since in Jainism there are no god-creators of the the universe, and I am responsible for my own karma. In some sense, Jainism and Nietzsche atheism have much in common.

God is a gross answer, an indelicacy against us thinkers - at bottom merely a gross prohibition for us: you shall not think!” – Friedrich Nietzsche

Source: Curry, William. “Atheism.” Nietzsche Quotes: Atheism. Accessed .
https://www.theperspectivesofnietzsche.com/nietzsche/nath.html

Tīrthaṅkara: ‘ford-maker’, Jina who creates a path to liberation for beings trapped in the realm
of samsara, 24 Tīrthaṅkaras appear in each cosmic cycle; Mahāvīra is the 24th tīrthaṅkara of our
current cosmic cycle (p. 78).

In my writings about true storytelling I seek what’s true (Sachai). I am devoted to answerability ethics. So I try my best to avoid Pāp: sin, vice, crime, guilt.




Existentialism, Jainism,and Quantum Storytelling (QS) is what I call a spiritual path to quantum mechanics.  Not all physicists agree.  This has to do with the relation of Jina (consciousness) that you purify best you can, and the Ajina elements of Matter, Motion, Rest, Space, and Time. Space is absolute, infinite, eternal boundless in our expanding universe called the Quantum Energy Field.  Even where in Space there is no motion, and much is at Rest, there are Quantum Energies in the so-called Empty Space.  All this was being told by Mahavira  599 BC to 527 BC.  Lots of Jain philosophers write about the parallels of Jainism with Quantum Mechanics. 


See for example: Jainism, Quantum Physics and Evolving Spiritualism by Dr. M.B. Modi
Published: 02.10.2012  Updated: 30.07.2015
Click Here for article.


He says “The living objects are created by mutual co-operation of atoms and consciousness”


See for example: Quantum Mechanics by Narendra Bhandari  Click Here of article.


See for example: Atomic theory of Jainism, no author  Click Here fore article.

See for example: Modern Physics and Jain Darshan by Narendra Bhandari  Click Here for article.


How does this relate to Enthinkment?  In Ahimsa, we try not to do violence to another's view, or to side with a view, even to side with the Middle Way is taking sides.  The practice is called the 7-fold Predication (Syadvada). Let's use the example of assertions.  For an excellent introduction to Jainism Philosophy and the 7-Fold Predication, see this YouTube.


  Click Here for Jainism Philosophy By Dr. Monica Prabhackar


Dr. Monica Prabhackar gives the example of a father with more than one son.  It is the Jain answer to Syllogism, but with a twist.  Each of the seven, has an inherent fallacy of Thinking, a faulty inference to watch out for.  I will lay out the seven assertions (in bold), and then show how to MEDIATE each one with an interpretation that overcomes apparent contradiction (or paradox) (in italics).


1. It is.


From a certain point of view this man is a father of a Boy (A).


2. It is not.


From a certain point of view this man is not a father of Boy (B).


3. It is and it is not.


From a certain point of view is a father of Boy (A), and is not a father of Boy (B).


4. It is indescribable.


From a certain point of view the situation is indescribable


5. It is and is indescribable.


From a certain point of view this man is a father (to one boy) and is indescribable (for both boys)


6. It is not and is indescribable.


From a certain point of view this man is not a father (to Boy B), and from a certain point of view the situation of the father and two boys is indescribable.


7. It is, is not, and is indescribable.


From a certain point of view this man is a father, and not a father, and the relations together of the thress of them is indescribable.


As a complexity systems person, I appreciate Dr. Monica Prabhackar's presentation of 7 Nayas:



1. Nayama Naya - Systematized view of the relation of things that are universal and things that are particular.


2. Sungraha Naya - Generalizations such as, Everything is Being, can become basis for rejecting a particular.


3. Vyauchara Naya - Particularization of empirical kind reduces every object to materiality and the nonmaterial gets rejected as a standpoint.


4. Bjusutra Naya - A moment or eventing period is taken as the whole truth of what's true. This is a common situation in emplotment beause continuous time is made into duration intervals, and there rest left on the editing floor by the narrativist.


5. Sabda Naya - Language and Grammar are used to in wyas that are fallacious, such as the following can be three different persons at one time: He sits, He sleeps, and He wakes up.


6. Samabhirudha - One obscure derivative meaning of a word taken to be the common meaning of a word. Heidegger does this incessantly, which is OK if you follow him closely.


7. Evambhuta Naya - Words used in literal ways function as a distortion of the meaning. e.g. Giving milk is the (only) function of the cow.


The point of all this is Jainists are attempting to get to a many-sided view that does not distort, or disrespect, is dialogical rather than dialectical, reductionist, or opposition or end in paradoxical ambiguity. 


In terms of storytelling, there is a classification of immediate knowledge, from observation of the sense, and the mediate ways of knowledge o perceptual knowledge, inference, intuition, meditation practices, scripture study,  checking it out with others storytelling, and so on that the pre sensemaking enactment cannot attain.



This is the first day of the rest of my life I am diligent about talking with and listening to the Hackberry Trees of the East Mesa in New Mexico. What's true storytelling is not a single thing, it is a series of small thing that add up to the integrity of true storytelling practices, day-by-day, and breath-by-breath.


 
Grandfather Hackberry TreeI take time to breath-in the Rainbow energy of the Grandrather Hackberry Tree. It is my favorite place to sit and drum.  This is more of a summer season phote, with some water left in the pond, and New Mexico Spadefoot toads the size of your thumb swimming about in the puddles, all trying to survive.


Doing daily shamanic drumming practices is my integrity of True Storytelling.  I practice mindfulness energy in the simply daily things like walking, running, meditating at the pond.  Instead of thinking I am breathing in and breathing out in Space, in Time, and my life is wonderful.


I notice I am learning to be kinder to my wife, to my friends, and to my self.  My gody is my best friend.  It has been perfected over millions of years of evolution. Self-healing is a thing.  I try to help the self-healing along and am grateful to be part of a self-healing community of practice.


March 15, 2022 -- My doctor prescribed Viagra, and my Medicare and Blue Cross Health Insurance denied it.


Do you know what it costs?  $1,500 for one prescription.



Pfizer hit chemical gold 20 years ago when the Food and Drug Administration (FDA) approved Viagra.

Viagra brought in about $1.6 billion in 2016 global sales. It had some of the fastest prescription uptakes and sales growth of any medication, ever, after its launch, pulling in a cool $2 billion in annual sales by 2008. That means it’s well into tens of billions in revenues since the 1998 debut.


March 17, 2022 Thursday - Shamanic Drumming Meditation on Zoom - 

My intention for shamanic drumming event: to get some Viagra alternative, so I can afford to have some semblance of feeling in my lower region. I learned from friends in drumming about Tadalafil that was prescribed my my Las Cruces doctor. If you don't use it during the two years of chemical castration (hormonal therapy), then you lose any hope of erectile function.  I can understand the Health Insurance turning down Viagra, but generic alternatives, that cost much less, seem appropriate to me.

What I learned is the CVS and Walgreen's have greedily hiked up the prices of Viagra and generic alternatives so 50 pills sell for $1,500, but if you head over to Wal-Mart or Albertson's Savon Pharmacy, then you get the same thing approved by insurance, and its under $50. Sounds too good to be true.


The diagnosis is in from the latest biopsy:

MALIGNANT Highly Aggressive Stage 4
A
Diagnosis
A. Lymph node(s), left, pelvic, fine needle asp, left pelvic lymph node:
METASTATIC ADENOCARCINOMA (see comment)


March 18, 2022 FridayMy MD Anderson surgeon called, "You have Stage 4 Cancer."  What does that mean? You have cancer that has left just the prostate and is in right kidney, and its malignant in the left pelvic lymph node.  Google puts it this way "
Stage 4 cancer is sometimes referred to as metastatic cancer, because it often means the cancer has spread from its origin to distant parts of the body"  (More).  When prostate cancer spreads to other areas of the body, its still called prostate cancer. Removing the prostate does not stop the spread.   " Stage 4 cancer usually can't be cured. In addition, because it will have spread throughout the body, it is unlikely it can be completely removed. The goal of treatment is to prolong survival and improve quality of life... It is diagnosed when cancer cells spread to other parts of the body" (More Wellness.com). In other word the prostate cancer that was once diagnosed as Stage 2B, was moved to Stage 3, and now to Stage 4, because the biopsy and imaging tests are confirming it has metastasized (aka, metastatic cancer). The goal of treatment is no longer to cure the cancer, just to slow it down, relieve symptoms, and extend my survival time. My cancer cells have broken away from the prostate into the lymphatic systems (a network of transport of white blood cells and lymph fluid that to other parts of my body).  Once the cells spread and attach to other sites, they simultaneously fight against my immune system. The bet on the future is prostate cancer spreads to the bone, liver, lungs (since blood filters through the lungs), and adrenal glands.


So I will soon be flying back to Houston to have their CT Scan of my bones since their machine and protocol surpasses what New Mexico can provide.  And I will see the whole prognosis team" Medical Oncologist Doctor, Radiation Oncologist Doctor, and Integrative Medicine Doctor. I won't see them at one time, but they will confer with one another, and see me individually.  The plat is to be aggressive with the high risk Stage Four aggressive cancer with some combination of treatments: surgery, chemo, radiation, and diet.


Not wanting to sail thorough life without hope,I make four decisions with Grace Ann.


Decision One Grace Ann transferred the prescription for Tadalafil (20 MG Tablets) from CVS which wants $1,467.99 and the Medicare/Blue Cross rejected it outright, but we learned that customers of Albertson's Grocery's Savon Pharmacy were able to get it approved in my health plan. Se we called in and had the prescription moved, waited for the text message, and went to pick it up. It cost $40 with health insurance approved for about 50 tablets. The insurance industry may change its mine, but for now, I can get some blood flow.  I took a Tadalafil pill and blood flow did increase to me penis, and I felt much better as a man. No, we did not have sex. We are taking it easy.  I did feel way different in the penis region, and it seems to help my over active bladder calm down and take it easy (nice side effect). Thank you members of the Shamanic Drumming Meditation Circle for uncovering this way to reduce the cost of pharma.


Decision Two Grace Ann and I are going on vacation, and enjoy our life together, while I still have energy, and am free of pain.  Maybe to Mexico to check out the stem cell cures for cancer, unsanctioned in the US. According to the science in the US (Maters et al, 2008), stem cell therapy is not able to stop or cure prostate cancer, and is not as effective as castration. This is not chemical castration, it is removal of the testicles. My neighbor's dad had this done and lived into his 90s, but his cancer had not metastasized. Our plan: Each day is the best day of the rest of our lives, so we spend it not in worry, but in serenity, peace, equinimity, and just love one another.


"Consequently, a tissue-specific stem cell therapy is a goal worth pursuing for prostate cancer, although it still has a very long way to go. Nevertheless, there has been no real improvement in the survival of men with metastatic prostate cancer since castration was introduced by Huggins in the 1940s."


Masters, J. R., Kane, C., Yamamoto, H., & Ahmed, A. (2008). Prostate cancer stem cell therapy: hype or hope?. Prostate Cancer and Prostatic Diseases, 11(4), 316-319. Click here to read the article


Decision Three I am looking into positive psychology, though I am a critical theorists with major reservations about it; 
Dispenza, Turner, and Rossman are part of the documentary film HealEach has a book on how to beat cancer into remission by mind control: Dispenza's (2014) placebo effect, making my mind matter, holding hope for radical remission (Turner, 2014) surviving stage four cancer against all odds, and willing as Rossman (2003) puts it, to fight cancer from withing using the power of my mind for healing.  Keep in mind I am a Critical Theorist, and know positive psychology is not the whole answers. I listen to my doctors.


Decision Four Grace Ann and I decide to implement something to parallel whatever Medical treatments MD Anderson comes up with. We are implementing the Mushroom Strategy that my daughter Rene Boje, a practicing shaman who led Ayahuasca ceremonies in Brazil, has been telling me about. Rene has her own Goddess potions and bath salts business in Canada. 


The Mushroom Cure for Prostate Cancer As my daughter tells the story, she knows a guy who had high risk prostate cancer, and instead of going for treatment like I have done, such as getting chemical castration, doing biopsies, Gamma, and CT scans.  As the story was told to me, he went to the health foods store (and some online sources), and ordered mushroom powers, and some green powder. My daughter contacted him and wrote down the items I would need.  I am waiting to talk to him by phone, but he had to fly off to Florida to care for a sick relative. I went shopping anyway. I found them all at Natural Grocers. I called in the following order:


$18.49    Reishi Mushroom 600 mg per capsule by Solaray Dietary Supplement
$  9.89    Lion's Main organic capsules by Natural Grocers
$30.09    Greens Blend Superfood powderd by Amazing Grass 8.5oz.
$  7.59    Two  Lion's Mane mushrooms from the produce section
$  4.99    Lettuce Romaine (not part of the treatment, but part of my diet)


$$71.05  Subtotal


In sum, I my vision quest name is 'Surrenders to Spirit' and my Jain name is 'Ari Hunta' (I have no enemies, everyone, even cancer cells are my friend). I have millions of friends. I am using my time studying the Quantum Storytelling of early Jainism. 


I am noticing that the existentialism, epistemology, ontic, and ontology of Jainism philosophy did not emerge full blown at its beginning during the life of Mahavira. 

After Buddhisms and Brahmanism, and before Jainism, there was a religion that seems quite shamanic to me called Ājīvikism:




According to Balcerowicz (2015),"Ājīvikism was once ranked one of the most important religions in India between the 4th and 2nd centuries BCE, after Buddhism, ‘Brahmanism’ and before Jainism, but is now a forgotten Indian religion. However, Jainism has remained an integral part of the religious landscape of South Asia, despite the common beginnings shared with Ājīvikism." See Balcerowicz, P. (2015). Early Asceticism in India: Ājīvikism and Jainism. Routledge. 


This 2013 Youtube by professor Balcerowicz of University of London Center for Jain Studies gives you some historical grounding. His talk is titled

Jaina Logic and Epistemology. Is This How it All Began?

  Click Here for YouTube


Medieval Jaina philosophers wrote about their practices of Jaina-Yoga.  See Chapple, C. (ed.). Yoga in Jainism. London: Routledge, 2015 (Routledge Advances in Jaina Studies 5)

As in Shamanism, there are divination practices that were practiced by Mahavira, though he rejected the Astrological approach (see
YouTube). The divination practices evolved after Mahavier, into the Twelfth Century:

Qvarnström, Olle. “Jain Tantra: Divinatory and Meditative Practices in the Twelfth-Century Yogaśāstra of Hemacandra.” Tantra in Practice. Ed. David Gordon White, 595-604. Princeton: Princeton University Press, 2000.
------. The Yogaśāstra of Hemacandra. A Twelfth Century Handbook on Śvetāmbara Jainism. Translated by Olle Qvarnström. Cambridge, Massachusetts: Harvard University Press, 2002.

Tukol, T. K. Sallekhanā (1978). Yoga, Meditation & Mysticism in Jainism. New Delhi: Shri Raj Krishen Jain Charitable Trust.


I am exploring the early antenarrative fragments that cohered into Quantum Storytelling of Janism. It begins with some basic principles in one of the Sacred Jain texts:

Nine Tattvas (Principles):
      --------------------------
            1. Jiva    - soul or living being (Consciousness)
            2. Ajiva   - non-living substances
            3. Asrava  - cause of the influx of karma
            4. Bandh   - bondage of karma
            5.*Punya   - virtue
            6.*Papa    - sin
            7. Samvara - arrest of the influx of karma
            8. Nirjara - exhaustion of the accumulated karma
            9. Moksha  - total liberation from karma

I have Stage 4 Cancer, so I will focus on Nirvana, as I reincarnate again and again to the top of Lokakas, where in Moksha, my soul Being will remain forever in its blissful and unconditional existence.

I am studying how Enthinkment (paths of thinking) are related to Jainism thought processes. For example, consider the following quote from another Sacred Jain Text:

      Jain religion puts a significant emphasis on the thought process of
      a human being.  A person's behavior and his actions are the
      reflection of his internal thoughts, day in and day out.  It is not
      the action but intention behind the action results in the
      accumulation of Karma.

      One should be very careful about his thoughts, how he thinks, and
      the subject matter of his thought.

      To make room for pure thoughts, and to drive out the evil ones,
      Jainism recommends to meditate the following twelve thoughts or
      Bhavnas.

The reflections are also called Anuprekshas, longings, thoughts,
      aspirations, or Bhavnas:


         1. Anitya Bhavna    - Impermanence of the world
         2. Asarana Bhavna   - No one provides protection
         3. Samsara Bhavna   - No permanent relationship in universe
         4. Ekatva Bhavna    - Solitude of the soul
         5. Anyatva Bhavna   - Separateness
         6. Asuci Bhavna     - Impureness of the body
         7. Asrava Bhavna    - Influx of karma
         8. Samvara Bhavna   - Stoppage of influx of karma
         9. Nirjara Bhavna   - Shedding of karma
        10. Loka Bhavna      - Transitory of universe
        11. Bodhi-durlabha   - Unattainability of right faith,
            Bhavna             knowledge, and conduct
        12. Dharma Bhavna    - Unattainability of true preceptor,
                               scriptures, and religion

Some notes on #11: "Under this reflection, one thinks that it is very difficult for the
      transmigrating soul to acquire right faith, right knowledge, and
      right conduct in this world.  Therefore, when one's has the
      opportunity to be a religious person, take the advantage of it to
      develop right religious talent.  This thought will strengthen one's
      effort to attain them, and live accordingly."

Four Bhavnas or Virtues
      -----------------------
      Besides the twelve Bhavnas described above Jainism has laid great
      importance on the following four Bhavnas or virtues. They are
      mentioned here for clarification.

               Amity, love, and friendship   -   Maitri
               Appreciation, respect and joy -   Pramoda
               Compassion                    -   Karuna
               Equanimity and tolerance      -   Madhyastha
There you have it. We made some decisions that are complimentary to the medical prognosis (a plan that will emerge after the next journey to Cancer Mecca in a month or so we will have a treatment plan). Whatever plan, I continue focus on my own spiritual journey. I'm enjoying relating existentialism and Shamanism to Jainism.


March 19, 2022 Saturday - good relaxing day



March 20, 2022 Sunday
For men, next to skin cancer, prostate cancer is second major cancer.



"
Stage four prostate cancer is known for having an extremely low five-year survival rate when being treated by standard oncology" (more)

Research on Cancer is not on all types of treatments. That is why surgery, radiation, and chemo get top billing by the NCCN (National Comprehensive Cancer Network) guidelines which most doctors and cancer clinics are following. For my stage 4 prostate cancer that is out of the wood shed, those standart treatments do not work, so the survival rate with standard treatments, past 5 yeears is 29%.


"In American men, prostate cancer is only behind skin cancer as the most common form of cancer[1]. Statistics estimate that in the U.S. there will be about 164,690 new diagnosis of prostate cancer and about 29,430 death from prostate cancer in 2018[1]. In their lifetime 1-9 men will be diagnosed with prostate cancer, and 1 in 41 of those diagnosed will succumb to complications related to the disease[1]. The five-year survival rate for prostate cancer patients falls to 29% when prostate cancer metastasizes and spreads through the body[1]. This staggering decline in survival rate highlights the serious disadvantages the NCCN recommended treatments have when trying to treat prostate cancer that has spread, become treatment resistant, and recurrent" (IBID.).


I am studying what are the contributive and causal factors driving prostate cancer.  Some contributive agents: weight, diet, environmental factors (e.g. in my case Agent Orange in Vietnam war zone).


Targeted Gene Therapy for Prostate Cancer 
My friend Jack Appleton told me about a new treatment for prostate cancer, even at stage 4. 


Reports of BRCA genes connected to prostate caner (Liede et al., 2004; Wu et al., 2011), make it seven times more likely to develop trostate cancer than the general population.

Liede, A., B.Y. Karlan, and S.A. Narod, Cancer Risks for Male Carriers of Germline Mutations in BRCA1 or BRCA2: A Review of the Literature. 2004. 22(4): p. 735-742.

Wu, X., Ding, B., Gao, J., Wang, H., Fan, W., Wang, X., ... & Gao, S. (2011). Second-generation aptamer-conjugated PSMA-targeted delivery system for prostate cancer therapy. International journal of nanomedicine, 6, 1747. (Click here for Article).


" Aptamer A10 is a RNA aptamer that can bind to the extracellular domain of the prostate-specific membrane antigen (PSMA) commonly found on the cell surface of prostate cancer cells. Its capability for active binding and uptake by targeted cancer cells in vitro has been demonstrated" (Wu, 2011);


Cheng J, Teply BA, Sherifi I, et al. Formulation of functionalized PLGA-PEG nanoparticles for in vivo targeted drug delivery. Biomaterials. 2007;28(5):869–876. [PMC free article][PubMed] []
Farokhzad OC, Jon S, Khademhosseini A, Tran TN, Lavan DA, Langer R. Nanoparticle-aptamer bioconjugates: A new approach for targeting prostate cancer cells. Cancer Res. 2004;64(21):7668–7672. [PubMed] []
Dhar S, Gu FX, Langer R, Farokhzad OC, Lippard SJ. Targeted delivery of cisplatin to prostate cancer cells by aptamer functionalized Pt(IV) prodrug-PLGA-PEG nanoparticles. Proc Natl Acad Sci USA. 2008;105(45):17356–17361. [PMC free article] [PubMed] []
Tong R, Yala L, Fan TM, Cheng J. The formulation of aptamer-coated paclitaxel-polylactide nanoconjugates and their targeting to cancer cells. Biomaterials. 2010;31(11):3043–3053. [PMC free article] [PubMed] []



The most common tumor-suppressor gene found mutated or absent in prostate cancer is TP53, which has been selected as a target in this treatment approach with nonviral delivery systems. TP53 is a tumor-suppressor gene that plays an important role in genome stability through different cellular mechanisms (More).


There are some more recent medical articles:

Dizaji, B. F., Azerbaijan, M. H., Sheisi, N., Goleij, P., Mirmajidi, T., Chogan, F., ... & Sharafian, F. (2020). Synthesis of PLGA/chitosan/zeolites and PLGA/chitosan/metal organic frameworks nanofibers for targeted delivery of Paclitaxel toward prostate cancer cells death. International Journal of Biological Macromolecules, 164, 1461-1474.

Mahira, S., Kommineni, N., Husain, G. M., & Khan, W. (2019). Cabazitaxel and silibinin co-encapsulated cationic liposomes for CD44 targeted delivery: A new insight into nanomedicine based combinational chemotherapy for prostate cancer. Biomedicine & Pharmacotherapy, 110, 803-817.


Bose, R. J., Paulmurugan, R., Moon, J., Lee, S. H., & Park, H. (2018). Cell membrane-coated nanocarriers: the emerging targeted delivery system for cancer theranostics. Drug Discovery Today, 23(4), 891-899.


With the growing evidence that Gene trageting approach to treat prostate cancer has been found to be effective, the question is why is it not being suggested by local doctors and doctors at MD Andersen?

"

Almost all major cancer institutions refer to the NCCN (National Comprehensive Cancer Network) guidelines for prostate cancer treatment. These guidelines may be successful in the early stages of prostate cancer, but the survival rates drop dramatically for patients who are experiencing an aggressive or recurrent form of prostate cancer. Simply put, NCCN guidelines are derived from large sample clinical trials that do not utilize personalized and genetically-driven treatment and immunotherapy options which can be vitally important for both late-stage and early-stage prostate cancer. This lack of personalization is just one reason the conventional approach can be largely ineffective for certain patients." (EVITA).

March 21, 2022 Monday  A rich day indeed. It began at 4:57 AM with reading Gurudev Shree Chitrabhanu's (1979) book once again, The Psychology of Enlightenment: Meditations on the Seven Energy Centers.  I found a special meditation that a Seer does in Jainism. A Seer is for me, someone shamanic. I realize I am studying core shamanism (Michael Harner's approach) but also for over twenty years, since meeting Grace Ann, I have also be mentored by Chitrabhanu (born July 26, 1992, died April 19, 2019). Could it be that there is a shamanic Jain, and have known him all these years. Am I becoming a Jain Shamanic Practitioner. 

Gurudev was a co-founder of JAINA (an acronym), name for the Federation of Jain Associations in North America, founded in 1981, with a mission to preserve, practice, and promote Jainism in USA and Canada. Their logo is a bit different from the ones above. There are more than 70 organizations in JAINA, representing 160,000 members in USA and Canada.

replaced the swastika with the Jain Aum, due to negative connotations associated with swastikas in the Western world. Om (or Aum) is the sound of a sacred symbol in Indic traditions. Its meaning and symbolic shape varies between Hinduism, Buddhism, Sikhism, and Jainism.

Ōṃ (or Aum) (audio speaker iconlisten ; Sanskrit: ॐ, ओम्, romanizedŌṃ) is the sound of this sacred spiritual symbol

Om is also used in Jainism to represent the first five lines of the Namokar mantra, that I recite each morning and at bedtime.  I have my own version of the Namokar mantra:
Namo Arihantanam: I bow to the conqueror of inner enemies, I have no enemies, everyone is my friend,Namo Siddhanam: I bow down to those who reach perfection,Namo Ayariyanam: I bow down to those who practice before teaching the masters,Namo Uvajjhayanam: I bow down to those who experience the truth, the teachers of humankind,Namo Loe Savva-sahunam: I bow down all saints everywhere who walk the spiritual path.Eso Panch Namokaro: These five are the most important benediction,Savva-pavappanasano: They protect me from all harm,Manglananch Savvesim: Amongst all that is auspicious,Padhamam Havei Mangalam: This Navkar Mantra is the foremost.

The first Namo is Arihantanam, and it is the Jain name (Arihanta), that Gurudev gave me in 1995 when Grace Ann took me to meet him in New York.  Namo means 'I bow down to' Hanta (destroyer) of my Ari (Enemy like greed, ego, attachment, etc.). Aanam means teacher or preacher (what is a professor, if not that.).  Put it together: Namo+Ari+Hant+Anam means
I bow down to + Enemies (like greed, ego, & so on) + Destroyer (by making them friends) + Preacher/Teacher (my role in this life).  I bow down to the preaching of Arihantanam.

As he explained it, I took notes, but I only remembered the first part about conquering my inner enemies, I meditated each day on it, for the first ten years. I returned to New York to his apartment, and asked for a new name. He asked me 'why?' 'I am so tired of conquering my inner enemies, I need a rest.'  He replied, "Arihanta does not mean that. In Sanskrit, it means, you have no enemies, everyone is your friend. Make your enemies your friends."  This changed everything about how I viewed my life. I am learning this year, that it also means non-attachment toward worldly process. He gave me a commemorative coin from JAINA, with Sanskrit phrases on both sides, and symbol of two deer face-to-face on one side. I still have no clue what that all means, but in time I will find out.
I wrote out the instructions of the Shamanic Seer (observing actions, reactions, and interactions) on an index card

Side One:
1. Sit in open air place, and with eyes partly open and partly closed,
2. Begin Prana Yama breathwork with ratio 4 : 16 : 8. In one nostril for 4 count, hold for 16, and release out other nostril for 8 count. Do this about 10 times. It sends oxygen to all the blood cells of the body and releases carbon monoxide.
3. Then recite the mantra, 'hrim' for a little while as I do steps 4, 5, & 6:
4. Gaze the ground in front of me
5. Lift my gaze to the middle point between me and the far horizon. 40 seconds
6. Raise my gaze slowly to the farthest horizon's limit.
7. Slowly bring gaze back to middle point, then to ground before me, and then close eyes.
8. Use inner seeing and repeat the gaze to the ground before me, the middle horizon, and far horizon
9. Attune to each of 7 chakras energy centers, one by one, beginning with ground (root chakra)
10 Look up the seven chakras energies with finer levels of seeing awareness to gave one's own Divinity within.
11. Feel the steadiness and sureness
12. Your inner energy seeing reaches attunement as your image of the physical world gazing you did fades.

Back side of Index card list some aspects of the 7 Chakra energy gateways (Click here to see chart).
1. Shivam Shanti is mantra, symbol is square for Earth. It is base of space of body and sense of smell
2. Mano Ramam is mantra, symbol is Cresent Moon, a boat with a sail on water, located in pelvis, and its this Mind-Player I keep working with because the cancer cells are in my gut. The sense is taste.
3. Rama is mantra, symbol is triangle with logs to make fire, in navel of body, where my indweller resides, and the sense is sight.
4. Sohm is mantra, symbol is circle with a heart in center, the element is air, the sense it touch, and so him means "I am that' and I also say 'Na Hum' (I am not that), and ask the question Kohum (who am I).
5. Aim is the mantra, the symbol is an oval with a smaller heart in the center, the element is space, the sense is hearing and it means threat, finding purity of my own voice.
6. Pragna is the mantra, symbol is THird Eye, it does not have a sense, but means thought, wisdom, and compasion.
7. Om Arhum Namah is the manra, its the crown chakra, symbol is many rays of light, it is my inner Divinity, my consciousness, and my Self.

Each week I focus on one chakra, but to the Side One meditation each morning. Sometimes sitting in a particular place with an amazing horizon, other times, its done while I walk or jog through the desert.

After the morning writing and the morning meditation, we had our Zoom follow up with the Integrative Medicine doctor at MD Anderson Cancer Center. We asked about the mushrooms I was taking and would that be acceptable. She was very positive since mushrooms are part of cancer treatments in Japan, and there are hundreds of studies in Asia of which mushrooms are efficacious with which cancers. But she also gave us the side effects of mushrooms. I recounted the story form my daughter Renee.

March 22, 2022 Tuesday  Today a Kidney biopsy while on and in the CT Scan Machine.

I woke up at 3:49 AM. Close enough to 4. I would have a couple hours before Grace Ann gets up.

I did my 75 pushups and my prayers, the Namokar mantra, as usual. I wrote in my notebook about push and pull storytelling. The Before heart pushes my life forward. The Bets heart pulls me into the future. The nautilus of my Being is detaching from the push-pull storytelling. It's not just dropping into the freedom of the now. It's the whole of primordial past lives I carry into Being-in-the-world. How I have these desires, a will to achieve, and get into so many bets on the future I lose focus, lose my grounding. I'm dialoging in the notebook with Heidegger's book (1950), What's Called Thinking? (hereafter, WcT). Going to the Beyond heart from the shallow surface of the Cracked Beneath heart is part of this wholeness of space and time.  Some bets on the future pull us to establish our dominion over the Earth.  We get caught up trying to be free of the push-pull, only to be caught in the cracked heart, unable to go Beyond.  I want to pass Beyond the physical, ad Beyond the five senses, and Beyond the broken Beneath heart of so many conflicts I am caught up in, and want to disengage from. 

Are People 'Rational Animals'? Heidegger is writing about how humans are supposedly 'rational animals' but don't seem that rational at all. A rational animal thinks beyond one's own push-pull storytelling hearts, and surrenders from Beneath heart to the Beyond heart, jumping headlong into the void called 'surrenders to spirit.' 

As I ponder my book about the enthinker, Louis Ralph Pondy, I comes to me. Pondy was a seer, dialoguing with "the antecedent fate of Western thinking" (aka, Management Thought) (Heidegger WcT 1950: 59). Pondy sets up storytelling conversations between what is pushing Management Thought and what is Pulling it to becoming the future of the Earth, but not by some higher purpose called sustainability. Management Thought's bets on the future are a more degenerate imagination, more about dominion than caring.  Pondy (1986) in that bold 'true storytelling' presentation, his last to Academy of Management, confessed the failure of his most famous model (1967), still concealed was a  seer's advice. He saw what Heidegger and Bauman saw in Nietzsche's book Thus Spoke Zarathustra. 


Raining outside, so no running today.  So I kneel on the bunko, and did my horizons meditation with
Prana Yama alternate nostril breathing (4 in, hold 16, 8 out).  In the near horizon, a pile of rocks all moist from the rain. In the middle horizon a different tree to focus on that sort of looked like a person, maybe me. In the far horizon, the Organ Mountains. formed 32 million years ago, were caressed by fluffy clouds, evidence of snow there. I could make out the volcano plug, left when the magma oozes from great depths of the Earth, pushing up layers of rock, ejecting vast quantities of ash, rock and lava over an area of 100 square miles, including where I now live on the East Mesa.


The Organ Mountains preserve a complicated and
explosive history. During the Paleozoic Era (541-251.9
million years ago) (source BLM).

The short version of the Kidney Biopsy With the prep time and the half hour in recovery, this was a six hour event. This is my third biopsy and it was nothing like the first two. The January 20th prostate biopsy was quite painless. Some shots I could barely feel, then the 17 needles to draw the samples I did not feel at all. The 11 March pelvic biopsy of lymph node had some pain as they had to probe to find the location as I held each breath until told to breath.  I could feel something like a hornet sting as the search for just the right location continued. Finally, it was found, and sample taking needles of two sizes were used.  The prostate biopsy resulted in Stage 2B, an aggressive cancer had left the barn. The pelvic biopsy confirmed that it was the same sort of cancer as the prostate. I was moved from stage 2B to stage 3, highest risk rating. And doctors at MD Anderson concluded I was no longer stage 3, it was full on stage 4, malignant, millions upon millions of masticating cancer cells were proactively colonizing my body's 13.7 trillion living cells.  So far, not to the skeleton, to the bone.

So all in all I expected as a veteran of two biopsies this one would be a piece of cake. I had Little Buddha to clutch in one hand, ear phones to listen to my Shamanic drumming recordings, and one of those airline eye masks so I did not have to stare into the harsh lights.  I was set.

Now for the Journey of a Kidney Biopsy We drove to the hospital and arrived on time. I waited for the admissions interview.  She was very competent, not asking questions there were there on the computer screen.  I signed permission for the procedure. She asked about my Living Trust. "I have one, no one in New Mexico or Texas seems to be able to find it."

I was escorted by another nurse, through a maze of corridors, to a special wing of the hospital. I stopped to go to the restroom. Take the breaks where you can find them.  I waited and an RM came to escort me to yet another waiting room, this one with a bed on wheels, an EKG machine, and so on.

I had been told last week in phone intake, this would be like the colonoscopy, I would be in dreamland, and awake when it was all over.  The RN asked the usual questions.

What is your date of birth?
Do you know why you are here?
What will happen to you today?
Who is picking you up today?
What is their contact number?

I answered, and signed two permission forms, for the procedures.

Then the RN gave me the IV in my left arm and it was an easy needle. She did a great job, and said I had great veins, making her job easy. She told her I looked forward to dreamland. "Oh no" she said, adding, "You will be awake for this procedure.  We need you to respond the the CT commands to hold your breath, and when we roll you out of the machine, to hold your breath just the same way while the needles go in."

I had an intuitive feeling, I was in for the wild ride. As Pamela Caldwell tells it, there are two kinds of intuition, and both were suddenly awake:

"Intuition can be described as that sneaking suspicion that you feel when something is not right, but you can't put your finger on why. However, this feeling can get confused with the scared ego. The scared ego has an essential role to play in our safety. It signals us when we are in danger. However, it cannot distinguish between the danger we may face from walking alone in a dark alley at night versus the ‘danger’ of failure or humiliation" (-- Pamela Caldwell email Mar 23 2022, used by permission). 

Yes, something is not right to my suspicious ego, and my sacred ego has an important role to play in my safety. Danger! I am walking in a dark alley. My pee alarm went off, and I asked to get unhooked from the IV.  "Wouldn't you rather have a male urinal, here in the bed?" she asked. "I never did that before.  Rather just go to a restroom."

A male urinal 
I need one of these for potential emergencies. Mostly for peace of mind. I opted for the restroom.

I thought about my fate in the restroom.  Went back to the bed and IV was reattached, along with EKG monitoring clips across my chest, and on my right arm, an blood pressure band that would periodically contract, but not painful.  On a finger of my right hand a blood and oxygen monitor clip. 

Then nothing. Just waiting an hour until I was rolled to another waiting room, near the CT room. I told the nurse pushing my be, I'd like a restroom stop. I have overactive bladder. Since the March 3rd  Cystourethroscopy at MD Anderson, I was only peeing 3 or 4 ounces. Did a 7 yesterday with proper hour of sacred meditation. 

I waited an hour, perhaps less in the waiting area, then it was time to be rolled into the CT scanner room. I asked about bathroom break. "No way. We can provide a male urinal. You must stay in bed for the entire procedure."  My last CT, the operator let me have a break whenever. Not this time.

I repeated the hrim mantra, to myself. My right leg hurt. a rash had formed on my back, likely from eating the Lion's Mane mushroom raw.  I did my running and exercising, and got the flow working yesterday, but now it was back.

I did my meditation to the shamanic drumming, kept my eye mask on, and waited.  It was time to be rolled into the operating room.  I took out my Heidegger book, and try to make some notes.

Enthinkment opens Management Thought up to become something it has never been before.  No longer about craving, greed, selfishness. I exaggerate, only a bit. Pondy passes over the obserpasses.

"Behold! I show you the last man" (WcT 73).  I will write it this way: 'Behold! I show you Pondy the last thinker.' I show you the last Management Thinker. I teach you about Pondy...

I am the one calling the Management Thought to an awareness of the contributions of Louis Ralph Pondy, my mentor who believed in me, in my storytelling path and encouraged me.

Duncan wrote this in an email Mar 22, 2022, and it gave me strenth to go on.
"It is one of the most touching things you could ever do for Lou Pondy.  The first thing that came to mind was Plato's recording and expanding the ideas of Socrates; in the process both of their thoughts were preserved for posterity.  Just like Lou is a friend and mentor for you, you have also been a great role model and mentor for countless others (especially me)" --- Duncan Pelly

My journaling is interrupted. The RN rolls me into the operating room. SHe had me slide from the rolling bad onto the plank. It was not as padded as the bed. I lay on my back. The nurse pulled up my gown to expose my pelvic area.  She washed it, and put tape around a sterile area.  The Intervention Radiology doctor came in, "you will be awake for the procedure. I will numb with Lidocaine injections. Lidocaine injection is used to cause numbness or loss of feeling in the pelvic area, for the kidney biopsy. By blocking certain nerves using the brachial plexus, intercostal, lumbar, or epidural blocking techniques).

I read Heidegger, but I cannot keep up with his medical semiotics.  "I will need you to hold your breath when the machine or I tell you to do so. Can you do that?"  "Yes, I reply, I meditate and do breath work, so no problem.

The Lidocaine shots are on the surface, on the right pelvis, as I lay on my back. Two shots pierce the flesh, and they hurt.  Then comes the probe needles. The doctor shoves them deep, well below whatever fleshy surface was numbed by Lidocaine. My legs react, and shoot straight up, and the nurse holds them down. "That really hurt" I add. "Yes, there are many delicate nerve ending around the kidneys.  "Hold your breath" I am going to insert another one."  "Oh Shit!" I cry out, legs kicking into the air, then I apologize, "Sorry for the language, I am trying to experience happiness, joy, and equanimity in the valleys between the pain."  Not sure how much they heard me.  They scurry from the room, and the machine takes over. The plank slides into the Scanner. The machine says, "Hold your breath", like 2 seconds, and it says "Breath."  The plank slides out, after a while, and before too longer the team of doctor and two nurses are back. "You are still millimeters away" says one nurse. "Try this direction" says the other one.  The Intervention Radiology doctor says, "its hard to find it. It moves when you breath."  I tell him, "I did hold me breath."  "Yes, you did fine, it takes a while to find it so we can take the samples."

According to the Mayo Clinic: "Pain at the biopsy site is common after a kidney biopsy, but it usually lasts only a few hours. Arteriovenous fistula. If the biopsy needle accidentally damages the walls of a nearby artery and vein, an abnormal connection (fistula) can form between the two blood vessels" (More from Mayo Clinic).

According to Mount Saini:
"
The numbing medicine may burn or sting when first injected. After the procedure, the area may feel tender or sore for a few days. You may see bright, red blood in the urine during the first 24 hours after the test...

" (More).

More than once the needles were inserted, after a Lidocaine shot, that numbed the surface, but not the deeper nerve endings.  About six times, the needles, hold your breath, and checking the CT Scan pictures.  I used the peaks of pain to practice getting quickly into good humor, doing idle talk with the team, and using my Jain breath work when not told to hold my breath.

I did a Jain Seer's shamanic journey of the three horizons. I found the path to lower world and to Little Buddha and Little Mahavira. I danced around the fire on the beach with all my power animals. They gave me messages that helped me.

I had some time, so I went to my jumping of place to Upper World, a tree I once climbed, the other side of Mount McKinley. I quickly took the elevator up to see Wilda my grandmother on my mother's side. She said, 'you are being brave. It will be over soon." I went up Mountain Raineer, climbed the cloud bank, and ran to see 'Ralph.'  I asked, "Can you be Louis Ralph Pondy today?"  And he was Pondy, then and there.  asked Pondy, "Are you OK with what I am saying about you, the 'enthinker' par excellence. I am clearing a path for Management Thought to give you your due. You were able to pass over the common Management Thought and ask, what it could be thinking. You confessed the failings of your own models. Hope you don't mind me pointing other failings out. I want to clear a path so Management Scholars, can see the multiplicity of paths you took as a thinker.

Pondy said I was creative, and he was OK with it. He reminded me of the gift he gave me in 1978, a copy of the book Hope for the Flowers by Trina Paulus (1972.  I was hurt when I read it. I got the gift's message. I was a caterpillar, climbing a caterpillar mountain, climbing over their bodies, drawing blood.    Am I that striped caterpillar climbing the Academia Mountain of Management Thought? Yuk!

Pondy's message, you don't have to climb over anyone. You can be free, become the butterfly I know you to be. Get out of the push-pull trying to prove your self-worth. You are worthy as you are. Spread your wings and fly. 



I see my own journey. Pondy the mentor, 'Hello World!'


I want to head to the third level of Upper World, to the four Shamans I visit. I climb the rainbow, jump through the clouds. I want to ask if Gurudev is one of the Shamans? Am I one of them from a past or future life? A seer.  There is a loud shout and I tumble out of my shamanic seer meditation...

"We got it" shouts the doctor. He is excited. I am relieved. The targeting needle explorations have stopped. He gives me a series of Lidocaine shots using a gun that pops. It's same as used in Prostate biopsy. Been there done that, so I breath into it.  He then inserts the first of three biopsy sample.

Biopsy needle has hallow tube, and a plunger to draw a sample from the Kidney

After Care Room It's time for the recovery room. I slide form the plank of the scanner to the rolling bed. I am rolled through the maze of corridors to where they park the recovering patients.  Nurse, "You must roll onto your side and apply pressure to the wound. It helps the blood to clot. You will be here half an hour." I reply, "I am a good clotter.  When do I get my ice cream. Kids get all the goodies, adults, what do we get?"  She ignores me and wanders off.

She comes back after a few minutes to check on me. "Can I go to the reat room. I was in there for quite a long time."  Without thinking, "No, you stay here 30 minutes."  "It's kind of painful laying on the wound." She replies, "Have to put up with it. I can get you a male urinal."  I say, "OK."  I put it on its side, and wait to pee. Nothing happens."  I feel comfortable with a back up plan, and wait out the 30 minutes. 

I head to the restroom, after being detached from IV, EKG, and the heart/oxygen monitor.  I finally get to pee. I am learning to not rush it, don't squeeze, give it time to happen. I pee for a long time. I think it is a new record. I notice that the pills I took Friday and Saturday are working overtime. I say, "hey this is a surprise. You need to calm down, I have to go back in the hall. But its nice to see you. Why now?"

I asked my friend an MD about it. "Yes, that happens when you hold your peed." Great, that gives me incentive.

I am sore, and wheeled out to Grace Ann, waiting at the entrance.  Into the car, we head to the India Hut, and order Vegetarian Samosas. It take about 40 minutes to get the order into the iPhone and for it to get prepared. We wait for a beep to tell us its ready. No beep comes, so I get out, and mask up, and head inside. "Oh, its been ready quite a while." Great!

I am sore, uncomfortable, and good news my rash is subsiding on my back, and my leg circulation is good.


We watch a 1963 Joann Woodward and Paul Newman, romantic comedy, and its off to bed. It's very sexist, but a happy ending.

I sleep and do not get up once to pee.

March 23, 2022 Wednesday.

In the morning, I pee almost 8 ounces. I'm back! A restful night. No running or push ups today. I do my dialogue, journaling with Heidegger and Nietzsche, to get a handle on Pondy, the thinker, par excellence.  I worked on a PUSH-PULL theory of storytelling. I notice its not so east to get into Once-Recurrent-Being, that Now. I keep being Pushed and Pulled by Storytelling and need to go Beneath into the Beyond. I need to walk the tightrope across Being, and jump into the Beyond of Mind Body Spirit.  Here are some key points.


Boje new model of PUSH PULL storytelling

My Model of getting Free of SURFACE-PUSH-PULL Storytelling

I am pulling together my insights into getting Beyond the Push-Storytelling past I bring into Being, and Beyond the Pull-Storytelling of my craving, desire, attachments to Bets on The Future.  On the surface of storytelling I am out of touch with Mind Body Spirit.

I am on a path of becoming a Jain Seer, a particular shamanic journey.


March 31- Houston

Your doctor has ordered a Piflufolastat (PSMA-PyL) PET/CT scan for you. When you arrive, you will be asked to change out of any clothing that has metal; scrubs are provided. Please leave your jewelry at home. We will conduct a short interview, obtain IV access, explain the procedure, and inject the radiopharmaceutical. Your scan may include oral and IV contrast media. After the injection, you will relax alone in a room for 60-90 minutes. The scan ranges from 15-45 minutes. From start to finish, you should plan to be in the PET department for 2-3 hours.
 
BEFORE YOUR PET APPOINTMENT:





Some Practices I do Daily as Practice of My Integrity of Self-Healing the Jain Way


 How I feel"
How I feel as I do Mind Body Spirit Self-Healing

 


Prostate Yoga to heal enlargement Click Here for exercises to heal enlarged prostate.  I am doing these exercises
I will be going to MD Anderson in March 2022 to see if the enlarged prostate and its PSA score have shown improvement.  One thing I notice about MD Anderson is there are lots of questions about physiology, but nothing about the Mind Body Spirit.

Contrast with Mayo Clinic that emphasizes the importance of exercise for men with Prostate Cancer, because it improves treatment results.

Mayo Clinic on exercies by men with Prostate Cancr Click here for Mayo focus on exercise by men with Prostate Cancer helping the odds on treatments.

I know MD Anderson and May have some special programs diet, but so far at MD Anderson I am assigned to a prostate surgeon, with nothing about exercise, not interest in me as whole person. I am also taking vitamin E and zinc supplements, among many others. 

Prostrate Cancer Enthinkment slides
You can see in this slide set, that Prostate Cancer is quite geographically different.  It suggests diet, exercise, and life style are important factors not being very considered by the Medical or Business 'Prostate' industry.  It is interesting how many free Yoga, Tai Chi, Qigong exercises are free to anyone, which could explain why the Medical, Business, and University Industrial Complex pays them little or no never mind.   The holistic focus on Mind Body Spirit offers hope.  I woody Spirit practices, not just to improve odds of radiation or surgery treatments.


How to reduce prostate enlargement without surgery by AMIT Click here for Yoga exercises to reduce enlarged prostate without surgery

6
        Yoga poses for prostate problems Click Here

reduce prostate and frequent urination Click Here for Master Shin approach to reducing enlarged prostate and resolving frequent urination
http://www.jawellness.com/kienergy Due to high demand, Master Shin decided to teach DIY program to improve prostate problems. First half of this video, Master Shin teaches essential techniques, and in second half, you can exercise the sequence following Master Shin's voice. In this way, you can maximize the benefit of the techniques you learn in this video.

If it works all the better. If not, I feel hopeful, energized, and am not running to pee every 15 minutes. That part is working within a few days practice and what a relief. I am getting some self-control of body, my mind is relaxing, and my spirit is elevated.

This next one is in the category of How to Heal After a Prostate Cancer Diagnosis and Prognosis?

how to heal after a prostate cancer prognosis Click here for gentle Qigong exercises and wonderful affirmations
Qi Gong for Prostate Cancer Seminar
The exercises in the video pull in the Chi energy into Mind Body Spirit. The six affirmations are quite powerful and would be something doctors with bedside manner could use to help patients heal after they get the diagnosis of Stage II-B headed for Stage III, prostate cancer. These affirmations raise the spirit:

"My blood and Chi are flowing smoothly and beautifully"
"My body is strong healthy and flexible."
"My life is filled with peace and joy."
"I am blessed with good fortune."
"I have energy and vitality for healing."
"I give and receive love in abundance"

Can Prayer Heal Prostate Cancer. This is testimony of a man diagnosed with Stage II prostate cancer, who was allegedly healed, and a biopsy confirmed it.
Man with
        stage II prostate cancer allegedly healed Click here for his testimony

There are many claims of diet and exercise and meditation practices that help heal or just heal prostate cancer. This one is about 60 days of mushroom therapy that lowered PSA scores to zero.
60 days on mushroom power lowered PSA At City of Hope, 60 days on mushroom powder, and men with replapse prostate cancer after radiation, hormone therapy, and/or surgery, had lowered PSA scores dramatically
Going to look into it. However, I am more interested in getting to root causes.

Movie HEAL trailer Click here for the Movie Preview - is it too good to be true?
I went to Michael Beckwith's church some 24 years ago when I lived in Los Angeles. I watched the entire documentary on Amazon Prime (for a small fee), and signed up for the Science of Healing Summit. Science of Healing Summit: Explore the Frontiers of Biofield Science, Quantum Healing & Whole-System Therapies for Body, Mind & Spirit is Feb 28 to Mar 4 2022 Click Here to Register
On the one hand, the movie has same flavor as THE SECRET. On the other hand, the theory that the Mind Body Spirit is the healer, and we put too much faith in the West on surgery and pharmaceuticals, which treat the symptom, but do not get to the root of the problem in terms of preventative medicine and lifestyle.

http://www.healdocumentary.com A documentary film that takes us on a scientific and spiritual journey where we discover that by changing one's perceptions, the human body can heal itself.
The latest science reveals that we are not victims of unchangeable genes, nor should we buy into a scary prognosis. . Featuring Dr. Deepak Chopra, Anita Moorjani, Marianne Williamson, Dr. Michael Beckwith, Dr. Bruce Lipton, Dr. Joe Dispenza, Anthony William ' Medical Medium', Dr. Bernie Siegel, Gregg Braden, Dr. Joan Borysenko, Dr. David Hamilton, Dr. Kelly Brogan, Rob Wergin, Dr. Kelly Turner, Peter Chrone, Dr Darren Weissman, and Dr Jeffrey Thompson.


What I have in mind is embodied restorying process to help with healing Mind Body Spirit. I am changing my lifestyle. Today (Feb 25) I took the Lazy Boy chair to the land fill. Its yoga mats for me. I'm getting better at half lotus, and working with the Qi Gong, Tai Chi, and so on, experiencing joy and tranquility.  It is about empowering the self to have an internal locus of control. It starts with a Mason Jar.

This is step one, of MIND BODY SPIRIT work on prostate
        cancer Click Here for YouTube


 My YouTube on How Peeing in Mason Jar is MIND PLAY retraining your Subconscious Body Talk, to heal Prostate Cancer https://youtu.be/ljsOkzs8cPY


My name is Professor David Michael Boje, Ph.D. Please consult your doctors. I am a storytelling researcher diagnosed with Stage 2B (headed to Stage 3) Prostate Cancer, plus a Kidney Cancer.
I renamed my cancer the Little Buddha. Why? I use something call embodied restorying process to turn an enemy into a friend. Little Buddha is there to help me understand how to change my life into wellbeing. It has the story of how the Helping Spirt came to me in Shamanic Drumming Meditation https://davidboje.com/shamanic for weekly meetings on Zoom.


I use my knowledge of storytelling to create MIND PLAY to create my own placebo effect. I assume my body is this miraculous self-healing system, that has gone haywire in the chronic stress world I have lived in academic life, and before that as a Sergeant in Vietnam war, which brought me in contact with Agent Orange.


 I have been stressed out by the medical diagnosis, the treatments including get this, chemical castration. I was freaking out. My body wants to pee every 15 to 30 minutes. So I started peeing in a mason jar, to measure how many ounces per pee event.It's basic science of positive reinforcement.

 I discovered I have a pee capacity of about 8 ounces, and my Mind was telling my BODY TALKER (that internal subconscious storyteller) send signals to this guy that the bladder is full. Guess what? It was not full, just 2 ounces. I have been retraining the link between my MIND PLAY to the internal narrator (BODY TALKER SUBCONSCIOUS) to relax. I use some MIND PLAY positive self talk. "You are OK, You are not full, you have half capacity). It's basic science of neuro-linguistic programming.


 The usual advice is to tighten up the bladder muscles, instead I learn to relax. Why? Getting stressed out from a cancer diagnosis, makes me want to pee. Lowering the stress of my MONKEY MIND PLAY, I relax and the bladder is told by BODY TALKER (subconscious) to also relax.


 I can sleep more hours at night between getting up to pee.


 I have added 'Prostate Yoga', Tai Chi, and Qi Gong exercises, and am exercising and running miles each day. This does build up muscles, help Mind Body Spirit to relax. With each new treatment is a prognosis, wha I call a Bet on my future. You have this many months or years to live. But guess what? That is a probability not a certainty. I like my odds if I learn to relax instead of having more chronic stress, which some say, activates the BODY TALKER to call in more cancer because I am not dealing with the ROOT CAUSE. Western Medicine is narrow minded, all about the physical, the drugs, the surgery, and the radiation treatments. I seek a wholistic approach, and the Mason Jar is first step to recovery of my INTERNAL LOCUS OF CONTROL, and my SELF-EMPOWERMENT. I do not surrender my existence to the medical narrative. I have my own living story. if you want to learn the secrets of THINKING see ENTHINKMENT.com https://enthinkment.com/index.htm My work with Internal Narrator I call Body Talk is base on 20 years studying antenarrative processes (those fragmented pre-story processes) that constitute the Grand Narrative, and event the Internal Narrative of the Body Talker https://antenarrative.com


Mind Body Spirit I have no enemies, everyone is my friend!
I use 'embodied restorying processes' to make cancer my friend, not my enemy! Enemy energy is the wrong semiotics (grammar & language). My friends the two Little Buddhas (prostate cancer & kidney cancer) are my teachers. They are awakening me to the how to live my life here-and-now. The Little Buddhas are teaching me to live life Being-in-Enjoyment, Being-in-Exuberance, This is a tool we call Embodied Restorying Process (ERP). I will give you the steps and show why renaming Cancer to Little Buddha is part of Mind Body Spirit.

Some definitions, then the back story. What this is about?


Copyright TSI The Embodied Restoryteling Process ERP tool

1. Characterize my own qualities of empowerment and what the medical system can do.
2. Externalize by giving Cancer a name that does not make it an enemy. My chose was Little Buddha.
3. Sympathize with the benefits of Little Buddha. What is Little Buddha teaching me about my Mind Body Spirit? What am I learning? Can I be open to the journey?
4. Revise by considering the costs of Medical Semiotics and Business Semiotics selling me prognosis, selling me a future.
5. Strategize by reclaiming Little Wow Moments from the Before of my history, when I worked with Mind Body Spirit, when my body healed.
6. Restory by collecting several Little Wow Moments and making an Intention of Empowerment about your own Future, a Bet on the Future.
7. Publicize because you need to enlist support. I go public in this website because I am not going to put my self in a closet, cut off from the shamanic, prayer, and great advice I get from friends, colleagues, and doctors that think in terms of Mind Body Spirit. I tell what is the true story of my journey.


Embodied Restorying Process (ERP) is about Four ♥'s


Next the Four
's. Each is teaching me something about Being-in-the-world in Mind Body Spirit. I am learning to speak the language of the four ♥'s:

The Beneath ♥- of all the grammar, language, concepts (aka semiotics), and we go to the fore-conceptions beneath all that (Heidegger's 1962 term, fore-conception, means in-advance-of-the common sense grammar, language, concepts). I call this antenarrative processes (Boje, 2001).  There are seven, and this is the first one. Each antenarrative process (the Fore, the in Advance) is what is constitutive of two forms called 'narrative' and 'story.'  We are not only our Mind, we are Body and Spirit!

The Before ♥- is all the many different histories, most of this second antenarrative process (pre-history,  pre-story, pre-narrative) narrativists leave on the editing floor, and a shallow historical form, the narrative, or the story, as dumb as 'Columbus discovered America' becomes your 'grand narrative.' And a thousand antenarrative process bits and pieces are discarded. Big Mistake! Please do not pass Go!. Stop, go to the Before, recover your own 'Little Wow Moments' of you at your best (even if it was only just an infinitesimal moment of self-empowerment).  When it comes to history, most of the narrative advice is that only 'retrospective sensemaking' is 'existentially real.' Or, only the 'Now' is 'real.' Henri Bergson said only the past has duree  (duration).  The future is 'not yet' so we cannot know it. Karl Weick (1995) was making retrospective narratives (with beginning-middle-end) plots until (2012) when he celebrated for the first time, the antenarrative turn to prospective sensemaking I had begun (2001).  Now everyone is all about the two flows of time retrospective-prospective in inter-relationality. 

The Bets ♥- on the future. This is third of seven antenarrative  processes. There are many simultaneous Bets on the Future, each a prospective sensemaking. The bet made by couch potato munching junk food, no exercise, watch high stress movies, has a very predictable ending. It is a fools' bet on the future. It is Mind Play, that infects Body and Spirit! The bet of someone who lives life of Mind Body Spirit has a different ending. The common way to understand narrative is 'plots', but this misses the fact that there are so many plots attempting to have their fulfillment in Being (antenarrative process 4).  In short, we have choices, in the Bets we choose to live in our Intention of the Future that arrives in-Being. I have called it 'prospective sensemaking' for a very long time (Boje, 2001). I will skip processes 5 and 6, to keep it sweet and simple (KISS).

The Beyond ♥- Each heart has a bit of spirit. This is the 7th antenarrative process. The Beyond is about intuition, what Charles Sanders Peirce calls 'abduction' (hunches, wild guesses in need of testing), and what he calls 'Agape', that unconditional love, the 'creative love.'  Most colleagues don't dive into the Beyond and stay in the shallow end of the pool in the first three 's.

The Four Hearts Are Facing Being-in-the-World

Each points to Being-in-the-World, which is a chronic stress world until you restory it otherwise (Do-Be-Do-Be-Do, and most of all Not-Doing, Not-Forcing, Not-Pushing up stream. Instead going with the flow in what is called wu wei Taoism).  Each governs a unique ability to be your own True Self to heal Mind Body Spirit. Each has an important direction, pointing to Being (antenarrative process #4, depicted in that spiraling Nautilus shell).

Two ♥'s (2 & 3) are pointed at one another on the horizontal horizon of time. Time flows in two directions (future to past, and past to future). The two flows of time meet at Being (the Nautilus Spiral, with its winding & unwinding logarithmic energy). 

Two ♥'s (1 & 7) are pointed at one another; one dwelling on the surface (language, grammar, opinions, concepts, ideas--> semiotics), the other dwelling in the depths of our Divinity (our spiritual path).

Let your four ♥'s be your guide to healing Mind Body Spirit in a total approach to healing what ails you. We at (https:truestorytelling.org) use a spiral Nautilus to depict Being-in-the-World.  We uncover Being with the four ♥'s discovering what's true.  This is a total Mind Body Spirit approach to your own life transformation.  With the Mind Body Spirit practices of the four ♥'s you discover self-empowerment to empower your most authentic and true self.



How to think about CANCER? Please Do not fall into the Abyss of Medical and Business Semiotics
I am sharing this example of my own enthinkment-enactment-quantum storytelling encirclement of prostate and kidney cancer. We all have a story to unfold in Mind Body Spirit. Here's a secret. Align your thinking and your sensemaking with Mind Body Spirit inseparability.



You and I need that Beyond ♥ 'Abduction-Induction-Deduction (A-I-D) to sort out what the semiotics of the Culture Industry and the Medical industry is doing with its discourse of diagnosis, testing, and treatments. Another secret, it's not just the Mind, its Mind Body Spirit, so please 'Don't Over Think it!'


Do Not Over Think
          It?
You can order this button Here

Joke shrink prostate by putting it in mocrowave

Jokes Help (this in my doctor's office)



Don't overthink it!  Don't over-analyze your situation.



How Do Patients with Cancer Renegotiate their Placebo Effect? Please How do cancer patients renegotiate their own living story identity in relation to medical system that is authoring a cancer-narrative diagnosis and prognosis  of the patient, riven in medical semiotics? In other words, there is a strange relation between the medical narrative by the medical system, reifying and objectifying cancer and appropriating the patient’s living story of their own life. In short, disempowering the living story. I contribute an antenarrative method that use mind play in relation to body talk’. 

It is widely known (mostly ignored) that back pain is mostly psychosomatic (Sarno, 2001; Rashbaum & Sarno, 2003).

“Using the actual case histories of his own patients, Dr. John Sarno shows why tension and unexpressed emotions particularly anger cause chronic back pain, and how awareness and understanding are the first steps to doing something about it” (Sarno, 2001: i).

How to DO MIND PLAY process that activate INTERNAL (Subconscious) storyteller in you? Please be careful not to OVERTHINK or your mind does a MIND PLAY not good for your WellBeing.

Medical narratives of prostate cancer tend to draw “a sharp division between the things of the mind  and  the things of the body,  and only feel comfortable with the latter.” (Sarno, 2001: 2). I propose practicing antenarrative processes (pre-narrative) in order to change the way my mind talks to my body.  I call this antenarrative ‘mind play’ that changes ‘body talk’ releases different psychosomatic instructions to the body to relax instead of freak out. How does storytelling use the psychosomatic effect in mind play? With patient doing mind play, “… a command decision by the mind to produce a physical reaction rather than have the individual experience a painful emotion” gets inerrupted (Sarno, 2001: 5). The body is trying to protect the mind from trauma stress by giving the mind some pain in the body to take one’s mind off the emotion the person does not want to and is incapable of dealing with.

My point here is the mind interacts with the body, which makes what I call ‘body talk’ very important to not just back pain, but how stress and emotions of fear, anxiety, anger, etc. affect prostate treatment outcomes. Cancer must be resolved in the patient’s mind or the cancer will persist. The body is helping the patient to not deal with the root emotional cause of stress in one’s life.

How to DO BODY TALK? Please  be careful how you do MIND PLAY, since your internal storyteller does BODY TALK.
Here’s the thing about body talk.  The mind can change signals given to the body to process. Instead of confirming the medical narrative, confirm self-empowerment. By exercising, doing yoga, running an hour or two each day, Qigong, Tai Chi, Kung Fu, my body becomes vigorous, muscled, flexible, and healthy. That does not fit the medical narrative of unhealthy body, surrounded mind. It does not fit the expectancy the medical narrative has of being stressed, anxiety-ridden, or depressed and incapacitated.  It is an embodied restorying process over an extended time period, (months and then years). My mind is doing persistent and constant ‘body talk’ telling the body, to relax. The mind is kicking different body chemistry in place, by engaging in different body talk.

Loss of Patient’s Authorship of their Living Story as its Colonized by Medical Narrative Semiotics
In the medical narrative, the patient looses authorship of their own life.  And then must reconstitute their hero’s journey, while surrendering authorship emplotment to medical narrative emplotments of their past, present and future. Looking at medical semiotics, “The very language of illness narratives betrays this duality between the illness and its telling” (Mathieson & Stan, 1995: 283-284). “Illness narratives are particularly subject to this implicit schism between that which is lived and that which is narrated” Mathieson & Stan (1995: 283).Mathieson and Stan (1995) studied patient’s narrative identity work, living with cancer by sorting disrupted feelings of fit, renegotiating identity and feelings of fit, doing biographical work. Patient’s experiences in medical institutions affect patient’s evaluations of the meaning of their illness within the actual context of ongoing, organized social relationships, including the medical system.

Antenarrative processes (Boje, 2001) are by their very nature disjoined, fragmented, and can be contradictory. “The narration of illness is often described as 'trying to make sense of that illness,' even if the narrative is disjointed or contradictory, and it’s metaphorical and representational nature is stressed” (Mathieson & Stan, 1995: 283).
 
My question is what happens to cancer if patients with cancer if they re-antenarrate and restory medical narrative fragments of their cancer existence by doing acts of self-empowerment, once again becoming the hero of their own living story and the author their own life? I suggest that by doing what Pondy and I (1980) called ‘Bringing Mind Back In?’ the physiology of the body alters the signals that tell the body to mutate cancer cells, or not. In other words, by a process of ‘enthinkment’ the conscious mind reprograms the narrative of the unconscious mind to change cancer production. 

“For cancer patients these stories have a special meaning. In negotiating their way through regimens of treatment, changing bodies and disrupted lives, the telling of one's own story takes on a renewed urgency” (Mathieson & Stan, 1995: 284). However, medical organizations assemble medical narratives from biopsies, blood and urine tests, cat scans, and other techniques without much concern for the patient’s own storytelling.

My theory assumptions: By accepting medical narrative bets on one’s future, the conscious mind informs the subconscious mind to release neuron-chemical synapse signals for cancer to increase cell production. By contrast, an empowered restorying of antenarrative processes can potentially lower attainment to fear, anxiety, and ambiguity, thereby the body de-stresses and relaxes cancer production, and the body’s self-healing kicks in again.

Paul Ricoeur concluded a consideration of the relationship between narrative and life by claiming that 'we learn to become the narrator and the hero of our own story, without actually becoming the author of our own life' (1991:32, italics in original).

Conversational Storytelling
Conversational storytelling (Boje & Rosile, 2020) are forums of 'joint action' (Shotter 1993).  With a cancer diagnosis I have to make sense not just of cancer-illness, but of my life. My bets on the future begin to take cancer prognosis into consideration.

I reflect upon elements of my life which I have never narrated before, and had no understanding of their role in my identity, up to the point of receiving the cancer diagnosis and prognosis.

Psychosocial Oncology 

The psychosocial oncology literature continues to produce at increasing rates normative and statistical data on the 'problems' of cancer patients:

(a) research on site-, stage-, and treatment-specific concerns for patients,
(b) pain management,
(c) therapeutic interventions,
(d) the role of social support,
(e) family adaptation, and
(f) psychosocial sequelae in cancer survivors.

This last one, psychosocial sequelae, intrigues me.

what is Psychosocial Sequelae?  to MIND PLAY in ways that Aggrevate BODY TALK to request More CANCER? Please It is when the medical model uses psychoanalytic (psychosocial) assessment criteria, that subverts your cancer symtomatology to aggravate BODY TALK ti initiate more cancer, instead of less. Why? More MIND PLAY of angst is telling BODY TALK to activate cancer to take your mind off your deeper problems.

Using traditional Medical Model, measures of psychosocial sequelae have relied on psychiatric indices to assess the 'impact' of the disease. Patients are classified according their their emotional reactions to cancer. 

What happens when cancer patients are medically diagnosed with anxiety or depression?

Rates of depression in psychosocial sequelae studies have been reported to be as high as 75%.

What is the mind accepting anxiety, fear, depression as its narrated role directing the body to do with cancer cells?

What happens when the medical narrative by the medical system does not deploy the usual psychiatric criteria?

“When assessment of the psychological status of patients employs non-psychiatric criteria, reported rates of symptomatology fall within the 10-30% range (Cassileth, Lusk, Brown, Cross, Walsh and Hurwitz 1986, Weisman, Worden and Sobel 1980, Wellisch, Landsverk, Guidera, Pasnau and Fawzy 1983)” (Mathieson & Stan, 1995: 285).

What if going the psychiatric route, aggravates the body’s innate ability to cope with cancer? “The psychiatric studies often call for treatment of negative affect in cancer patients with medications and/or counseling referrals for psychopathology…” (Mathieson & Stan, 1995: 285).

What’s the alternative?  We call it ‘enthinkment’ self-efficacy: “Cancer patients adjust to their threatening situations through cognitive activities (e.g. self-enhancing evaluative perceptions, thoughts, inferences) (Mathieson & Stan, 1995: 285).

How does all this relate to seven antenarrative processes pre-constitutive of narrative and story coherence?  “Proponents of this view further believe that maintaining sharp distinctions between self and others is a necessary requirement for the psychologically healthy individual. Once internal control is established as the ideal, the research assumes that cognitions are prior to and constitutive of social life and context” (Mathieson & Stan, 1995: 286).

By Bringing Mind Back In, there is a shift in the framing of the relation of medical narrative to the patient’s own living story.  Medical narratives produced by the medical systems rarely inquire into the patient’s actual meaning of cancer in their life world.

For an extended time duration, institutional events such as the diagnosis of cancer with blood, urine, biopsies, and cat scans, then with second opinions, becomes the central life experience. After that, for extended time duration, comes the prognosis estimates of life expectancy probabilities with this or that treatment. Here is the kicker: “Yet psychosocial researchers have ignored patients' reports of difficulties of dealing with the demands of institutionalized medicine, which is considered instead to be non-problematic.” (Mathieson & Stan, 1995: 286).

What’s missing here? “Missing is a description of living with cancer which simultaneously accounts for the individual's experience of illness as well as the organization of a patient's social world and its location in a medical system” (Mathieson & Stan, 1995: 286).

As someone with cancer, there is a continual readjustment of my identity narrative in the face of medical system diagnosis testing, and prognosis probability accounts.

I now reject the notion that I am a self-contained individual who is 'managing' some unified event (i.e. cancer). Rather it’s a series of fragmented events over and extended time duration.  Cancer itself is far from unified.

“Self-narratives are part of an open-ended process, with continuous transformations, which provide a meaning to daily interactions” (Mathieson & Stan, 1995: 288). This is what I call antenarrative process that are antecedent to and pre-constitutive of medical narratives and my own living story of the cancer’s characterization. 

Using first wave Grounded Theory method, these kinds of questions that were asked (Mathieson & Stan, 1995: 291) relating directly to Enthinkment (E1):

“Describe to me what you recall thinking at the time of the initial diagnosis.”

“What is different about yourself since your diagnosis?”

“What is different about your body since your diagnosis?”

“What do you think caused your cancer?”


“What does the term the 'future' mean to you right now?”

“What are your feelings about your life expectancy?”

“Do you feel your cancer is/can be cured?”

Analysis of the transcripts put forth the following questions (Mathieson & Stan, 1995: 293) about disrupted feeling of fit:

Disrupted Feeling of Existential Fit: “Is my life changing? How is my life changing?

Biography [retrospective view of self]:
“Who am I, now that I have had cancer?”

The [prospective sensemaking] Future: What changes are permanent?”

Biography: “Does cancer fit in my life? What does cancer mean to me?”

Illness Trajectory: “What is the patient role? How should I act? What should I expect?”

Stigma: “How does my social world view me?”

Voice: What is my relationship to institutional medicine?


“For example, a 46 year- old man with bone cancer, when asked, 'What things are different about your life now than before you had cancer? responded” ((Mathieson & Stan, 1995: 294):

“The focus of concentration on the things I think about are entirely different now . . . all your plans are future oriented . . . and that is taken away from you . . . my body keeps letting me down in various ways . . . I feel like it's betrayed me sort of, I guess.. . . Some people who I was quite close with just kind of disappeared. . . . I know cancer patients are chronically ill or terminally ill people, but I feel useless, because I can't do anything any more. I can't work properly” (Mathieson & Stan, 1995: 294).


HUMOR about CANCER? Please laugh often as part of MIND PLAY to increase Internal BODY TALK Roaldsen, Sørlie, and Lorem (2015) take a socio-narrative approach to human and cancer. humor in daily life plays an important role in stress and coping with cancer from the initial diagnosis through  treatment, and the entire illness trajectory. Socio-narrative gives insight in to self-understanding in relation to social interactions.


How Humor helps cure cancer


Metastatic Castration-Resistant Prostate Cancer (mCRPC)? Look at the Mind Body Spirit results and prepare to be amazed.  De Vincentis et al. (2018) use narrative to study of patient awareness and quality of life with  metastatic castration-resistant prostate cancer (mCRPC).


“Prostate cancer most commonly metastasizes to the skeleton, leading to extremely fragile bones.” The mCRPC scenario has an impact on patient’s quality of life.  Even before it metastasizes, prostate cancer through all phases of from diagnosis reveal, more testing, prognosis, and treatments to prevent metastasizing. “After an initial lack of awareness of the disease or denial of its effects, symptoms of pain, fatigue and side effects often led to sadness, fear and loneliness.” 

Is this the only possible scenario, the only antenarrative bet on the future.

The narrative patient journey of persons with prostate cancer.

“Symptoms, such as urinary problems, were present in 77% of patients before the diagnosis of prostate cancer.” Then comes the PSA testing, and high scores call for biopsy and body scans.

Overall results for De Vincenti et al:

* Patients experienced a substantial impacton quality of life, particularly interms of patients’ need ... for at least several hours a day and difficulties in walks because of bone pain and fatigue.
* Care givers experienced a substantial psychological burden because of assisting the ... with metastatic castration-resistant prostate cancer.
* The participants’ perception of radium-223 was overall positive, since it was considered by the majority helping to restore patients’ daily activities and to improve quality of life.
* The memory of emotions at the diagnosis was removed by the majority of patients, revealing an initial lack of awareness by them.
* Consequences of standard treatments on sexual function were initially not completely clear to patients.

My intention is to Relax, by quieting my chattering thinking mind, quiet my overactive sensorium (5 senses) hypervigilance, to relax Mind Body Spirit. I align Mind Body Spirit with Shamanic Practices, with Shamanic Drumming, Sifu Paul Wong's Art of Tiger Zen (weekly sessions click here). Sifu Wong teaches my youngest son, Chinese Kung Fu.  He is in late 30s. We sometimes read from Sifu Wong's book. She has been coaching me weekly on doing breathing while I pull in energy and get blood circulating in arms and legs.  It is most helpful. Here is Sifu Wong doing a training in Chinese Kung Fu.


Sifu Paul
                          Wong Click Here


I do a lot of Shamanic Yoga (Shamanic Yoga, the Ancient Yoga of Non-duality. Selene Calloni Williams ; podcast with Selene). I add in lots of Body Mind work with Tai Chi and Qi Gong tapping; Qi Gong for Beginners. I align enthinkment and enactment attunement to relieve any brain fog of monkey mind, to realign mind body spirit beginning by tapping the body, Shaolin Qigong 15 Minute Daily Routine, please do a Mind-Body water up, fire down (Belly Warm exercise affects thinking that heats up one's brain), and my enactment-sensemaking is not all there is, and brain wave vibration, is important, and still there is something BEYOND, I am 'surrenders to spirit' (my Vision Quest name). In our bodies, there is Yin and Yang flow, that gets out of harmonious balance. Yin is the inside of of limbs and torso, Yang is the outer. Tap the inside of arms, legs, etc., then tap the outside. This Mind Body Spirit exercising is a good balance to the business and the medical semiotics, insurance industry semiotics, consumerist semiotics of the cancer Medical Industrial Business Education Complex, and I transform it's toxic waste into wonderful oneness of quantum energy flows, because everything is spirit (e.g. brain wave vibration exercises), body, and mind, all spirit. I am doing all the above to detoxify this body, increase energy flow, and let the toxic stress leave my body. Why?  The Mind Body Spirit is a together telling, a together natural healing, but we as human species lost the operating manual to self-healing.


Energy work is essential for Mind Body Spirit balancing when one gets a cancer diagnosis. Consider that I learned I had not one but two cancers, one aggressive, the other hopefully not so much. The diagnosis sent me into traumatic shock, and the above practices calmed Mind Body Spirit, let it all Relax. I transmuted toxic semiotics into healing semiotics. My intention is not fear, it is gratitude for it all. I am on a journey of joyfulness, bliss and serenity in my here-and-now, to extract the spirits of the diagnosis, the treatment, to enter into forgiveness relationship with Little Buddha (& Mahavira), and think and sense everything differently. My future has light at the end of the tunnel, but not if I buy into the prognosis and let that narrative run my whole life.


One daily Qigong practice really has helped lower stress, get the meridian energy flowing, and is an excellent counter to Medical language that carries such stress-inducing vibrations. Marisa has a series of videos, all excellent. This one my wife and I began doing daily as our morning routine.


Marissa is an excellent Qigong trainer Click Here

Marisa's videos helped me deal with this next bit of news about my Body. I will wax theoretical as my Thinking gets a handle on the language vibes, then return to the energy work. Stay tuned.

Chemical Castration? Please say it isn't so! Then the trip to the radiation doctor, I learned that whatever treatment (radiation or surgery) involves shots and pills that constitute chemical castration. No man want to hear that. It disrupts and collapses my Mind Body Spirit energy field. The diagnosis itself is a spiritual invasion of Mind Body Spirit. If I am full of fear, worry, anxiety, then I cannot embrace life of the three Autopoiesis system ( The term autopoiesis (from Greek αὐτo- (auto-) 'self', and ποίησις (poiesis) 'creation, production') refers to a system capable of producing and maintaining itself by creating its own healing). This diagram from one of my 2021 publications about Søren Brier's work to relate human and nature in the field of cyber-semiotics (a Charles Sanders Peirce fan, as am I). See the earlier version:

  1. Boje, D. M. (2019).  Storytelling and Cybersemiotics. Chapter to appear in Introduction to Cybersemiotics: An international perspective edited by Carlos Vidales and Søren Brier, in Springer Series on Cybersemiotics. Click here fore pre-press draft.

  2. Microsoft Word - Storytelling and Cybersemiotics chapter for Brier book.docx

    Brier, Søren. (1995). Cyber-Semiotics: On autopoiesis, code-duality and sign games in bio-semiotics. Cybernetics and Human Knowing, 3(1), 3-14.

There
                    are three autopoieses to consider in MIND BODY
                    SPIRIT


Autopoiesis - defined as a system capable of creating its own parts

Living Systems have several systems of self-creating, Bodies heal themselves if

we get out of the way.


Autopoiesis is pronounced "auto-poy-E-sis"
Click Here for More.

Here is a heartful version.
Boje Diagram of autopoieses crisscrossing the
                      heart

Click Here for More.

Do you see the implications of Wu Wei in this?


How to think with Alignment?
The Mind is always thinking and saying something and the Heart is its own intelligence.  Our Speech can get out of alignment, not saying what mind thinks or heart  wants.  Put two people in dialogue, there are three kinds of autopoiesis involved in relationships. 

copyright True Storytelling
                                  Institute
For more on True Storytelling, please see https://truestorytelling.org

 What Soren Brier does is merge some cyber-system theory of Luhmann about autopoiesis with Peirce semiotics to get an obscure field of study called cyber-semiotics. Hey and you thought medical semiotics was tough. Who said Mind Body Spirit Wisdom was easy. Indigenous Ways of Knowing were more wholistic about Mind Body Spirit, and Western Ways of Knowing (WWOK) took to the idea the body is a machine, fixable without much concern for Mind or Spirit. There are ways of Prehending the Antenarrative processes to create different futures. In Quantum Storytelling (QS) Mind Body Spirit are seen as vibrations, not as solid state.

The Worlds of Mind Body Spirit by BOJE

There are multiple worlds and you and I are looking in four directions.

Here is my Antenarrative and Quantum Storytelling (QS) tinkering with

Søren Brier's Four Pointed Star Model:

The amazing possiblities of MIND BODY SPIRIT
                      in NATURE by BOJE

  My point in these diagrammatics is quite simple. We are not separate from the world. We are apart of the world and to heal Mind Body Spirit is a problem called We are Already Nature.

My second point:
The Medical Semiotics, the Business Semiotics, and the University Semiotics are socio-communicative language games, but there is the Mind and Body psychological autopoiesis, and it affects the Lower Dantian, the gut where my Prostate and Kidney -- the body seeks to create the cells needed to heal itself. That is why the three autopoieses are so important to Mind Body Spirit. 

Chemical Castration is Toxic Language, a medical Nemesis The medical semiotic interrupts my Quantum Storytelling (QS) energy field. It is a spiritual intrusion. Fear, worry, and anxiety are a prime cause of many dis-eases, including the cancers I have. Let invoke some Sanskrit, from Jainism: Na Hum (I am not that!). So Hum (I am that guy with high testosterone production). Ko Hum (who am I) I am 'Surrenders to Spirit', I am Arihunt (everyone is my friend, especially cancer, who is telling me something I need to hear), but not this:
It's a process, and a journey with hope at
                        the end of the tunnel
(Source and More)

YouTube by Dr. G (George Lee Eng Geap aka Dr. G) Weighing in on Chemical Castration for men with Aggressive Prostate Cancer

this next YouTube, is all about positive things one can do during the months of this treatment called chemical castration:



EP68: Dealing with ‘male menopause’ | PUTTING DR G ON  the THE SPOT

The Star PLEASE SCROLL TO THIS NEXT ONE THAT SAYS EXERCISING THE BODY IS PART OF THE CURE

EP69: Weighing in on chemical castration for pr prostate cancer | PUTTING DR G ON THE SPOT


The Star

"Chemical castration is the use of drugs to lower the production of hormones in your testicles. Doctors use this method to treat hormone-related cancers  ... Chemical castration is not a one-time treatment. Your doctor administers the drugs by injection or implants them under your skin"   Side effects of chemical castration can include (More).:
1. Reduced or absent sexual desire for two to three years, as testosterone reduction sets in,
2. Erectile dysfunction for two to three years (70% of men age 70 or more get this anyway),
3. Shrinkage of testicles
4. Hot flashes (Male menopause [aka andropause]; scientific community cannot agree on this; gives men memory, concentration, less sex drive, mood swings; can make one fall asleep at lunch time, short-term memory loss [too late!]), stress, lack of energy...
5. No more sperm ejaculate ever again!
6. And good news, Hope at end of tunnel for 30% of the men

OK, so my Quantum Storytelling (QS) energy field is invaded by such medical and business and education semiotics. What are my choices? Do nothing and become Grumpy Old Man, what society tells me, technical term is the 'they-self' (Heidegger) expects of my-self. Or I do the Mind Body Spirit, not ignoring diagnosis, but I own my prognosis. I have choice to eat raw food, exercise, do Tai Chi and Shamanic Yoga. I have a choice to exercise, jog and lessen the male menopause side effects by hearing my doctor, but I also hear my Mind Body Spirit.


Are you too busy to exercie?
Jokes Help (this one in my doctor's office)


Dr. G, however, also says there is light at the end of the tunnel to the chemical castration treatment for aggressive prostate cancer. After a few years, with lower testosterone, maybe the sex life comes back.  My radiation doctor here, over the border in Texas, says the same, but only for 30%. He adds, "no more sperm production!.' I joke, so sex without the mess". He replies, "Never thought of it that way. I am going to use that one." Still it's an antenarrative bet on the future, that is positive prospective sensemaking. And I am grateful for this future potentiality, for the light at the end of this tunnel.  Here is my Bet on the Future. In May or June 2022 I will ring this bell, as having shrunk my prostate organ by 30%, and if any cancer remains after my Mind Body Spirit practices, then let the radiation begin!


I will ring this bell in May or June 2022
David Boje Sets his Bet on the Future: To Ring this Bell when my Intention is Met

I had a bell just like this in a personnel agency I ran. You rang the bell when something good happened. I David Boje will ring this bell, when my prostate has shrunk 30%, which means I go into radiation therapy instead of removal of prostate by surgery.


To get my Chi (Qi) back, I use core-shamanic drumming meditation (https://davidboje.com/shamanic), and chakra work, and every modality above. It takes time to relax, breath, drumming, and do the nature work in order to to realign, rebalance and to recharge mind body spirit.  For the past 23 years, I have been doing Jainism practices, and working with Gurudev Shree Chitrabhanu, his wife Pramodaben Chitrabhanu Pramodaji,
and my wife Grace Ann Rosile.


I received this wonderful message from Pramoda this morning (Feb 20, 2022):






        Ahimsa is a daily practice I integrate with my shamanic practices. Here is an overview. Chakras 2, 3, and 4, are recharging since I got the news. Yesterday Feb 19, 2022, waves of sadness, washed over me, and with the practices I mentioned, I let the waves pass through me, and recharged with quantum energy waves, electromagnetic forces, chi. I am grateful for Little Buddha (aka, Mahavira, the 24th Tirthankara of Jainism)
for the spiritual path I am on. Karma the law of action and reaction is not the mechanistic law of cause and effect material fact, rather they are spiritual ways of shifting energy, that Socrates, and many ancients practices with deep wisdom.  The Karma of my past comes back to haunt me, my time in Vietnam war, my love of chocolate, sugar, etc. Karma manifests, until the lesson is learned. Cancer I have a deal to make, you live on, and let me live on; when I die your have no home.


Socrates as depicted in Xenophon’s ‘Memorabilia’ engages in the apotheosis dialogue with his foes (sophists, demagogues) who accused him of introducing new divinities. Socrates drank the cup, and heard his friends weeping, and said “What is this strange outcry? Be quit, and have patience” (More).


I make a conscious choice to change the quantum energy field of the events, and I am not angry. Anger is already the cancer of the liver, as Little Buddha reminds me. and Little Mahavira, says, 'overcome your fear of death, and live each day. Today is the first day of the rest of your life.'  I call them the two Little Buddhas. They guide me on my shamanic journey. Next I work with Chakras 2, 3, and 4, and then all the Chakras.


It is important in my healing to do more than meditate on Chakras.  Chakras are 7 energy centers that can open up waves for healing by Mind making Connection to Body and Spirit.  That is how Enthinkment (E1) works.


Chakra
                          Vibrration 10 Minute Daily Routine Click Here


Next for seven Mantras, to vibrate the body, and to set intentions for healing. I am opening all 7 energy centers, with particular care for the 2nd and Mantra Mano ramam that I learned in my Jainism practice is the mind-player. Doing the practices helps me attune to the mind-player The Brain Education TV on YouTube has wonderful meridian energy movement exercises for Kidneys and for Bladder. I have the book Water Up Fire Down, which is quite helpful.  One of the practice series helps move the energy, prior to doing the Chakra energy practices.


This is part of the Water Up Fire Down
                        series Click Here



These exercises clear blockages of energy in my body, especially helpful to get the energy waves happening in 1st, 2nd, and 3rd Chakras, where the organs Little Buddha is calling attention to, and telling me to work on Mind Body Spirit.  The Thinking mind begins working in balance with body, becomes and focused on chakra energies, the movement of energy helps the spirit to rise, and make the Mind Body Spirit connection for healing.

see 7 Chakra Chart


Don't become Grumpy Old Man!


Dr.
        Seuss - Joke about aging
This is in my doctor's office


CHRONIC Stress is the great Destroyer of you 4 Heart's Life Force Energy! What if Stress accumulates in the mind and body, and dampens the spirit?  What if these kinds of movement, vibration, and meditation practices help us to unblock the energy paths, and detoxify stress of our work lives of over thinking and all that sensemaking enactment? 

Charles Sanders Peirce is all about resolving duality of Firstness and Secondness, by invoking The Thirdness of Agape Love (Evolutionary Love).


When monkey
          mind and sensory overload happens try body and spirit
          continuity

We live stressful lives in stressful work environments and wonder why cancer comes calling.  Prostate cancer once a part of nature, that exist, was once treated by the shaman, not so in the age of Enlightenment, its treatment is by medical technology, and the 'Culture Industry' has its own way of thinking and making sense of prostrate cancer, as taboo.  Horkheimer and Adorno (1940) calls all this shift of thinking, phantasmagoria, meaning you can not think away or enact away, psychoanalytic role in Quantum Storytelling, and restrict it to physics experiments.

What’s true storytelling?  The return of Enchantment to E1 and E2 can be part of QS. Or for Žižek, the role of spirit in a dialectic that includes the psychoanalytic.

According to the observer effect as Dewey (1929) understood it, how I (Boje) think about prostrate cancer affects the quantum energy field of my body, and its not all about the technologies, the apparatus medical industry brings to bear.


Click here for some
Prostate Cancer Enthinkment slides to orient different ways of thinking about prostate cancer, its treatments, its meaning.



What to do about prostate cancer? How to think about it?  What is the thinking about it? I follow John Dewey, that more is going on than the five senses of sensemaking enactment can comprehend.


I (Boje) look to quantum storytelling (QS) for how it changes how to think about prostate cancer and what sense to make of it by my senses.
  Here is the thing, the Enlightenment Thinking had Disenchanted life, while bringing in medical technologies.  I am a shamanic practitioner, a myth-maker, a ‘spirit seer’.  Enlightenment combines with the Culture Industry to disenchant Nature, Shamans, and natural approaches.  The claim is its progress over myth, but does medicine examine critically its own myth-making?


Several kinds of Quantum Physics are contending: (1) Dewey (1929) followed Heisenberg’s Principle of Indeterminacy, (2) Barad (2007) followed Neils Bohr, (3) Žižek (2012) wants to bring the dialectic back in; (4) Horkheimer & Adorno (1940) concludes the dialectic after disenchantment is not the same anymore.

Žižek (2011: 935) for example, in bringing the dialectic of Spirit into Barad's 'agential-realism' 'cut': "The reason Barad does not take into account this more radical ontological cut lies in her implicit naturalism."  In other words, how to put Nature and Spirit into the Ground of Existence that quantum processes are about (p. 922).


My Mentor Louis Ralph Pondy, invited me to think differently and like Dewey (1910), trained me in ‘How to Think’ something outside of five senses.  Pondy, the Leaping Thinker, died at age 49 before I could ask “What is Called Thinking” (Heidegger)? Pondy and I (1980) wanted to ‘Bring Mind Back’ into Weick’s ‘enactment-sensemaking, which has the motto: Enactment not Enthinkment.


The Quantum Storytelling (QS) changes
how we do acts of Enthinkment and Enactment.  For Horkheimer and Adorno, Enlightenment Thinking changed How We Think, by Disenchantment & Deymythologizing, in order to progress Domination of Nature.

John Dewey (1929) inspired by Quantum Physics, took an ontological turn to Think Differently.

Slavoj Žižek combines psychoanalytic with Hegel (dialectic spirit), to ask for a dialectic in Barad’s (2007) intra-activity of materiality with discourse (aka, agential realism) which has no dialectic, and is the neither-nor.

We ask what’s the ‘true storytelling’ in all this? What's the essence of what's true? Surely its not just sensorium, or the court of opinions, or what is experienced, but something more enchanting. Pondy studied myth, intuition, and symbolism, and was on the road to perhaps a pragmaticism journey.


As of Feb 11, 2022, the recommendation of MD Anderson, after their enthinkment process of three specialties (radiology, surgery, and clinical) doing together-listening, the choice of treatment for malignant Stage 2B prostate cancer (on way to 3, masticating) and the presences of a kidney cancer (watching it) is to fly me-Boje to Houston Texas and meet the surgeon, early March. It is an example of doctors, specialists, nurses, and intake people thinking-together, and it includes-in-the-loop the local doctors in New Mexico.  How one thinks about cancer, is stressful, frightening, and therefore to not over-think it, is a way of living, a way to let the heart put in perspective what is in monkey-mind. Monkey mind over-thinks, which changes the body chemistry, blocks the meridians, affects the quantum energy flows, and invites a habit for cancer to grow, and does not allow the body to produce the living cells that make for well-Being.

I am grateful to all of you for your well-being prayers and wishes, and for the Little Buddha and Little Mahavira, you send my way.


A Smill is more Infectionus than any Cancer Infection
An infectious grin better than infectious virus.


Today Feb 17, 2022 I am headed to the doctor to get my first hormone shot that lowers my testosterone, plus I’m taking a pill a day for 30 days to eradicate it. This will slow the growth of cancer (we hope, but a biopsy is scheduled), and shrink the prostate, and lower my PSA score of 26.8. Na Hum (I am not a statistic!). All these results mean I am eligible for radiation treatment in three months, but if the goal of 30% reduction of prostate size is not met, then the surgeon removes the whole organ, which has many dire consequences. If radiation can happen, the there is chance for a long healthy quality of life.

First, I received the Lupron shot of 45MG on 17 February, 2022. The next schedule shot is 21 June 2022 (which I can take or not take, per the protocol of the clinical trial).
 
Second, the Biclutamide was 30 pills each 50 MG, begun on Feb 15 2022 and completed taking the 30th pill on March 16, 2022. This was a prescription from Dr. Mendel in El Paso Rio Grande Urology Clinic. Prescription written feb 14 2022, and got the pills on Feb 15 2022.


MIND BODY SPIRIT is my path. It is a path of three kinds of evolutionary times. I choose to accent the Path of Agape Evolution. Medical Semiotics has taken the path of Mechanistic Necessity for surgery and for pharmaceuticals. May need some of this, but its not my path. Business Semiotics makes utilitarian greed bets. Again, not my path. I choose the spiral of creative love (Agape), in Mind Body Spirit healing, to let the body have its time to heal itself, with me working on the mind and spirit part of the whole.

There are three evolutionairy times interplaying in MIND BODY SPIRIT
Read more about it at this website when I used to teach this stuff at the university. Click Here for More.


Got the Diagnosis It is about my spiritual embodiment.


I (Boje) gave my Stage 2B prostate cancer a name, an identity: Little Buddha. It came to me in a shamanic drumming meditation before the diagnosis was in.  I find spiritual embodiment notion of Charles Sanders Peirce very comforting.  Here is the way the theory works.

Enthinkment (E1) is about thinking from inferences, making associations of this and that quality.  Pondy was an expert at that.  Enactment (E2) is about parsing chunks of sense from experience (monadic). The quantum storytelling in Peirce, is about the triadic relation, what he calls 'synechism' which simply means continuity of time.  I have two little Buddhas colonizing some of the 37.2 trillion cells of my body.  Here is a slide presentation of results received Feb 2, 2022. Slides
A YouTube about all this. Click Here for 20 minute YouTube, Feb 3 2022.

In reading Charles Sanders Peirce, I am excited about his notion of ‘embodied spirituality.’ He is a believer in God, and New Testament, but skeptical of much of the religiosity. What he seems to be doing is coming up with alternative notions of time, of space, of mattering, and put them into his triadic relationships, then using the abduction-induction-deduction cycles of inquiry to question the assumptions, and get closer to what’s true storytelling, iteratively. Which as you may know is what we are about in the doing conversational storytelling book (Boje & Rosile, 2020).

Our own interpretation of Little Buddha and CS Peirce 3
            notions of evolution time


Peirce's three time evolution theories: Tychastic evolution, Anancastic evolution, and Agapistic Evolution (in Firstness, Secondness, and Thirdness), allows for Creative Love of the Agape in relation to the Jeremy Bentham (utilitarianism) and Darwin (selection of fittest variations) Tychastic, and in relation to the Anancastic evolution he reads in Creative Love (Agape). In Volume VII, a whole book on Love, going through scriptures, and various interpretations, and centering his own. Peirce's theory of Creative Love (embodied spirituality) is not hampered by Cartesian, Kantian, Newtonian, but ventures into what we now call quantum storytelling, in VII on the Metaphysics of all this (Chapter 2, Evolutionary Love). Peirce comes up with Thirdness as a way to inquiry into processes where cause-effect fails to go (e.g. variation-selection-retention notions of time; VI, #69 & #202, for more).

 
A Little Buddha Version of 4 Whos and 7 antenarrative processes
For more on the 7 antenarrative processes, please see
Antenarrative.com


How does all this apply to the 'who' question: who is storytelling to whom? In TS we look at the interplay of four who's:
1) Ego-centric-who Peirce calls 'self-love', which as you know is the basis of most economic theory, that self-greed is efficient market mechanism (or invisible hand).
2) Corporate-centric-who Peirce calls love of a limited class (one class of people, against another class of people), devoted to corporate wealth of shareholders, utilitarianism, survival of the fittest variation approach to entrepreneurship, and so on, rather than to good, just, and betterment of the whole of the social or to ecological;
3) We-centric-who (or social) that is what Peirce calls a 'public-spirit; consciousness, Heidegger calls the 'they-self), that puts the social ahead of Nature, and sometimes ahead of Corporate-who.
4) Eco-centric-who of ecology, which is quite divided over issue of spirituality of nature or nature as just spiritless processes.


We get the four-whos into dialogues of true storytelling. For more see
True Storytelling Institute
And we help people think and make sense of what's true of an ethical life. And no one we know had more honesty, integrity to walk that talk than Louis Ralph Pondy. Peirce and Pondy were rigorous and creative thinkers. Peirce 'post hoc ergo propter hoc' fallacy (Latin for post hoc), thinking (VII, #114, p. 67) is understood as a process of induction-fallacy, from antecedent to conclusion with but one or a few case. Example, "Every swan I see is white, therefore all swans are white" (then the case of the black swan); "Every time that rooster crows, the sun comes up"; "A black cat crossed my path, and then I got into a car accident"; "Yesterday I did an elevator pitch, today everyone understand me." A well conducted inquiry is not just post hoc. In Abduction-Induction-Deduction (AID), it's about more cases and better thinking, to get to better understanding.


Main References
Antenarrative Process website click here for Antenarrative.com


Arrington, M. I. (2005). " She's Right Behind Me All the Way": An Analysis of Prostate Cancer Narratives and Changes in Family Relationships. The Journal of Family Communication, 5(2), 141-162.
De Vincentis, G., Monari, F., Baldari, S., Salgarello, M., Frantellizzi, V., Salvi, E., ... & Cortesi, E. (2018). Narrative medicine in metastatic prostate cancer reveals ways to improve patient awareness & quality of care. Future Oncology, 14(27), 2821-2832. Accessed Feb 26, 2022 at https://www.futuremedicine.com/doi/pdfplus/10.2217/fon-2018-0318


Boje, David M. Books and articles Click Here


Mathieson, C. M., & Stam, H. J. (1995). Reneotiating identity: cancer narratives. Sociology of Health & Illness, 17(3), 283-306. Accessed Feb 26, 2022 at https://onlinelibrary.wiley.com/doi/pdf/10.1111/1467-9566.ep10933316
Rashbaum, Ira G., and John E. Sarno. (2003). "Psychosomatic concepts in chronic pain." Archives of physical medicine and rehabilitation 84: S76-S80.
Ricoeur, Paul (1991). Life in quest of narrative. In Wood, D. (ed.) On Paul Ricoeur: Narrative and Interpretation. London: Routledge.
Roaldsen, B. L., Sørlie, T., & Lorem, G. F. (2015). Cancer survivors’ experiences of humor while navigating through challenging landscapes–A socio‐narrative approach. Scandinavian journal of caring sciences, 29(4), 724-733. Accessed Feb 26, 2022 at https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/scs.12203 Sarno, J. E. (2001). Healing back pain: The mind-body connection. Grand Central Publishing. Accessed Feb 26 2022 at http://elibrary.omc.ac.ke/get/pdf/Healing%20Back%20Pain%20The%20Mind%20-%20JOHN%20E.%20SARNO%2C%20M.D__11906.pdf
Shotter, John (1993). Cultural Politics of Everyday Life. Buddingham. U.K.: Open University Press.


True Storytelling Institute Click here for TSI seminars and online courses




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